dear Muireann,

I do not take dopavite -

the disease of Pakinson's being very individual as we are - it is basically what
my research and my personal experience has taught me -

the body can regenerate up to a point, the brain has neuroplasticity and I believe alot of this has to do with - faith / and hope -

and the body can stay at that given point of health for quite
a long time -

I have now been dxd with this Mr.PD -for 15 years

and it is stress that will bring me to the floor, or my menses -
so I believe if we are more stable in the asdrenal and hormonal areas
we will not have so much fluctuation, it seems to me after the hell
of being dxd'd with this -which was a shock to my thinking - and dismissing any permananence of life itself, dealing with the issues -
straight on - we are all born -we all die... that stess was gone,
I pray and have faith for this disease one day at a time, that makes it healthier on the nervous systems of the mind
we can only handle one thing at a time and so multitasking -gone
I do not drive -all that stress gone.
I eat an organic diet and drink bottled water -fiji water I like the most
I am no longer am married and I have no babies, my son is 22 years old.
so that stress is gone
in time -we must not hold onto any stress, or unforgiveness - a stress that many drag around with them -
my neurologist -thinks I do very well... my med's are the same, I usually do not try the latest pill because - I really do not want anymore pills ever,

I use certain food vitamins/ www.gardenoflife.com -
http://www.perfectweightamerica.com/...71&portalId=10
I do not sell these
but I do really feel they are well made.

and all the research shows me the cures are always on the horizan
and it is sad but true - I rallied for the GDNF, before the clinical trials,
and I still believe that is was a stolen cure.
and still knowing that there are narrow roads back to health,

I believe that the cure for me is called little miracles- is in this day,
every meal I eat -
every word I speak, my laughter, my family, loving -reading -sharing
to me these are my miracles
and I am not waiting on man to cure me,
when God has plans for my eternity..
take care
I am glad to hear from you - I like your new name too!

Muireann,
My sincerest apologies for taking off in another direction and not addressing the substance of your post. It was rude and thoughtless.

I am indeed interested in your experience with Dopavite. I do not personally have any experience with the product, but would gladly hear from others on the forum who have. I am far from having all of the answers regarding how best to treat PD.

Robert

Some relevant info in this thread:

http://neurotalk.psychcentral.com/sh...t=whey+protein

I've been a fence sitter with regard to Keith and Dopavite. I know many of you have gotten into conflabs with him...I have not. Yes he's an odd duck, and to be perfectly honest I'm not even sure he's real (Possibly a bot). Sorry about that Keith, if you are real. Whatever.... I have found him to be very helpful, intelligent and has a sharp wit. I think he may have a viable product, and from my interaction with him I'd say he's not in it for the money. So forget the snakeoil salesman angle. I have not tried his program because I have a problem with sugar addiction which I know has a huge impact on my PD and I need to get that under control because the product/approach he advocates doesn't have a clear shot at its target while I'm out stuffing candy bars in my mouth. Ilove you all dearly, but a few of you have attitudes and Keith just loves to set you up. For some reason he loves a good headbanging session, and we have some very bright people on this forum that he can get a good row going with. So now that I've said what I think, I will give dopavite a fair trial as soon as I can get my weakness for sweets under control. Change is tough, we cannot improve our lot in life without change (shades of Barak Obama). Maybe I'll die trying but I'm working on change and have to work even harder. Life is about challange -thats what makes us better, bigger and faster than we were yesterday. So to respond to the post, yes I have the product in my possession and I am going to try it -but not until I can give it a fair shot. Maybe this post will motivate me to do that. Two aside notes...the pills are the size of horse pills and you have to take 4(?) a day. Not my idea of a good time Sorry if I killed this thread...hope not. Response anyone?

... I am sure this will help clarify the issue

Thank you for your responses so far. Robert, I appreciate your apology.

