Parkinson's Disease Tulip


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Old 05-04-2009, 11:24 AM #21
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Originally Posted by reverett123 View Post
This is a cautionary note. Seems every time I find a blamed miracle there's a bunch of fine print.

After reviewing the last nine days I have concluded that I overdid it with the Estim. I have been having trouble staying on. Looking back over my posts, at first things were great but then gradually deteriorated. As it is, the bad back may have saved me from getting into serious trouble.

will recover and try it again later, but those of you following this trail be aware.

-Rick
Rick Notwithstanding your current update I will continue to follow this thread. (see my signature line). Estim has provided me some back pain relief though for only a day or two but i would be willing to "fry" for longer periods if I thought I could have less pain Keep going with the one man clinic! Bob C
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Old 05-04-2009, 03:56 PM #22
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Default I believe that I sent that to Anne.

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I had not said so because I was not sure that I could come up with it, but about a year ago Anne Frobert sent me a manuscript by a PWP describing his own extensive experiments in this same area. It is an excellent manuscript of 23 pages.

A sample quote:
"The neuromodulator seems to help people with Parkinson’s disease in 2 fundamentally different manners. The first is by stimulating neurotransmitter production; the second by reactivating neural conduction throughout the Proprioception System. This section will define a procedure for reactivating the Proprioception System by stimulating nerves in the Asian Medicine meridians. There is an increasing body of evidence to show that Parkinson’s symptoms are often greatly reduced through use of this procedure. A patent has been approved to protect the rights to use this procedure."

and

"Care should be taken when increasing the intensity levels to vary the bias control slowly until there is a sensation of muscles cramping. When this occurs one should decrease the bias level until the muscles relax, then increase the bias level again. Repeat this process until the muscle no longer cramps. As the neural pathways begin to conduct there is often a sudden jerking and release of tension in the associated muscles.
When the intensity level is at a maximum tolerable (but not painful) level, the modulator should be left at that level for approximately 10 minutes for the body to adapt to the newly conducting nerves. After this period, one usually finds that the modulator will cause a low level stimulation at a much lower intensity level. This is proof that progress has been made. Often significant neurological improvement will be seen in a few hours after treatment is finished."



Unfortunately, the author did not sign his work and I have no idea who he is. If anyone knows anything more. please let me know.
Rick,
If this is thhe one whhere the guy focuses on one leg, uses the device he 'invented'' maybe 2x week and no longer takes pd meds.... I initially snail mailed him to make contact. He is willing to help pd'ers make one, I think.
I thought I sent it to you as well... Will hunt it up and send you the info.

Ibby
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Old 05-04-2009, 06:16 PM #23
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Default Different one, I think

This fellow is using a commercial model on either side of his spine.


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Rick,
If this is thhe one whhere the guy focuses on one leg, uses the device he 'invented'' maybe 2x week and no longer takes pd meds.... I initially snail mailed him to make contact. He is willing to help pd'ers make one, I think.
I thought I sent it to you as well... Will hunt it up and send you the info.

Ibby
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 05-04-2009, 07:03 PM #24
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Default Will, indeed, keep on....

...just a little more slowly. If my problems are, indeed, the result of my experiment, that is very encouraging. It means there really is something to it.

And BTW, I am much better today too.



Quote:
Originally Posted by bandido1 View Post
Rick Notwithstanding your current update I will continue to follow this thread. (see my signature line). Estim has provided me some back pain relief though for only a day or two but i would be willing to "fry" for longer periods if I thought I could have less pain Keep going with the one man clinic! Bob C
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 05-05-2009, 12:16 AM #25
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http://nexneuro.com/blog/?p=879

I found this reading more about Lee Bender and the vibrational chair. It is very fitting with this thread.


Quote:
A novel stimulation method, the first potential therapy to target the spinal cord instead of the brain, may offer an effective and less invasive approach for Parkinson’s disease treatment, according to pre-clinical data published in the journal Science by researchers at Duke University Medical Center.

Researchers developed a prosthetic device that applies electrical stimulation to the dorsal column in the spinal cord, which is a main sensory pathway carrying tactile information from the body to the brain.


...When the device was used without additional medication, Parkinsonian animals were 26 times more active. When stimulation was coupled with medication, only two L-DOPA doses were needed to produce movement compared to five doses when the medication was used by itself.


http://nexneuro.com/blog/?p=879



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Old 08-20-2009, 01:46 AM #26
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I'm late to the party. I found this video today about the Duke research:

http://www.youtube.com/watch?v=0b6OElzJlMg

He mentions somatosensory pathways. This is so fascinating to me. I think it's why Banding works, Rick. It stimulates the sensory pathway, and gives needed tactile feedback.

