hi Heidi

Yes, it does sound like your neuropathy has progressed - I had pain initially, but now my feet are numb (and actually pretty numb up to my knees, especially on the left side). I have sensori-motor axonal neuropathy, so I have motor involvement as well. It is part of my lupus.

I can totally identify with that bunched up sock feeling, that's how it started for me, I thought that my socks were getting scrunched up under my toes.

Do you have a neurologist? If so, it maybe it's time to schedule an appointment. Personally I prefer numbness to pain anyday.

hth

raglet

Yep, I know exactly what you're talking about, Heidi. In my case, it's only with my left foot and I had that sensation years before the pain in my toes, so it wasn't about getting worse for me. I've been told that Morton's Neuroma can also cause this sensation, but a doctor can easily diagnose that by squeezing the ball of your foot in a certain place--it will cause intense pain if that's the problem.

I guess not much of that is helpful to you except to know that it's a common feeling for people with PN.

My foot pain is more aching bone like pain (autoimmune neuropathy, not diabetic)....and I feel like I am walking on an air mattress. Also if I rest my foot on the base of the desk chair, when I get up, that sensation is in my feet for several minutes. I feel like I am walking with the chair base stuck to the bottom of my foot.

Sorry to hear you are having increased symptoms.

I've been getting that feeling too.... It's more recent for me. I've had the same type of Neuropathy as Cycleops has... and I have stopped many times to see if my socks are bunched up. It's frustrating!

And I get cold spots on my legs sometimes too, like there is a wet spot on my pants or something... on the side of my leg, or my knee... too weird!

I also get that very tight kneesock feeling....with a very, very cold sock! Feels like ice. I have a hunch that this is vasculitic....the cold thing, that is.

Ah, the joys of neuropathy. To think it is just all messed up electrons and protons......