Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 07-18-2008, 12:50 PM #11
Ibken Ibken is offline
Member
 
Join Date: Aug 2006
Posts: 243
15 yr Member
Ibken Ibken is offline
Member
 
Join Date: Aug 2006
Posts: 243
15 yr Member
Default bravo harley

Quote:
Originally Posted by harley View Post
i am thinkin... hhhhmmmm....i have a 5 bedroom home now that i have been told i would not have any problem getting in a divorce settlement.. let me wake up more and get back into my mode.

now that's what I meant by mushrooming! the more i think about this kind of thing, it seems like we start small: one person invites another to share space, then a third comes, etc. build (have) iit, they will come! ii can see these little pd pods leading the way to the truth........... ibby
Ibken is offline   Reply With QuoteReply With Quote

advertisement
Old 07-20-2008, 05:19 PM #12
little rock little rock is offline
Junior Member
 
Join Date: May 2008
Posts: 23
15 yr Member
little rock little rock is offline
Junior Member
 
Join Date: May 2008
Posts: 23
15 yr Member
Default a community of parkies

Great idea. I like the idea of small localized PD pods springing up across the country. One can always find wealthy benefactors that would bankroll the project. One sumer a number of years ago I lived for seven weeks in Hope House a home for those under going treatments for cancer. I was part of a experimental PD treatment program. The building and operations were funded through a women's charity organization; mostly they were the wives of the physicians of the community. It was a beautiful old victorian which had been divided into about 10-12 rooms. There were two kitchens and large common room. With three or four bathrooms we all had to share. We paid Ten dollars a day. Rather then a daily rate we could set it up as a co-op in which you purchase a share. I would be a god send for those parkies without a caregiver.
little rock is offline   Reply With QuoteReply With Quote
Old 07-20-2008, 08:49 PM #13
harley's Avatar
harley harley is offline
Member
 
Join Date: Aug 2006
Posts: 372
15 yr Member
harley harley is offline
Member
harley's Avatar
 
Join Date: Aug 2006
Posts: 372
15 yr Member
Default

ok, so lets pretend...

i get the house in divorce. it is a 2 story daylight basement with stairs. hard to navigate around. would definately need a make over. so.. do we call the tv show extrreme makeover? maybe HUD?

also, what about paying the mortgage? it is 1600 a month.. and i make 600 a month. charge rent? how much? and what about utilities? how about liability factor as a home owner? should some type of contract be drawn up? what if personalities conflict? how about a lease? renters insurance? if i made it into an adult living home, wouldnt i need some type of medical person on the premisis? what kind of zoning or permits? smoking? pets?

it is a very nice home on 1 1/4 acres very close to town. yet, as stated, it needs work. this is something i would love to do. yet, have questions.. and, there is the big IF i would be able to get the home
__________________
I have a post-encephalitic neurological disorder, but it does NOT have me!
harley is offline   Reply With QuoteReply With Quote
Old 07-20-2008, 09:08 PM #14
indigogo's Avatar
indigogo indigogo is offline
Senior Member
 
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
15 yr Member
indigogo indigogo is offline
Senior Member
indigogo's Avatar
 
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
15 yr Member
Default

Here's a link to the good work being done in the Seattle area by Push for PD
(Puget Sound Housing for Parkinson's Disease)
http://www.pushforpd.org/
__________________
Carey

“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
indigogo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gaykir (07-21-2008)
Old 07-21-2008, 06:25 AM #15
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default I posted this in another thread

...but it fits here even better-

Having been immersed in real estate development for a iong time I had a project in ming that might be worth thinking about.

All over the US there are what were once small mom and pop motels that were stranded when the Interstate system was built. Typically constructed in the late 40s they lie on what were then major highways, are single story and built on a slab, and range from 25 to 50 units with each its own entrance. They were often called "Motor Courts" or similar.

There are thousands of these across the country. Probably a hundred within anhour's drive of any city. Many are for sale as they are "outmoded" for a culture taught that "new" is "better". They would be ideal for the purpose.

