Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 07-13-2007, 11:01 PM #1
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Does this ring true to you?

Somethiing that I got to thinking about today and wondered if it fit others.

When I'm off and/or freezing, doing one thing is hard, doing two is impossible. Any form of multi-tasking is out.

That extends out to things like walking and looking around. Turning or changing stride length. Negotiating a crowded or cluttered room. Too much input.

Same thing when I first stand up. Takes a minute to recalibrate. Process all that input.

Now we all know the "tricks". Imagine a line and step over. Laser pointer on the floor. Holding a walking stick out ahead and following its tip.

These techniques have a common element of requiring that I focus on something - the laser dot for example. That in turn quietens the confusion in my head. Looking at my toes does a similar thing.

I imagine a chaotic state in my brainwaves. Focus quitens it. DBS does too. So does a metronome or music with a steady beat.

Anybody?
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Old 07-13-2007, 11:40 PM #2
lou_lou's Avatar
lou_lou lou_lou is offline
In Remembrance
 
Join Date: Sep 2006
Location: about 45 minutes to anywhere!
Posts: 3,086
15 yr Member
lou_lou lou_lou is offline
In Remembrance
lou_lou's Avatar
 
Join Date: Sep 2006
Location: about 45 minutes to anywhere!
Posts: 3,086
15 yr Member
Arrow you are short circuiting~

dear rev,
hijacking or just answering - my answer to your Q:
We are not getting the proper neurotransmissions -therefore
if you listen to music or a type of rythmn - the brainwaves will pick up the rythmn - copy it... soothing the overstimulation/

read about the heartbeat and breathing of a child it is copied from the mom
while the infant is being held and fed.

sound music - may ring true...
http://www.therelaxationcompany.com/soundmedicine.html

www.therelaxationcompany.com
theories proven by Dr. Jeffrey Thompson
__________________
with much love,
lou_lou


.


.
by
.
, on Flickr
pd documentary - part 2 and 3

.


.


Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
lou_lou is offline   Reply With QuoteReply With Quote
Old 07-14-2007, 12:06 AM #3
steffi 001's Avatar
steffi 001 steffi 001 is offline
Member
 
Join Date: Sep 2006
Location: Nottinghamshire/UK; dx 09/97 @ 38
Posts: 353
15 yr Member
steffi 001 steffi 001 is offline
Member
steffi 001's Avatar
 
Join Date: Sep 2006
Location: Nottinghamshire/UK; dx 09/97 @ 38
Posts: 353
15 yr Member
Default Grrrrrrrrrrrrrrrrrr [ a nice grrrrrrr ]

The guy in the boat in the latest Dolce and Gabana commercial.He brings me out of a "frozen" state EVERY TIME !!!!!

Hah. Just kidding. I know what you mean Rick. On a good session I can multi task with ease.As of late, and I must add I am dealing with a 3 week long virus,pleurisy included, I am really struggling to maintain any quality sessions.I have more "offs" than ever before.I have to sit because my legs buckle and cannot support me at all during these periods. All I can do is,like you say,encourage a state of "calm" and the rest is down to the waiting game.It`s strange how you can feel all your energy drain away and then later,it begins to slowly creep back in.

I have not tried the music thing...but then again I am constantly playing music so maybe my brain has become too accustomed to this,for it to make any difference.
As for turning round.Thank God no-one sees me perform this "little ritual." It takes umpteen steps and looks like I am performing a rain dance !!! I am exhausted by the time I have managed to face the right direction.The trouble then is...if I don`t end up right...with my feet in such a position that they provide a sturdy enough support to balance, I keel over like a "felled" tree.

Steff
steffi 001 is offline   Reply With QuoteReply With Quote
Old 07-14-2007, 02:04 AM #4
michael7733 michael7733 is offline
Member
 
Join Date: Nov 2006
Posts: 290
15 yr Member
michael7733 michael7733 is offline
Member
 
Join Date: Nov 2006
Posts: 290
15 yr Member
Default This works for me...

When there are no props available (i.e. pointers, lines, lasers, etc.) if you will take thought to move your left hand forward with your right foot (or visa versa), the response you are looking for, walking, should be there. Even if it is somewhat robotic, it beats shuffling.

As for music, I have found that for me a repetitive low D note or chord tends to calm my tremors. I discovered this before I began taking meds during an MRI session and again during a song service at church when the bass guitar was particularly strong on one song. Upon further study I decided that it was not the sound that relieved the tremor but the resonance (An excited state of a stable particle causing a sharp maximum in the probability of absorption of electromagnetic radiation...according to my dictionary). That is significant, because a resonance machine could be built without having the distubing factor of sound, and it could be worn outside the body...an external DBS if you will. I approached a sound engineer with the idea, and he thought it was feasible. I actually purchased a type of C.E.S. (cranial electro stimulator) and tried it. I achieved some success with it but not what I was hoping for. After using it four times daily for 15 minutes each session for four consecutive days, my tremor began to subside. After stopping treatment, the tremor did not increase until approximately 2 weeks had elapsed. A lack of knowledge of exactly what was actually happening in my brain to cause this is why I stopped the procedure. More controlled study should be considered in this area.

michael b.
michael7733 is offline   Reply With QuoteReply With Quote
Old 07-14-2007, 06:56 AM #5
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default interesting experiment michael

One thing that goes awry is our internal timekeeping system based in a part of the brain abbreviated SCN but whose name I'm not going to look up until after coffee

This system is the ground that everything else is referenced to. It gets screwed up and so do we. Too much input.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Old 07-16-2007, 08:01 AM #6
Jaye Jaye is offline
Member
 
Join Date: Aug 2006
Location: The Left Coast
Posts: 620
15 yr Member
Jaye Jaye is offline
Member
 
Join Date: Aug 2006
Location: The Left Coast
Posts: 620
15 yr Member
Book Too much input, or no way to organize it

Yes, Rick, it rings plenty true. Early on I forgot how to get out of a car and had to do it consciously. More recently I forgot how to put on pants, and now I struggle, although it gets better as I continue doing it independently and thus building alternate pathways in my brain (as I was told I had done when I was a subject in a brain imaging study involving hand movement in roughly 2000 or 2001).