I've been dropping things a lot lately, usually with my left 'good side' hand, sometimes the right 'bad side'. I realized that I drop things that are light, not heavy. And when I'm on auto pilot, not focusing on the action of holding something in that hand, I'll drop it. If I concentrate and squeeze what I am holding, I'm okay.

When I hold something heavy in my left hand, I don't drop it. I hold many bottles at my work, and never dropped a full bottle, only empty ones. I think it's because the weight gives sensory feedback which I need. I have trouble doing that same action without the sensory feedback of the weight.

I drop my pill bottles often, pills often spilling all over, even when I'm careful and try to concentrate on my actions. Probably because they weigh so little. if I don't squeeze the bottles and caps hard, I drop them.

Reading about this new spinal stimulation that stimulates the tactile neurons, if I'm stating that correctly, it makes perfect sense. I had no clue they could target such neurons in the spinal cord with a simple device. It's very exciting work!

Rick, how is your experiment going? Sorry, I've been out of the loop.

~Zucchini
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Old 08-20-2009, 03:27 AM #27
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ZF-
As to my experiment, I have not returned to it, at least not yet. I over did it and, to quote Tweety Bird, "I scared me wittle self." The researchers had used short sessions of a minute or two but I didn't know that. Fifteen minutes is a little too long But I do plan to try again.

And I think that you are right on your interpretation. As Anne pointed out about the banding, motor action is a loop. You have to have the feedback or it is like a blind man driving a car.

If you have access to an EMS unit, start out with a single 30 second session and go slow from there.

Keep me posted.


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Originally Posted by ZucchiniFlower View Post
I'm late to the party. I found this video today about the Duke research:

http://www.youtube.com/watch?v=0b6OElzJlMg

He mentions somatosensory pathways. This is so fascinating to me. I think it's why Banding works, Rick. It stimulates the sensory pathway, and gives needed tactile feedback.

I've been dropping things a lot lately, usually with my left 'good side' hand, sometimes the right 'bad side'. I realized that I drop things that are light, not heavy. And when I'm on auto pilot, not focusing on the action of holding something in that hand, I'll drop it. If I concentrate and squeeze what I am holding, I'm okay.

When I hold something heavy in my left hand, I don't drop it. I hold many bottles at my work, and never dropped a full bottle, only empty ones. I think it's because the weight gives sensory feedback which I need. I have trouble doing that same action without the sensory feedback of the weight.

I drop my pill bottles often, pills often spilling all over, even when I'm careful and try to concentrate on my actions. Probably because they weigh so little. if I don't squeeze the bottles and caps hard, I drop them.

Reading about this new spinal stimulation that stimulates the tactile neurons, if I'm stating that correctly, it makes perfect sense. I had no clue they could target such neurons in the spinal cord with a simple device. It's very exciting work!

Rick, how is your experiment going? Sorry, I've been out of the loop.

~Zucchini
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 08-20-2009, 05:06 AM #28
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Rick, there is a closed loop that requires feedback, and an open loop system that does not require feedback. The open loop system is like our automatic pilot. When that isn't functioning properly, we need to use the closed loop system that requires feedback: auditory, visual, sensory cues.

I think the spinal cord stimulation is stimulating the closed loop pathways.

In many ways every day I see how my automatic pilot is not working. So I have to compensate by giving myself external cues, to use a closed loop pathway, that was not needed when my open loop pathway was working.

A lot of what goes on in our brains are compensations for what we have lost. They call that plasticity, how our brains can adjust to fulfill a changing need. Some of it happens without our knowledge. Some of it we direct when we use cues and tricks to keep us boppin' along.
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Old 09-16-2009, 07:36 PM #29
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Default Electronic stimulation with tens unit

Has there been any more experimenting with the stimulator on the spine? My dad has a tens unit , I wonder if it is the same thing that revereet was trying out? Any new discoveries or good results from your trials ? Aunt Bean
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Old 09-16-2009, 09:54 PM #30
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Default still putting it off

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Has there been any more experimenting with the stimulator on the spine? My dad has a tens unit , I wonder if it is the same thing that revereet was trying out? Any new discoveries or good results from your trials ? Aunt Bean
As I said earlier, I overdid it and, while I will return to it eventually, I am still a little averse to repeating the experience just yet.

Translation- I scared the wee-wee out of myself. Should have read the directions first. Fifteen minutes was way too long. Read the research and they were dealing in 30 second intervals.

But it did seem to work. Moderation in all things, etc.

So, start out at 30 seconds, skip a day and observe. Next day do two 30 sec sessions five minutes apart. Skip a day and observe. Keep repeating until you are up to five 30 sec sessions five minutes apart and see how things are going.

One thing that I did establish is that there is a good safety factor when you start low.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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