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05-04-2009, 11:24 AM | #21 | ||
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Be not by whom the first is tried nor the last to lay the old aside. . |
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05-04-2009, 03:56 PM | #22 | ||
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If this is thhe one whhere the guy focuses on one leg, uses the device he 'invented'' maybe 2x week and no longer takes pd meds.... I initially snail mailed him to make contact. He is willing to help pd'ers make one, I think. I thought I sent it to you as well... Will hunt it up and send you the info. Ibby |
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05-04-2009, 06:16 PM | #23 | |||
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In Remembrance
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This fellow is using a commercial model on either side of his spine.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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05-04-2009, 07:03 PM | #24 | |||
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In Remembrance
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...just a little more slowly. If my problems are, indeed, the result of my experiment, that is very encouraging. It means there really is something to it.
And BTW, I am much better today too. Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | bandido1 (05-05-2009) |
05-05-2009, 12:16 AM | #25 | |||
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http://nexneuro.com/blog/?p=879
I found this reading more about Lee Bender and the vibrational chair. It is very fitting with this thread. Quote:
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_________________________________________________ http://calipso-pd.org ...bringing a new wave of Parkinson’s support to central Illinois |
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"Thanks for this!" says: | bandido1 (05-05-2009) |
08-20-2009, 01:46 AM | #26 | |||
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I'm late to the party. I found this video today about the Duke research:
http://www.youtube.com/watch?v=0b6OElzJlMg He mentions somatosensory pathways. This is so fascinating to me. I think it's why Banding works, Rick. It stimulates the sensory pathway, and gives needed tactile feedback. I've been dropping things a lot lately, usually with my left 'good side' hand, sometimes the right 'bad side'. I realized that I drop things that are light, not heavy. And when I'm on auto pilot, not focusing on the action of holding something in that hand, I'll drop it. If I concentrate and squeeze what I am holding, I'm okay. When I hold something heavy in my left hand, I don't drop it. I hold many bottles at my work, and never dropped a full bottle, only empty ones. I think it's because the weight gives sensory feedback which I need. I have trouble doing that same action without the sensory feedback of the weight. I drop my pill bottles often, pills often spilling all over, even when I'm careful and try to concentrate on my actions. Probably because they weigh so little. if I don't squeeze the bottles and caps hard, I drop them. Reading about this new spinal stimulation that stimulates the tactile neurons, if I'm stating that correctly, it makes perfect sense. I had no clue they could target such neurons in the spinal cord with a simple device. It's very exciting work! Rick, how is your experiment going? Sorry, I've been out of the loop. ~Zucchini
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. There are only three colors, 10 digits, and seven notes; it's what we do with them that's important. ~John Rohn |
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08-20-2009, 03:27 AM | #27 | |||
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In Remembrance
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ZF-
As to my experiment, I have not returned to it, at least not yet. I over did it and, to quote Tweety Bird, "I scared me wittle self." The researchers had used short sessions of a minute or two but I didn't know that. Fifteen minutes is a little too long But I do plan to try again. And I think that you are right on your interpretation. As Anne pointed out about the banding, motor action is a loop. You have to have the feedback or it is like a blind man driving a car. If you have access to an EMS unit, start out with a single 30 second session and go slow from there. Keep me posted. Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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08-20-2009, 05:06 AM | #28 | |||
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Rick, there is a closed loop that requires feedback, and an open loop system that does not require feedback. The open loop system is like our automatic pilot. When that isn't functioning properly, we need to use the closed loop system that requires feedback: auditory, visual, sensory cues.
I think the spinal cord stimulation is stimulating the closed loop pathways. In many ways every day I see how my automatic pilot is not working. So I have to compensate by giving myself external cues, to use a closed loop pathway, that was not needed when my open loop pathway was working. A lot of what goes on in our brains are compensations for what we have lost. They call that plasticity, how our brains can adjust to fulfill a changing need. Some of it happens without our knowledge. Some of it we direct when we use cues and tricks to keep us boppin' along.
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. There are only three colors, 10 digits, and seven notes; it's what we do with them that's important. ~John Rohn |
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09-16-2009, 07:36 PM | #29 | |||
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Has there been any more experimenting with the stimulator on the spine? My dad has a tens unit , I wonder if it is the same thing that revereet was trying out? Any new discoveries or good results from your trials ? Aunt Bean
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09-16-2009, 09:54 PM | #30 | |||
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In Remembrance
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Quote:
Translation- I scared the wee-wee out of myself. Should have read the directions first. Fifteen minutes was way too long. Read the research and they were dealing in 30 second intervals. But it did seem to work. Moderation in all things, etc. So, start out at 30 seconds, skip a day and observe. Next day do two 30 sec sessions five minutes apart. Skip a day and observe. Keep repeating until you are up to five 30 sec sessions five minutes apart and see how things are going. One thing that I did establish is that there is a good safety factor when you start low.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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