Parkinson's Disease Tulip


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Old 11-17-2008, 10:29 AM #21
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Default the reason many of us changed groups was........

the moderators at the Braintalk were draconian in there use of banning people. They banned Laura (78Harley) and Chuck Sloan (ole CS) for no reason other than they questioned their actions. This was unacceptable to many of us.
IT is ashame really. Braintalk was a haven for many of us, but one must be circumspect in their appointments least ego's take over.

Charlie
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Old 11-17-2008, 10:53 AM #22
Jaye Jaye is offline
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Default Well...

Bob, I haven't said on line where I lived or what my job was, to avoid misunderstandings with potential readers, and to give myself an extra layer of privacy. AJ and Greg were really special to several of us, but few are the NeuroTalk members who hear from them any more (as far as I know), as they're both quite symptomatic and still as busy Doing Good as ever--I went to their wedding, too, and they were a vision of hope, for sure.

Cloudy had some other health challenges and turned out not to have PD, last I heard from him. Puff had her DBS in Toronto in about January 2000, and I went there to keep her company for a week of her recovery; Paula says Puff is doing fine as of a year or so ago. Giraffe has left this mortal coil , but I don't know the particulars. I'm sure we'll all think of more as we go along. See if you can figure out PMing next. That's Private Messaging, where we can go into more personal details. You start with the little box at the top right of your screen where it says Welcome to you by name. A couple of lines under that it says "Private Messaging"--click on that and look around for "Send Private Message." You will need your recipient's exact screen name. [I remembered that you can also click on someone's name at the left side of a post they've written, say paula_w above, and a menu will drop down. There you can choose "Send a private message to paula_w," and a form will pop up that makes it easy.] You'll figure it out, I'm sure, since you're doing great so far!

Jaye

Last edited by Jaye; 11-17-2008 at 05:29 PM. Reason: To add a note about PMs.
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Old 11-18-2008, 01:35 PM #23
Bob Coyne Bob Coyne is offline
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Jaye,

I had a posting to you almost completed and pressed one too many keys and lost the whole thing. Here goes again.

I have been doing a little research into my personal archives, hard copy printouts. One of the things that I have is a copy of each of the profiles that we all posted to the BrainTalk forum. I found yours, Jaye, dated 4/23/99. Among others, I have a copy of AJ, Anita, Beth, Bigorange, Brian Beckwith, Dana, **** Miller, Erica, Greg, Joy2, Lisa Starr, Lou Ann, Mari, Scott , Toadie, and many more. Then for one reason or another, I printed out some regular postings and here are the authors of a few of them... CS2, AnnT, Paula_W, Bella, googyuk, Heytaxi, michael7733, Chasmo, Cloudy, Nancy, and Jean UK. Just a few.

I am able to pin point when I started posting to MGH’s Parkinson’s forum. I not sure but I don’t think it was called BrainTalk at first. I don’t know how long it had been up and running when I got there. My first entry was in a chat room. My first entry was my last one to a chat room. There was one other person in the room, don’t remember the name, but I remember talking about the hurricane that was in Mobile Bay at the time. Hurricane Danny, June or July, 1997. Our conversation was cut short by my wife who was calling me to supper. That was the beginning. Shortly after that I found the Parkinson’s forum where there were about a dozen regulars. Forum life was a bit simpler back then and I think back to those days with very fond memories. It bothers me that I can’t remember every one in the first group. As the forum got bigger the system became less stable and there were down times to be reckoned with. Then came a big crash where we lost a chunk of the archives - a fact that frustrates me considerably. And from what I’m hearing, it has happened again, more than once. What ever happened to “Back up your files”?

Is there any limit to the size of a posting? I could go on and on.

Maybe I’d better quit. I’ll be back.

Bob C
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Old 11-18-2008, 03:47 PM #24
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Bob,

It started out as the MGH forum didn't it? Toadie please check in...lol. Things have definitely changed; but it's been a good, if complicating, progression. We have tangible objectives concerning the present. But I still love funny threads.

paula
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"Time is not neutral for those who have pd or for those who will get it."
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