Parkinson's Disease Tulip


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Old 09-17-2009, 08:31 AM #31
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Default an observation about banding

i bought a posture stability brace at a medical supply store. it wraps around your abdomen and lower back , but has a supported extension covering the whole back and shoulder straps. It can all be closed and adjusted all around the abdomen.

I live in the brace unless I am eating and don't wear it when I sleep or just need a break. It really helps and my husband says I look straightened out.

But the exciting part, is when I first wake up, I take meds and put this brace on immediately and it actually reduces and has even eliminated the 40 min. of dystonia that I have to suffer every morning.

It was more that $80, I wonder if it could be prescribed and paid for by medicare. It's too late for that for me but I'm finding it worth every penny for my entire back and painful shoulders.


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Old 10-03-2009, 03:52 AM #32
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Originally Posted by reverett123 View Post
Yesterday afternoon I messed up my experiment with an MSG hit thanks to a local restaurant. Was off for a couple of hours although even that was less than usual. Never really got it back solid and so went to bed.

Slept very well, though, and was up about 6:30 and was on within about thirty minutes, which is fast for me. It has been two hours now and doing well.

Except for my lower back which is objecting to my juggling large televisions around yesterday. I am cautious of the effect of doing a session this morning and so will be a good boy as long as I can stand it. Still very encouraged. Will post as appropriate.
How are your experiments coming along.It is October now. My dad was given a tens machine at the VA for his neck & shoulder pain....would that be anything like you are trying? ( Fellow white rat ) Aunt Bean
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Old 10-03-2009, 03:55 AM #33
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How is the experiment coming along..it is October now. My dad was given a "TENS" machine to try at the VA for neck & shoulder pain. Is this anything like what you are using?? Aunt Bean
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Old 10-03-2009, 05:50 AM #34
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How is the experiment coming along..it is October now. My dad was given a "TENS" machine to try at the VA for neck & shoulder pain. Is this anything like what you are using?? Aunt Bean
Yes, what I have is a TENS unit with a consumer interface (i.e. pre-programmed) but I still haven't done much more with it. I'm working on the ALA/ALC at present with encouraging results and will get back to this one eventually.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 10-06-2009, 03:50 AM #35
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Default Electro-stimulation of the spine seems to work

Thanks very much for the information. I've been experimenting for several days with erratic results. Sessions with the stimulator lasted only 5 minutes.

Again, thanks very much

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Old 10-07-2009, 08:38 AM #36
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Default could this realte to the spine stimuation experiments?

http://neurotalk.psychcentral.com/thread104624.html
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Old 10-09-2009, 10:26 PM #37
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Default Eclectrical stimulation of dorsal cord semms to work

My experiences agree with yours. Electrical stimulation of the dorsal cord with the muscle stimulator works spectacularly well once. Attempts at repeating the experience have failed.

Now I'm experimenting with randomly varying pulses. Average intensity is 20 mA, duration 1 minute

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Old 06-03-2011, 11:25 AM #38
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Default Dorsal Cord Stimulator

I had a question today from a patient about getting a dorsal cord stimulator (implantable device to help with back pain) and saw this older thread. Seems like different stuff (machines versus surgically-implanted device)...but wondering all the same if anyone has ever come across this. My contact mentioned they'd "seen stuff on line that it was helpful for PD patients"...

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Old 06-03-2011, 12:21 PM #39
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Default an interesting bit of info

Quote:
Originally Posted by Debi Brooks View Post
I had a question today from a patient about getting a dorsal cord stimulator (implantable device to help with back pain) and saw this older thread. Seems like different stuff (machines versus surgically-implanted device)...but wondering all the same if anyone has ever come across this. My contact mentioned they'd "seen stuff on line that it was helpful for PD patients"...

Debi

way back in the early 1900s edgar cayce recommended spine stimulation with his invention called a wet cell battery because he viewed parkinsonism is an imbalance in circulation annd communication between the sympathetic and parasympathetic systems..he also recommended daily massage. you can google cayces wet cell battery. if i remember seems he incorporated silver and gold solutions too.

there is a lot of NIH studies done by dr sandyk on emf pulsing and pd. i would love to see the mjff consider this type of therapy ...i am confused by michaels statement that you are in business to go out of business yet it appears that profit has to be the venue to achieve this goal isn't that contradictory?..are you integrating any complimentary medicine in your
work?

btw kudos to mjf for achieving some semblance of homeostasis. maybe its more than the med cocktail. c'mon michael...is it some wonderful immune modulator?
as with all illness there exists an x factor in the concept of grace and healing -i'm not so sure you can bottle that!
thanks
md
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Last edited by moondaughter; 06-03-2011 at 01:17 PM.
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Old 06-03-2011, 01:38 PM #40
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Default My three cents

Quote:
Originally Posted by moondaughter View Post
way back in the early 1900s edgar cayce recommended spine stimulation with his invention called a wet cell battery because he viewed parkinsonism is an imbalance in circulation annd communication between the sympathetic and parasympathetic systems..he also recommended daily massage. you can google cayces wet cell battery. if i remember seems he incorporated silver and gold solutions too.

there is a lot of NIH studies done by dr sandyk on emf pulsing and pd. i would love to see the mjff consider this type of therapy ...i am confused by michaels statement that you are in business to go out of business yet it appears that profit has to be the venue to achieve this goal isn't that contradictory?..are you integrating any complimentary medicine in your
work?

btw kudos to mjf for achieving some semblance of homeostasis. maybe its more than the med cocktail. c'mon michael...is it some wonderful immune modulator?
as with all illness there exists an x factor in the concept of grace and healing -i'm not so sure you can bottle that!
thanks
md
OK... I have to jump in here. I own a very professional RIFE (google Royal Rife) setup and have been practicing various treatments using variable frequencies and pulsing through held metal handles, pads and bulbs filled with rare gasses. Additionally I have foot baths, the Cayce equipment and whole body enhancer technology. I've worked with this for years and know quite a bit about it. My equipment cost many, many thousands of dollars. I've also had the pleasure of speaking with Dr. Sandyk on several occasions.
I can tell you that "vibrational therapy" in the hands of people who know what they are doing can be quite helpful for many conditions. Parkinson's is NOT one of them. Sorry to be a huge wet blanket here. I've been able to really make a difference using the equipment on other people with other ailments and that is a blessing. I really, really wish it worked on PD but, it doesn't.
I also saw a mention of the vibrational chair in this thread. Way over priced and doesn't work!!!!
Now, just to clarify, vibrational therapy can make you generally feel better. But, we're talking about spending thousands of dollars to feel a little better once in a while. NOT worth it.
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