Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 04-25-2015, 05:03 AM #11
Arsippe Arsippe is offline
Junior Member
 
Join Date: Jul 2012
Posts: 77
10 yr Member
Arsippe Arsippe is offline
Junior Member
 
Join Date: Jul 2012
Posts: 77
10 yr Member
Default Bump

Is it still helping? Thanks for any update.
__________________

.
Arsippe is offline   Reply With QuoteReply With Quote

advertisement
Old 04-25-2015, 11:07 AM #12
HarryM HarryM is offline
Junior Member
 
Join Date: Apr 2010
Location: S.E. BC - Western Canada
Posts: 93
10 yr Member
HarryM HarryM is offline
Junior Member
 
Join Date: Apr 2010
Location: S.E. BC - Western Canada
Posts: 93
10 yr Member
Default

Quote:
Originally Posted by Arsippe View Post
Is it still helping? Thanks for any update.
I'm still pretty much tremor free although stress will start minor tremors and I take a 1/2 tab of LevoCarb and remove my self from the situation for a while. The combo of my med has worked well for me and given me back a large portion of my life. I still have symptoms of the disease such as slow speech, tired body, broken sleep. Best of all is the "Drooling". Some times I drool like a dog at a MacDonald's dumpster but if that's the worst thing I suffer, well, so be it. The mirtazapine seems to be selective on who it works for but it has done well for me and I wish for success for those who try it. Also I have not encountered any apparent side effects (yet). I hope for the best for all of us.

HarryM
__________________
"I used to have a split personality, but I'm ok now, AND SO AM I".:
.
HarryM is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dilmar (04-27-2015)
Old 05-15-2015, 12:40 PM #13
Arsene Arsene is offline
Junior Member
 
Join Date: Feb 2014
Location: UK
Posts: 13
10 yr Member
Arsene Arsene is offline
Junior Member
 
Join Date: Feb 2014
Location: UK
Posts: 13
10 yr Member
Default Tremors and Mirtazapine

Quote:
Originally Posted by HarryM View Post
Not a cure but major relief from tremors. My Neurologist added this anti depresent to my other meds and I have had near zero tremors during the past week. No side effects have been noticed.

MIRTAZAPINE 15 mg once daily at bedtime. My other meds are as follows;

Levo/carb 100/25 mg 4 times daily
Pramipexole o.25 mg 3 times daily

The N'gist has had similar results with other patients.

I hope this info helps. I'm 73 with advanced PD and I FEEL GREAT - so far.
Harry M,
Thanks for your posts.
Can you advise us if the MIRTAZAPINE continued to keep your tremors at bay
or did the beneficial effects on the tremor reduce or fail over a certain time period.
I am D/X four years and take Sinemet Plus 4 per day; Mirapexin 0.088; 3 per day.
I am unable to control my left side tremors which get worse if I increase the
Sinemet above 400mg per day.
Arsene
Arsene is offline   Reply With QuoteReply With Quote
Old 05-16-2015, 09:11 PM #14
nuggets nuggets is offline
New Member
 
Join Date: Feb 2014
Posts: 5
10 yr Member
nuggets nuggets is offline
New Member
 
Join Date: Feb 2014
Posts: 5
10 yr Member
Unhappy Mirtazapine

Quote:
Originally Posted by HarryM View Post
Not a cure but major relief from tremors. My Neurologist added this anti depresent to my other meds and I have had near zero tremors during the past week. No side effects have been noticed.

MIRTAZAPINE 15 mg once daily at bedtime. My other meds are as follows;

Levo/carb 100/25 mg 4 times daily
Pramipexole o.25 mg 3 times daily

The N'gist has had similar results with other patients.

I hope this info helps. I'm 73 with advanced PD and I FEEL GREAT - so far.
Hello,
I have tremors on my hand and now it starts to my leg, I mentione it to the Neuro he looks at me in smiling, I asked if he 's sadistic??
I start Mirtazapine but I can't tolerate it, It gave me dizziness and sleeping a lot, the whole day, and i start again with half a pill, again the same effect. I stop it now.
nuggets is offline   Reply With QuoteReply With Quote
Old 05-17-2015, 10:28 PM #15
HarryM HarryM is offline
Junior Member
 
Join Date: Apr 2010
Location: S.E. BC - Western Canada
Posts: 93
10 yr Member
HarryM HarryM is offline
Junior Member
 
Join Date: Apr 2010
Location: S.E. BC - Western Canada
Posts: 93
10 yr Member
Default