It has been learned in the last few years that there is frontal lobe involvement in PD. I believe you guys are talking about the function of the anterior cingulate cortex (among other things). You (meaning anyone reading) can google on "cognitive neuroscience" to open up this wonderful field of brain research. Executive function is only part of it. I think the Society for Neuroscience does a particularly good job of explaining the science without dumbing it down in their "Brain Briefings" series. Example (from http://www.sfn.org/skins/main/pdf/Br..._Nov2002.pdf):
Quote:
In recent years, a trove of studies also indicates that the basal ganglia movement areas are behind some of the cognitive problems that patients experience.

Impairments in procedural memory, for one, appear to arise from basal ganglia malfunctions. This type of memory helps you learn a skill, such as riding a bike, over many trials, without requiring conscious awareness.

...scientists found that the PD patients have unusually low caudate nucleus activity and unusually high hippocampal activity. Patients may compensate for a caudate nucleus deficit by relying on their hippocampus. This could make the retrieval of memories to accomplish procedural tasks a more conscious, deliberate and difficult process.

Regions of the basal ganglia may also play a role in more complex cognitive problems that affect those with PD. Brain imaging studies indicate that basal ganglia malfunctions in PD patients impair a loop of interaction with the prefrontal cortex, a brain area known for its ability to aid complex functions. Recently researchers tested cognitive functions that receive aid from the prefrontal cortex, such as attention, and a type of memory that helps you manipulate information in a brief period of time in order to make a response. Poor performance on the tests tied to poor basal ganglia activity.
GO HARD SCIENCE

Jaye
"If you want to keep moving, keep moving." - Bob C.
Jaye is offline   Reply With QuoteReply With Quote
Old 07-16-2007, 12:56 PM #7
Todd's Avatar
Todd Todd is offline
Member
 
Join Date: Aug 2006
Location: Sunny SoCal
Posts: 204
15 yr Member
Todd Todd is offline
Member
Todd's Avatar
 
Join Date: Aug 2006
Location: Sunny SoCal
Posts: 204
15 yr Member
Default

Jaye - you forgot how to put on your pants?

You better check yourself before walking out the door. Otherwise, you'll be out somewhere, look down and say, "Damn, I knew I forgot something!"

__________________
Todd

.


.
Todd is offline   Reply With QuoteReply With Quote
Old 07-18-2007, 03:24 AM #8
Teretxu's Avatar
Teretxu Teretxu is offline
Member
 
Join Date: Sep 2006
Location: Asturias, Spain
Posts: 172
15 yr Member
Teretxu Teretxu is offline
Member
Teretxu's Avatar
 
Join Date: Sep 2006
Location: Asturias, Spain
Posts: 172
15 yr Member
Default

Quote:
Originally Posted by reverett123 View Post
Somethiing that I got to thinking about today and wondered if it fit others.

When I'm off and/or freezing, doing one thing is hard, doing two is impossible. Any form of multi-tasking is out.

That extends out to things like walking and looking around. Turning or changing stride length. Negotiating a crowded or cluttered room. Too much input.

Same thing when I first stand up. Takes a minute to recalibrate. Process all that input.

Now we all know the "tricks". Imagine a line and step over. Laser pointer on the floor. Holding a walking stick out ahead and following its tip.

These techniques have a common element of requiring that I focus on something - the laser dot for example. That in turn quietens the confusion in my head. Looking at my toes does a similar thing.

I imagine a chaotic state in my brainwaves. Focus quitens it. DBS does too. So does a metronome or music with a steady beat.

Anybody?
Rick, I believe you have vertigo. When you can't walk and look around at the same time without your losing your balance that is called "paroxistic lateral vertigo", or so my neuro told me. There's not much you can do about it, just avoid walking along bumpy country lanes at dusk , bad lighting conditions make it worse.
Teretxu is offline   Reply With QuoteReply With Quote
Old 07-18-2007, 04:35 AM #9
Suffolkchris Suffolkchris is offline
Member
 
Join Date: Jan 2007
Location: Dx Feb 2004 @ 51
Posts: 145
15 yr Member
Suffolkchris Suffolkchris is offline
Member
 
Join Date: Jan 2007
Location: Dx Feb 2004 @ 51
Posts: 145
15 yr Member
Talking Music, Dopamine & Sex

Rick

I pasted this out of an article on the front page of The Daily Telegraph newspaper (this is a broad sheet not a tabloid) in the UK today. I am sure you probably know it anyway.

Someone listening to songs or tunes they enjoy experiences a release of dopamine, the hormone linked to reward and happiness. This association has led Prof Levitin, who worked with Stevie Wonder and the Grateful Dead, to claim to have discovered the "sex, drugs and rock 'n' roll" centre of the brain after collating research to be published this year.

The link to the full article:

http://www.telegraph.co.uk/news/main.../nmusic118.xml

If nothing else it's an entertaining read.

Chris
Suffolkchris is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Is It Really True That God.............. Justice Sanctuary for Spiritual Support 43 05-24-2007 09:49 AM
True Love Ceci On the Lighter Side 10 05-16-2007 09:28 AM
the ring » Theatre department rallies around much-loved instructor living with ALS BobbyB ALS News & Research 1 05-03-2007 03:26 PM
My wish didn't come true.... shelly2 Epilepsy 10 10-02-2006 06:02 AM


All times are GMT -5. The time now is 07:36 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.