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Steve....any and all information is important/useful for me, Steve...thank you so much...
Tena...I understand completely what you said. I am always very careful and use a great deal of tact whenever I approach Doreen's neurologist with any ideas that may have (either of my own or from the many good caring people here). Fortunately, he is a doctor who has made it very clear to me that he appreciates my input and, in fact, he has told me that I am in the best position to know what's happening with Doreen. I know so well that I must not appear arrogant, but rather I must be perceived as one who is genuinely interested in helping Doreen...he seems to understand that. Thank you so much for your response and your "caution"... much appreciated... Chasmo...very interesting and informative about your friend...MDS telling him that CR works for 25% only...that most need the "rush" of dopa to get moving. Interestingly, that is what I perceived during the two-day only trial on the CR...that Doreen just didn't have the "get-up-and-go" that she had had...AND, I noticed a very slight amount of not being "quite with it" which really upset me in that we went through such a horrendous time with cognitive impairment while she was taking Cogentin. Now, as for helping with sleep...very thankfully, Doreen has NO problem sleeping and, in fact, she seems to sleep too much, but I think part of that is related to the fact that while sleeping, she gets some respite from the PD...its symptoms and its medications. I keep telling her how fortunate she is that she's able to sleep so well because it has been my observation ever since we started this PD journey that so many pwp's have such a terribly difficult time sleeping...thank you, Chasmo ...and thanks to all of you who have responded to me and who have really helped me so much. Therese |
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