Quote:
Originally Posted by nuggets View Post
Hello,
I have tremors on my hand and now it starts to my leg, I mentione it to the Neuro he looks at me in smiling, I asked if he 's sadistic??
I start Mirtazapine but I can't tolerate it, It gave me dizziness and sleeping a lot, the whole day, and i start again with half a pill, again the same effect. I stop it now.
It is apparent that this drug seems to affect everyone differently. I have none of the side effects that you describe and wish everyone had the success with their prescribed meds that I've had with mine. Prior to this combo, I was a holy mess that endured full body and limb spasms so bad that I attempted and failed a suicide. I just hope that the effects of my prescribed meds continues.
__________________
"I used to have a split personality, but I'm ok now, AND SO AM I".:
.
HarryM is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Arsene (05-18-2015)
Old 05-18-2015, 06:23 AM #16
Arsene Arsene is offline
Junior Member
 
Join Date: Feb 2014
Location: UK
Posts: 13
10 yr Member
Arsene Arsene is offline
Junior Member
 
Join Date: Feb 2014
Location: UK
Posts: 13
10 yr Member
Default

Quote:
Originally Posted by HarryM View Post
It is apparent that this drug seems to affect everyone differently. I have none of the side effects that you describe and wish everyone had the success with their prescribed meds that I've had with mine. Prior to this combo, I was a holy mess that endured full body and limb spasms so bad that I attempted and failed a suicide. I just hope that the effects of my prescribed meds continues.
Harry,
Thanks for your posts on Mirtazapine.
I have constant tremor left side and would like to ask if the Mirtazapine is
still working for you; what side effects it causes; how long you have had PD
and if you suffer daytime drowsiness from any of your meds.
Best Wishes,
Arsene
Arsene is offline   Reply With QuoteReply With Quote
Old 05-18-2015, 10:39 AM #17
HarryM HarryM is offline
Junior Member
 
Join Date: Apr 2010
Location: S.E. BC - Western Canada
Posts: 93
10 yr Member
HarryM HarryM is offline
Junior Member
 
Join Date: Apr 2010
Location: S.E. BC - Western Canada
Posts: 93
10 yr Member
Default

'gist
Quote:
Originally Posted by Arsene View Post
Harry,
Thanks for your posts on Mirtazapine.
I have constant tremor left side and would like to ask if the Mirtazapine is
still working for you; what side effects it causes; how long you have had PD
and if you suffer daytime drowsiness from any of your meds.
Best Wishes,
Arsene
Yes, the mirtazapine and/or the combination of drugs is still working for me and it has not caused any side effect yet that I could attribute to the drug. I do get sleepy around 3 pm but a short cat nap cures that.

I was diagnosed in 2005 although I suspected back in 1996/97,that I had PD because a tremor had developed in my right hand.

Too much LevoCarb put me into the spasms that just about brought about my end but an eceptional nurse in the hospital working in conjunction with my Md
& N'gist found that body temp was critical with me & spasms/tremors. The hotter I was, the more prevelant were the tremors and I would get agitated/frustrated. To off set those feelings, they gave me a mild sedative which eventually led to the trial with Mirtazapine along with a routine that would keep my body cool.

Based on my experience, I would advise the PWP to work closely with their medical team and follow their advice but do not have any unrealistic expectations from changes in meds or treatment. We're in this for the long haul so if you find something that works for you or makes your life a bit easier, stick with it and count your blessings.

Good luck to us all.
HarryM.
__________________
"I used to have a split personality, but I'm ok now, AND SO AM I".:
.
HarryM is offline   Reply With QuoteReply With Quote
Old 10-14-2015, 03:39 PM #18
Arsene Arsene is offline
Junior Member
 
Join Date: Feb 2014
Location: UK
Posts: 13
10 yr Member
Arsene Arsene is offline
Junior Member
 
Join Date: Feb 2014
Location: UK
Posts: 13
10 yr Member
Default

Quote:
Originally Posted by HarryM View Post
Not a cure but major relief from tremors. My Neurologist added this anti depresent to my other meds and I have had near zero tremors during the past week. No side effects have been noticed.

MIRTAZAPINE 15 mg once daily at bedtime. My other meds are as follows;

Levo/carb 100/25 mg 4 times daily
Pramipexole o.25 mg 3 times daily

The N'gist has had similar results with other patients.

