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Old 03-02-2014, 09:04 PM #191
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943 days sober.

Feeling great! Been in Florida for a week on business and I have to walk a LOT! 50+ grocery stores I have had to visit plus all the walking in malls and strip malls too.

Sobriety. Vitamins. Accountability. Keeping mind occupied.
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Old 03-03-2014, 09:59 AM #192
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I'm sorry the diagnosis is rheumatic heart fever not disease
check out celiac disease....good luck.
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Old 03-03-2014, 10:09 PM #193
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Very sorry to hear, Beatle. As like you, I too have numbness in the hands and the feet that have yet to be show any signs of warmth or getting better anytime soon. It's very frustrating, but I haven't given hope.

I haven't had a drink for 14 months, and I've taken a lot of the supplements everyone else has been taking (though on and off, as I think it has attribute to some weight loss, in which I'm already too skinny for)

CoQ10 seems to be the only missing ingredient in my supplement intake, as I get rashy when taking it. I may have an allergic reaction to it.

The body is amazing and I do believe there will be a way to turn this around.



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I am not sure if it is AL related but I think it is. I drank heavily (nightly binge) for 10 years, developed HBP first and then a couple of years later, all of the classic PN symptoms came on in my fingers and toes, rather quickly and have increased over time to hands and feet, legs and arms and now I also get tingling in my spine, groin and even facial numbness and there are days I cannot walk (like yesterday).

I've been to three neuros and have had a lot of testing including gallons of blood work, lumbar puncture, EEG, three EMG's, and two MRI's (brain and cervical spine), optic nerve checked too. They started by looking for MS but my diagnosis is currently IPN. I am 44, male, 6', 155lbs, vegan diet for the past 15 years and I workout every day. I do everything right with regards to health, except for that 10 years of the binge drinking. In retrospect, I believe I could have suffered a vitamin deficiency (thiamine or B12) due to a combo of the the drinking, vegan diet and not properly supplementing but as my neuro says, "we may never know the cause".
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Old 03-04-2014, 07:49 AM #194
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I'm sorry the diagnosis is rheumatic heart fever not disease
I think it is a good idea to see your PCP. Take his or her advice about a neurologist. Best for you to give up any cigs and not drink. Both cause so many physical issues. Don't feel embarrassed, just go and be truthful. Assuming is more stressful than the truth. There are a lot of very educated people here on this site that will support you. I am on the holistic side, on no meds, but there is a place for our docs. I am concerned.
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Old 03-04-2014, 12:37 PM #195
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I have no 'stabbing pains' at all and haven't for the past month. The numbness and other abnormal feelings in my feet and lower legs are about the same as a month ago--a bother but fortunately don't interfere much with daily life. I don't think of booze much and generally feel great about that.

Icehouse--Congrats on your continued successes!! Sounds like you are getting a work out in your job.

Kid Wonder--Are you sure your PN is alcohol related? Dr. Wise Young (you can google him) has the view that if neuropathy doesn't reverse, at least to some extent, then it isn't alcohol related. You may just need more time. The studies that I have seen (and I will find a link to them again) show the rather impressive results of people who have been sober for 2-3 years.

Also, I don't know that everyone shares Dr. Wise's views, but he is an expert and was Christopher Reeves neurosurgeon and came to prominence consulting him when he was disabled.
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Old 03-26-2014, 07:38 PM #196
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Newstown, it definitely is alcohol related. I was binge drinking heavily on weekends.

I do see improvement, I couldn't pick up a quarter a year ago, I've got a lot of the feeling back in my hands and foot, but the hands and feet being constantly cold is my main problem. I'm starting to think my PN is getting better, but something else is the culprit along with PN...


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I have no 'stabbing pains' at all and haven't for the past month. The numbness and other abnormal feelings in my feet and lower legs are about the same as a month ago--a bother but fortunately don't interfere much with daily life. I don't think of booze much and generally feel great about that.

Icehouse--Congrats on your continued successes!! Sounds like you are getting a work out in your job.

Kid Wonder--Are you sure your PN is alcohol related? Dr. Wise Young (you can google him) has the view that if neuropathy doesn't reverse, at least to some extent, then it isn't alcohol related. You may just need more time. The studies that I have seen (and I will find a link to them again) show the rather impressive results of people who have been sober for 2-3 years.

Also, I don't know that everyone shares Dr. Wise's views, but he is an expert and was Christopher Reeves neurosurgeon and came to prominence consulting him when he was disabled.
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Old 04-02-2014, 07:50 AM #197
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974 days sober.

Feeling great and just got back from a 5 day trip to Asheville, NC including a long hike through the Blue Ridge Mountains. Waterfalls, trails, etc....

Starting running this week too, on a treadmill to start.

No pain, just sore from all the exercise!

No looking back now!!!
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Old 04-02-2014, 08:09 AM #198
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974 days sober.

Feeling great and just got back from a 5 day trip to Asheville, NC including a long hike through the Blue Ridge Mountains. Waterfalls, trails, etc....

Starting running this week too, on a treadmill to start.

No pain, just sore from all the exercise!

No looking back now!!!
It is inspiring to read your posts! You have come a long long way!
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Old 04-02-2014, 10:53 AM #199
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It is inspiring to read your posts! You have come a long long way!
Thanks mrsD! I am quite proud of myself
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Old 04-02-2014, 02:57 PM #200
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Nice one I. !
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