Tena, I think you are right about stress having a huge impact on PD and on the body in general. The PD drugs themselves are an enormous source of stress on the body. The selegiline killed my appetite which meant that (a) I couldn’t supply my body with the nutrients it required, (b) one consequence among many, of this, was that I lost all body fat and was unable to maintain body temperature even indoors leaning against a radiator, hence rendering me housebound with pain from the cold (c) it utterly destroyed my ability to sleep, necessitating that I take a drug to aid sleep – Stilnoct – which basically anaesthetised me so that I woke up as exhausted as when I went to bed. So, one pharmaceutical intervention borrowed another, and so on. And regarding stress, it is not so much the stressor as the bodies way of handling it that brings about the stress response. Without the right fuel, and with the intrusion of anti-nutrients in the form of drugs, coupled with a lack of sleep, the body will handle stress very badly.

Mirapexin was another story, won’t even go there today.

Rosebud, I appreciate your desire to tackle the sugar issue, but why not tackle diet as a whole and make a fresh start by putting the good stuff in first and then getting the bad stuff (sugar, drugs, etc) out next? That worked for me. I made many, many dietary modifications. I know how hard it is. There is a huge industry based on dietary modification without much success in getting people to change their habits so it is quite an intractable issue. But it can be done, with enough will.

I have literally reconstructed myself, dietwise, this past four years. The Dopavite pills are actually not hard to swallow. They are smooth and the right shape and they are smaller than many of the Omega oil capsules taken by many of you. I only had one period when I could not manage this and it is possible to crush them and drink them in juice. Swallowing those four pills a day is a tiny price to pay for restored health.

On Keith being ‘real’ …. I can assure you he is real flesh and blood though I have not met him in person. Having been married to a designer of artificial neural networks for the past quarter century, I’ve learned to tell the difference between a computer program and a person on the net, and Keith passes the Turing test. I have a background in linguistics also, and I can spot his syntax, semantics, morphology and phonology anywhere on the net, so I know exactly when it is him speaking or not. We all write our signature with these.

And yes, he is a little on the eccentric side, but he has answered literally hundreds of questions that I have sent him over the past four years by email, from which I have learned much. That is the mark of a generous person. I have applied his knowledge and continue to do so. We’re still working on the pain problem. In this time, I went from a 6.5 stone, medicated up to my eyeballs, PWP, to an 8.5 stone unmedicated relatively healthy woman. I am cognitively back to normal now as a result of being drug-free and have returned to my own work in academic research. Who can say what the future holds for me? But I am very optimistic.

The constituents of Dopavite are as follows:

L-Tyrosine 2000mg

Niacin (B3 as Nicotinamide) 20 mg

Vit B6 (as HCI) 2mg

Folic Acid 400 ug


Iron (as Ferrous Sulphate) 20 mg

Zinc (as Zinc Sulphate) 20 mg

I hope this is a different Keith you are speaking of. I never even heard of Dopavite. I have used the name kk13 for several years, but have signed most of my posts as "Keith." And just recently added my photo.

Please confirm for me that you are referring to someone else. Otherwise, I'm afraid my stress level may go up, and you know what THAT does to us! I don't want to have to go back into hiding! (hahahaha).

Thanks for the clarification.
Caught in the crossfire,
Keith

lol -sorry for that...not you.

There is a fellow from the UK I think (?) who has his own theory. I had never heard of dopavite either until this thread.

paula

The Keith I refer to is (appears to be) from the UK and is quite a colorful feature of the neuro websites. I don't think its you, but I havn't actually met you in the flesh so I can't assume anything. However, for the time being I will deviate and assume your not. You don't appear to have any of hallmarks or charactaristics of the elusive KB. I'm suspicious of a good number of things I come across on the net...not the least of which are the characters one meets. I don't like to think of myself as paranoid, just cautious. It helps if you have met some of the others here because there is a certainty once you've connected with someone in the flesh. For example, if you've been involved with Pan or some other PD outreach/advocacy program and have actually met other members who post here.

Well I'm off to take another run at the mountain. Balanced eating, balanced life, balanced PD. Whatch out for the stress bug! Just say NO Wouldn't it be nice if life was just that simple?