I hope this info helps. I'm 73 with advanced PD and I FEEL GREAT - so far.
Harry, Thanks for your input on Mirtazapine use for PD tremor.
I recently tried this starting with one half of a 15mg Miratazapine tablet.
It certainly reduced the strong tremors from day one.
The downside for me was that I became "drugged" for the following day to the extent that my wife advised I looked stoned all day and became withdrawn and vacant. I reduced my Mirtazapine intake to a quarter of a 15mg tablet per night and still slept for 12 hours and felt stoned the day after.
It appears that I am sensitive to most meds but this Mirtazapine really knocks me over. However it is the only med that has reduced my intense shaking so I will continue with caution. Also the Mirtazapine has improved my mood.
My regular meds are Sinemet Plus at 4 per day and Mirapexin 0.018 at 4 per day. I am 64 with PD for 4 years.
Arsene
Arsene is offline   Reply With QuoteReply With Quote
Old 10-14-2015, 10:12 PM #19
HarryM HarryM is offline
Junior Member
 
Join Date: Apr 2010
Location: S.E. BC - Western Canada
Posts: 93
10 yr Member
HarryM HarryM is offline
Junior Member
 
Join Date: Apr 2010
Location: S.E. BC - Western Canada
Posts: 93
10 yr Member
Default

Quote:
Originally Posted by Arsene View Post
Harry, Thanks for your input on Mirtazapine use for PD tremor.
I recently tried this starting with one half of a 15mg Miratazapine tablet.
It certainly reduced the strong tremors from day one.
The downside for me was that I became "drugged" for the following day to the extent that my wife advised I looked stoned all day and became withdrawn and vacant. I reduced my Mirtazapine intake to a quarter of a 15mg tablet per night and still slept for 12 hours and felt stoned the day after.
It appears that I am sensitive to most meds but this Mirtazapine really knocks me over. However it is the only med that has reduced my intense shaking so I will continue with caution. Also the Mirtazapine has improved my mood.
My regular meds are Sinemet Plus at 4 per day and Mirapexin 0.018 at 4 per day. I am 64 with PD for 4 years.
Arsene
,I guess I must be one of the lucky ones that can tolerate some of the side effect or maybe I just try to power though them. The only thing that has gone to hell with me is my speedh. Sounds like an old Forest Gump
__________________
"I used to have a split personality, but I'm ok now, AND SO AM I".:
.
HarryM is offline   Reply With QuoteReply With Quote
Old 10-14-2015, 10:18 PM #20
HarryM HarryM is offline
Junior Member
 
Join Date: Apr 2010
Location: S.E. BC - Western Canada
Posts: 93
10 yr Member
HarryM HarryM is offline
Junior Member
 
Join Date: Apr 2010
Location: S.E. BC - Western Canada
Posts: 93
10 yr Member
Default

Quote:
Originally Posted by Arsene View Post
Harry, Thanks for your input on Mirtazapine use for PD tremor.
I recently tried this starting with one half of a 15mg Miratazapine tablet.
It certainly reduced the strong tremors from day one.
The downside for me was that I became "drugged" for the following day to the extent that my wife advised I looked stoned all day and became withdrawn and vacant. I reduced my Mirtazapine intake to a quarter of a 15mg tablet per night and still slept for 12 hours and felt stoned the day after.
It appears that I am sensitive to most meds but this Mirtazapine really knocks me over. However it is the only med that has reduced my intense shaking so I will continue with caution. Also the Mirtazapine has improved my mood.
My regular meds are Sinemet Plus at 4 per day and Mirapexin 0.018 at 4 per day. I am 64 with PD for 4 years.
Arsene
,I guess I must be one of the lucky ones that can tolerate some of the side effect or maybe I just try to power though them. The only thing that has gone to hell with me is my speedh. Sounds like an old Forest Gump.

Stress can & will start tremors with me but I take a sedative (Ativan)and go sit down for 20 minutes , then its back to no tremors.

If this was the worst I was going to be, Great , Bring it on..

Mornings are the worst for me, just general feeling crappy but by noon I'm feeling pretty good.
__________________
"I used to have a split personality, but I'm ok now, AND SO AM I".:
.
HarryM is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
SCS got me working..modified duty but Working. nastyy13 Spinal Disorders & Back Pain 0 07-18-2012 11:20 PM
Are you working despite your RSD? NJsteve Reflex Sympathetic Dystrophy (RSD and CRPS) 16 07-18-2009 02:02 AM
working little rock Parkinson's Disease 1 05-27-2008 10:59 AM
Still Working but not my job bittid23 Thoracic Outlet Syndrome 2 04-14-2008 02:39 AM
MVD not working??? niki45502 Trigeminal Neuralgia 4 04-11-2008 05:50 PM


All times are GMT -5. The time now is 01:02 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.