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12-18-2006, 05:46 AM | #1 | ||
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Junior Member "Ling"
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I was diagnosed in 2001 and PD first affected the right side of my body and now it started to spread to the left side. And I recently began to experience painful left foot cramp after I walked for a short distance. But strangely enough I did not have such pain on my right foot. My neurologist said it is a kind of "task specific dystonia" as my symptom alleviated after medication. Do anyone of you have such experience? I used to walk a lot without taking medication and I wonder if there is any other therapy (other than taking medication) that could help. Appreciate your advices.
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12-18-2006, 08:45 AM | #2 | |||
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Senior Member
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Ling,
I experience something similar -- I get terrible foot pains during my OFFs. I had originally though they were cramps, but no muscles were actually cramping. (strange but true) I later figured out I have Neuropathic Pain - burning-shooting-excruciating pain in the nerve endings of my foot. I can tell when I need to increase my pd meds - the pain increases in frequency. I try to take as low doses as possible, but when I can't stand the pain any more, I know it's time to add some. good luck
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Jean B This isn't the life I wished for, but it is the life I have. So I'm doing my best. |
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12-18-2006, 12:51 PM | #3 | |||
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Member
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Yep....me too. PD in right side but my left foot does its best to curl up and touch my knee.As we speak I am dealing with terrific pain ..worse at night but now creeping in during daytime.
My fingers too,are very stiff and painful as I type...in fact I am typing almost flat fingered and my left hand is curling quite badly. SOLUTIONS; Not a fat lot of use to you as I am not on meds for this dystonia yet...but won`t be long as it is soooooooooooo painful. Meanwhile...when my husband is home,it only takes a couple of minutes of warm hands and a foot rub to ease it. Have you tried one of those little roller type foot massages or a foot spa. The latter takes a bit more effort to prepare so is perhaps best kept for a pre bedtime wind me down. The roller can be easily dropped to the floor and BINGO!!! I have found the condition responds to gentle manipulation. As with ordinary cramp...if it should strike mid shopping mall when neither of the above are at hand...find a cool floor...off with the shoes and press down toes first,heel off the floor for a few seconds.You might look like you are practising for Swan lake but what the heck...beats the Ministry of Funny Walks any day... Good luck.x |
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12-18-2006, 02:51 PM | #4 | ||
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Member
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if you can make sense of this lengthy article, it will help explain the cramping/dystonia or whatever you want to call it.
the way i see it, l-dopa overrides/stimulates the weakened muscles in the leg/hip and until it wears off, i can function somewhat normally. then when it's spent, things (bones, muscles) twist, painfully, back to their dysfunctional, painful positions.....until the next boost ..... does anybody else get this? http://www.biomech.com/db_area/archi...3-29.bio-.html |
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12-18-2006, 09:08 PM | #5 | |||
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Member
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Yep, I do in my right foot. I pull my toes (top of foot toward me (upward) and that helps it subside. Good suggestions, Steffi. I like the foot massage.
Good luck, Ling. |
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12-18-2006, 09:53 PM | #6 | ||
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Junior Member "Ling"
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Thanks to all of your advices and sharing! Steffi, I will try the foot massages to see if it can work out...once again, Thanks for all
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12-18-2006, 10:06 PM | #7 | |||
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Senior Member
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All, I love them - my husband will massage my foot and it feels so good.
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