<added>
The key is to be able to have enough residents to make it affordable without it being TOO big.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Old 07-21-2008, 10:16 AM #16
indigogo's Avatar
indigogo indigogo is offline
Senior Member
 
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
15 yr Member
indigogo indigogo is offline
Senior Member
indigogo's Avatar
 
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
15 yr Member
Default

Quote:
Originally Posted by reverett123 View Post
...but it fits here even better-

Having been immersed in real estate development for a iong time I had a project in ming that might be worth thinking about.

All over the US there are what were once small mom and pop motels that were stranded when the Interstate system was built. Typically constructed in the late 40s they lie on what were then major highways, are single story and built on a slab, and range from 25 to 50 units with each its own entrance. They were often called "Motor Courts" or similar.

There are thousands of these across the country. Probably a hundred within anhour's drive of any city. Many are for sale as they are "outmoded" for a culture taught that "new" is "better". They would be ideal for the purpose.

<added>
The key is to be able to have enough residents to make it affordable without it being TOO big.
Rick - about 4 or 5 years ago I spent quite a bit of time on the internet looking for exactly this kind of property for this purpose; there are lots of them. There are also retreat, ranch, camping and other vacation properties that have communal (eating, meeting) facilities and private sleeping and bathing quarters.

Location is the biggest hurdle (it would be hard for me to leave the West or West Coast, or live in a Red state - we all have our preferences), and it should be near good public transportation and a great MDS clinic. Maybe we could establish regional options!

I also spent time working with the Push for PD project I referenced in the above post (www.pushforpd.org) ; it evolved into care for those in need of more nursing care because they had to start somewhere; they are interested in expanding once established, but that would be too late for my situation now.
__________________
Carey

“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
indigogo is offline   Reply With QuoteReply With Quote
Old 07-21-2008, 10:49 AM #17
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default

Harley your thoughts are generous, but I have a few concerns from talking about this a few years ago with friends. To me, it seems better not to own the place yourself. Then you have one person who may feel more responsible for anything that happens to the house. That would be unfair to you, and to anyone who may damage the house [like falling through the glass window].

I don't think anyone should be responsible for owning the house. Then the occupants are not responsible to the owner in any way either. We kick in our incomes and hire people to maintain the property [rented?] and take care of our needs. A non-occupant preferably would own it, unless its someone who wants to also provide care.

It has to provide for a lot of needs - be handicapped accessible. Lots of grab bars, wide doorways, big bathrooms with adaptive showering and toileting needs. People who would be interested will already have experience with falling. A mini gym with sauna and indoor pool would be a nice perk.

Little rock, can you tell us more? Location is definitely a problem...people want to see their families. I'm in Florida, others in Washington - opposite sides of the country. I could be tempted to go to California, or live in PA, which has beautiful old farm houses just minutes outside of Pittsburgh. But then there is winter...hmmm.

Problems can be overcome but people have to compromise. A more central location could help or could just isolate us all...lol.

just my two cents,
paula
__________________
paula

"Time is not neutral for those who have pd or for those who will get it."
paula_w is offline   Reply With QuoteReply With Quote
Old 07-21-2008, 12:19 PM #18
little rock little rock is offline
Junior Member
 
Join Date: May 2008
Posts: 23
15 yr Member
little rock little rock is offline
Junior Member
 
Join Date: May 2008
Posts: 23
15 yr Member
Default ownerhip

Paula: Read my post. I think I've put forth some good ideas about
financing such an undertaking. little rock








Quote:
Originally Posted by paula_w View Post
Harley your thoughts are generous, but I have a few concerns from talking about this a few years ago with friends. To me, it seems better not to own the place yourself. Then you have one person who may feel more responsible for anything that happens to the house. That would be unfair to you, and to anyone who may damage the house [like falling through the glass window].

I don't think anyone should be responsible for owning the house. Then the occupants are not responsible to the owner in any way either. We kick in our incomes and hire people to maintain the property [rented?] and take care of our needs. A non-occupant preferably would own it, unless its someone who wants to also provide care.

