Parkinson's Disease Tulip


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Old 02-11-2009, 06:23 PM #1
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A New Book


I am starting over. It is time to. The old book has closed as the contents no longer apply to my life any more. The pages are blurred and I cannot depict the meaning of the words. It is though God has blinded me from viewing and analyzing a hindsight that does not pertain to what lay ahead of me now. Today is fresh. There have been no impressions, nor words, nor shadows, nor tears that have been splotched upon the stark nakedness of my future. Each moment that passes by me will emboss it’s meaning in the page of my life it has been assigned to. The page will be filled when the clock strikes midnight. The wind of time will then turn it so that the story can continue.

Patience is not only necessary now, it is mandatory as I give each segment of myself to God. Through the recognition that He knows what I need and will provide it for me, I become a student of humility. As my eyes become fixed upon the light spreading across the horizon of each new morning, I find peace. When I step forward to take hold of His hand, my fist opens for His grasp. Days begin to flow front to back to front to back in steadfast principles that He ordains. It is hard for me to sacrifice my pride and let go of the helm. Yet as I give each day to Him.. entirely.. He shows me that day was gift worth remembering and I will reap from it, not weep because of it.

This is a new book.

The box is now open.
And I am blessed.
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I have a post-encephalitic neurological disorder, but it does NOT have me!
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Old 02-11-2009, 07:39 PM #2
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Default very eloquent harley

altho your life is on an intense level in its own way, many of your words sound like my thoughts, which tend to turn to God, the bible. it's good and I get a lot out of it.

intense can be a good thing...but it's still intense. The spirit is willing but the body is weak. I may lose my father soon, and we've got to have that talk.

in a word: intense and that is one of many very serious things we are all trying to do. i'm still thriving on it....someone make a note of that...pd for who knows how many more than 20 yrs..dxed in 92 after years of symptoms.

this forum has so much potential to explode with emotion and information....lol you have always expressed yourself artistically harley and this was another good one...it applies to many situations.

paula
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"Time is not neutral for those who have pd or for those who will get it."
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Old 02-11-2009, 08:18 PM #3
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Yes, very eloquent indeed. Harley, while some of us try to hide emotions behind the information wall, you and others have articulated your feelings so well. I second Paula saying "you have always expressed yourself artistically harley and this was another good one...it applies to many situations" and I might add in some ways I can relate to what you are saying. Starting a new life and not looking back has been good for me.
I wish you all the best in your new journey.

Girija


UOTE=paula_w;464331]altho your life is on an intense level in its own way, many of your words sound like my thoughts, which tend to turn to God, the bible. it's good and I get a lot out of it.

intense can be a good thing...but it's still intense. The spirit is willing but the body is weak. I may lose my father soon, and we've got to have that talk.

in a word: intense and that is one of many very serious things we are all trying to do. i'm still thriving on it....someone make a note of that...pd for who knows how many more than 20 yrs..dxed in 92 after years of symptoms.

this forum has so much potential to explode with emotion and information....lol paula[/QUOTE]

Last edited by girija; 02-11-2009 at 10:56 PM.
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Old 02-11-2009, 09:22 PM #4
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Default PD as metaphor and analogy

Is it just me or does PD lend itself to self-examination to an extent that is almost eerie? I fully agree with most of the sentiments expressed and I have to wonder what links the need to find a way to relax my clinched muscles to ceasing to strive and placing my trust in the Ultimate. So many of us have struggled to save the world in one way or another, only to come to realize that we can't even save ourselves alone. In a way, struggle is at the heart of PD while letting go is the cure.

I don't buy the idea that PD is entirely psycogenic, but I can't deny that psyche and body are entertwined.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 02-11-2009, 11:18 PM #5
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Quote:
Originally Posted by reverett123 View Post
Is it just me or does PD lend itself to self-examination to an extent that is almost eerie? I fully agree with most of the sentiments expressed and I have to wonder what links the need to find a way to relax my clinched muscles to ceasing to strive and placing my trust in the Ultimate. So many of us have struggled to save the world in one way or another, only to come to realize that we can't even save ourselves alone. In a way, struggle is at the heart of PD while letting go is the cure.

I don't buy the idea that PD is entirely psycogenic, but I can't deny that psyche and body are entertwined.
when you can't do anything else due to your symptoms or plain old fatigue, you have plenty of time for reflection!!!
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