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Old 01-29-2008, 04:57 PM #9
Virginia Therese Virginia Therese is offline
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Join Date: Mar 2007
Posts: 267
15 yr Member
Virginia Therese Virginia Therese is offline
Member
 
Join Date: Mar 2007
Posts: 267
15 yr Member
Default Thank You

Steve....any and all information is important/useful for me, Steve...thank you so much...

Tena...I understand completely what you said. I am always
very careful and use a great deal of tact whenever
I approach Doreen's neurologist with any ideas that may have (either of my own or from the many good
caring people here). Fortunately, he is a doctor
who has made it very clear to me that he
appreciates my input and, in fact, he has told me
that I am in the best position to know what's
happening with Doreen. I know so well that I must
not appear arrogant, but rather I must be perceived
as one who is genuinely interested in helping
Doreen...he seems to understand that. Thank you
so much for your response and your "caution"...
much appreciated...

Chasmo...very interesting and informative about your
friend...MDS telling him that CR works for 25%
only...that most need the "rush" of dopa to get
moving. Interestingly, that is what I perceived
during the two-day only trial on the CR...that
Doreen just didn't have the "get-up-and-go" that
she had had...AND, I noticed a very slight amount
of not being "quite with it" which really upset
me in that we went through such a horrendous time
with cognitive impairment while she was taking
Cogentin. Now, as for helping with sleep...very
thankfully, Doreen has NO problem sleeping and,
in fact, she seems to sleep too much, but I think
part of that is related to the fact that while
sleeping, she gets some respite from the PD...its
symptoms and its medications. I keep telling her
how fortunate she is that she's able to sleep so
well because it has been my observation ever
since we started this PD journey that so many
pwp's have such a terribly difficult time
sleeping...thank you, Chasmo

...and thanks to all of you who have responded to me and who have really helped me so much.

Therese
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