It has to provide for a lot of needs - be handicapped accessible. Lots of grab bars, wide doorways, big bathrooms with adaptive showering and toileting needs. People who would be interested will already have experience with falling. A mini gym with sauna and indoor pool would be a nice perk.

Little rock, can you tell us more? Location is definitely a problem...people want to see their families. I'm in Florida, others in Washington - opposite sides of the country. I could be tempted to go to California, or live in PA, which has beautiful old farm houses just minutes outside of Pittsburgh. But then there is winter...hmmm.

Problems can be overcome but people have to compromise. A more central location could help or could just isolate us all...lol.

just my two cents,
paula
Readmy
little rock is offline   Reply With QuoteReply With Quote
Old 07-21-2008, 12:25 PM #19
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default just brainstorming

...and daydreaming

Suppose some national organization did this as a demo or test and allocated $25 million for it. Sounds like a lot of money but it is chickenfeed in many circles and they get most of it back anyway. Allocate $500,000 per state - the cost of one McMansion.

Find a site such as I described away from big cities' inflated pricing but still an easy drive to mid-size ones. This is not hard to do. I know of two myself and one is on the market and the other empty. In normal times it would be reasonable to expect to acquire and rehab forty units for the half million. On a slab with masonry walls, the roof can be replaced if needed. Use Habitat for Humanity as a model... ("Places for Parkies"? )

Knock out a wall or two to make the lobby into a dining hall - common area. End up with 30 units at $15,000 each? Sell them with financing and start another. If that price can be met that should leave enough in most budgets to provide a cook and bottle washer and a shuttle to Wal-Mart.



Quote:
Originally Posted by indigogo View Post
Rick - about 4 or 5 years ago I spent quite a bit of time on the internet looking for exactly this kind of property for this purpose; there are lots of them. There are also retreat, ranch, camping and other vacation properties that have communal (eating, meeting) facilities and private sleeping and bathing quarters.

Location is the biggest hurdle (it would be hard for me to leave the West or West Coast, or live in a Red state - we all have our preferences), and it should be near good public transportation and a great MDS clinic. Maybe we could establish regional options!

I also spent time working with the Push for PD project I referenced in the above post (www.pushforpd.org) ; it evolved into care for those in need of more nursing care because they had to start somewhere; they are interested in expanding once established, but that would be too late for my situation now.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Old 07-21-2008, 02:50 PM #20
Ibken Ibken is offline
Member
 
Join Date: Aug 2006
Posts: 243
15 yr Member
Ibken Ibken is offline
Member
 
Join Date: Aug 2006
Posts: 243
15 yr Member
Default EXciting!

I am so happy to read all of the interesting responses to the idea of PD specific housing. Carey, what a fabulous group in Seattle! And Rick, so glad you stepped up to the plate w/ your real estate expertise and ideas. I'm thinking that we need someone with knowledge about forming a non-profit to receive funds that surely will pour in. I don't know much about how this kind of undertaking could be structured - imagine there are numerous ways to explore. I just know it is needed, desireable and doable.

Even beyond our obvious individual ongoing needs for housing, support, companionship and care, my vision of these PD Pods extends to their becoming learning centers for various people working toward cure of this condition. The pods would be ready made clusters of white rats with a great deal of information to lend to those who are interested in helping us. We have so much knowledge to contribute. KNowledge that could lead us out of pd darkness toward the light and freedom of recovery.

But first things first - where are these motor courts, Rick? Photos? - just for fun and to spark the imagination...good thinking Buzzz, Little Rock and all.


ibby
Ibken is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Creating home, high-tech home for frail seniors BobbyB ALS News & Research 0 07-06-2008 10:15 AM
a group home and shock treatments..... bizi Bipolar Disorder 4 01-31-2008 12:14 AM
Sunday....home sweet home...*grin Alffe Weight Loss & Healthy Living 3 11-25-2007 09:33 PM
Home Sweet Home BJ Survivors of Suicide 12 09-28-2007 06:26 PM
Home Sweet Home!!! Judy2 Multiple Sclerosis 8 09-18-2006 05:45 AM


All times are GMT -5. The time now is 08:39 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.