When The Pain Is Controlling Your Life?

Kitt · 12-23-2009, 03:02 PM

Quote:

Originally Posted by nide44

Just trying to not scare the willies out of him.
Until he has a proper Dx, let's not have him hiding under his 'blankie'
in fear of the worst- of an untreatable progressive condition.

That is quite true Bob. CMT is a progressive and untreatable inherited disease at this time. However, symptoms of CMT vary greatly even within the same family. Symptoms can become evident when you are young, old, or in-between. Or symptoms may never be that evident. No one, not even a doctor, can predict how a person with CMT will end up. CMTers are all different and there are many types of CMT.

I am not trying to scare him at all. This was never my intention. Just giving some of the facts. Even if he would end up with CMT, that does not mean that he would have horrible pain or what other symptoms he might have. Some people, even with the same type of CMT, do have horrible pain, some not so much, and others have nearly no pain.

Again, I am not trying to scare him. I believe CMT was brought up in one of mrs'd's posts. It would just be in his interest to pursue all avenues and hopefully find out exactly what he does have if that is possible.

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