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Old 11-29-2016, 09:52 PM #1
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Default Follow the DBS Road
I've been lurking this great forum for years, so I thought I was overdue contributing to it. Im documenting my steps through a DBS procedure at Vanderbilt Medical Center in a blog. I'll post updates to it as I proceed down the road if I'm able to. I have every intention of posting asap.

scottsuf.blogspot.com

Thanks,
Scott Suff
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Old 12-04-2016, 09:43 AM #2
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Blog update
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Old 12-04-2016, 10:00 AM #3
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scott,
your're a very good writer, wish it was on a different topic but thanks for sharing your DBS experience in such detail, it's of great value to me.
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Old 12-04-2016, 11:18 AM #4
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Scott,
I appreciate you putting yourself out there for us to follow and wish you great success with your personal DBS experience. Quick question I may have asked someone earlier, when you go to a Rock Steady session, are you On or Off medwise for maximum benefit?

Eric
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Old 12-04-2016, 11:33 PM #5
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Scott,
I appreciate you putting yourself out there for us to follow and wish you great success with your personal DBS experience. Quick question I may have asked someone earlier, when you go to a Rock Steady session, are you On or Off medwise for maximum benefit?

Eric
I think being on is best. You could fall or hyperextend your knee. There is a bunch of footwork. Also it depends what your symptoms are. My left leg will go weak first, and that takes me out of the game for the most part. From trial and error I know on a decent day I can take meds at 1 PM on my way to class, complete the class by 330 and will need another round of meds by 4 PM. Then the positive effects of the class will extend me into the evening somewhat.
Hope that helps.
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Old 02-08-2017, 11:02 AM #6
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I think being on is best. You could fall or hyperextend your knee. There is a bunch of footwork. Also it depends what your symptoms are. My left leg will go weak first, and that takes me out of the game for the most part. From trial and error I know on a decent day I can take meds at 1 PM on my way to class, complete the class by 330 and will need another round of meds by 4 PM. Then the positive effects of the class will extend me into the evening somewhat.
Hope that helps.
I've had DBS Mar 2016 and already my battery needs replacement! But I don't regret it. Of course, an infection is more serious! They say scratching your healing itchy wounds is a big infection risk. Thanks for your blog and thanks for your RSBoxing tip. I found a class 45 min from me and it is fun bring around other Parkies. May you be healed soon!
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Old 12-05-2016, 01:52 PM #7
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Blog update
Scottsuf.blogspot.com
Blog update
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Old 12-09-2016, 07:31 PM #8
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Blog update
Made it through Stage II. Team was pleased with results. If they were pleased I'm thinking I should be as well. Blog update in works.
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Old 12-11-2016, 03:43 PM #9
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Made it through Stage II. Team was pleased with results. If they were pleased I'm thinking I should be as well. Blog update in works.
A couple of pics while I work on the update, moving a little slower than before.
scottsuf.blogspot.com
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Old 12-11-2016, 07:21 PM #10
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Made it through Stage II. Team was pleased with results. If they were pleased I'm thinking I should be as well. Blog update in works.
Blog update
scottsuf.blogspot.com
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