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-   -   Vitamin D and Peripheral Neuropathy: (https://www.neurotalk.org/peripheral-neuropathy/115722-vitamin-peripheral-neuropathy.html)

cher 03-08-2010 01:54 AM

DarlinDeb...

My ferritin level was only 13!! Are you saying I'm anemic?
I see my lab says 12-156 is normal.
I know that may not mean anything.
I am trying to get to the root of my pain.
Would this level affect that at all?
I'm def. D deficient and working on that.

Quote:

Originally Posted by darlindeb25 (Post 628625)
My Vit D was 26, and I was told it was well within normal ranges. I have it up to 45 now, but only because I decided to fix it.



Always request a copy of the results, and look them over yourself. My ferritin was only 22, and I was told everything is fine, 20 is anemia. I also have that up to 40 now. It had been at 22 for over a year when I mentioned the level, that's when I was told maybe ferritin IV's were needed.

You have to watch out for yourself. Many people have been told Vit B12 at 200 is fine too, and we all know that isn't true. Research, research, research.


cher 03-08-2010 01:57 AM

Vit. D Deficiency+Mayo link
 
Mayo clinic link/video...

http://newsblog.mayoclinic.org/2009/...c-pain-relief/

interestingly, this guy says that patients with low D levels take twice as much pain meds...

Also told drs that if patients have unexplained pain, to check their D levels..

I hope that news gets around to more doctors and they do the check!

mrsD 04-08-2010 10:42 AM

Thanks to pabb for finding this link....

Why the RX D2 50,000 IU doesn't seem to work:

http://www.thevitamindcure.com/blog/?tag=vitamin-d2

pabb 04-11-2010 10:34 AM

Quote:

Originally Posted by mrsD (Post 642031)
Thanks to pabb for finding this link....

Why the RX D2 50,000 IU doesn't seem to work:

http://www.thevitamindcure.com/blog/?tag=vitamin-d2

most welcome, i'm sure.....lol
i ran across this when looking for testing results....had a patient with D3 of 6, and D2 in the fifties.....want something in "black and white" to present to the doc to get D3 ordered, d/t nonconversion in the body......

cher 04-11-2010 05:31 PM

found cool D site
 
Hi, I came across this website today. This man is retired and really interested in vitamin D research. He has some Vit. D book reviews and other info. He's a retired engineer. He has some other pretty cool health research he's done, too. Saw it at his homepage

author of site below's webpage... http://www.henrylahore.com/
His Vitamin D link...
http://www.vitamindwiki.com/tiki-index.php

This is a 'newer' site and he appears to be currently continuing to research this subject.

glenntaj 04-12-2010 06:49 AM

I should add--
 
--that the largest Vitamin D database I've seen has been compiled by Ted Hutchinson, who had a lot of it cross-referenced through Braintalk (there are some posts on Neurotalk by him as well).

He also had a blog going for a while at:

http://vitamind3.blogspot.com/

cyclelops 04-12-2010 09:03 AM

Thanks, I had my D level drawn last week. I hope they did the right test. I don't know which one they did, nor the results. I imagine D is low, with low K and low Ca. Again, thanks for the info.

melon 04-20-2010 06:26 AM

Quote:

Originally Posted by darlindeb25 (Post 628625)
My Vit D was 26, and I was told it was well within normal ranges. I have it up to 45 now, but only because I decided to fix it.



Always request a copy of the results, and look them over yourself. My ferritin was only 22, and I was told everything is fine, 20 is anemia. I also have that up to 40 now. It had been at 22 for over a year when I mentioned the level, that's when I was told maybe ferritin IV's were needed.

You have to watch out for yourself. Many people have been told Vit B12 at 200 is fine too, and we all know that isn't true. Research, research, research.

I came across the following link regarding vitamin D testing

It mentions 2 tests specifically there ( which I've never had in my life from what I can see form my reports ) are there any others we should be aware of that arent mentioned here ?

And are these the same as the tests everyone else had here ?

cheers

tepol

mrsD 04-20-2010 09:33 AM

Yes, there are two tests.

The Marshall Protocol is still questionable and only followed closely by people with sarcoidosis. At this time Sarcoid is the only disease, that is watched by medical doctors doing Vit D supplements. The Marshall Protocol remains unproven.

Your testing should be for the 25-OH D which is the active form, D3.

I prefer this website for information:
http://www.grassrootshealth.net/

It is slightly more conservative than some of the others out there, and I retain a bit of that conservative attitude because of my own training.

MzBeanz 07-31-2011 12:24 PM

Good day! I have been dealing with PN for over 10 yrs. I found a doctor that was willing to help me but then her retired and his partner REFUSES to discuss supplementation with me!

When I asked him to re-test me he actually put up his hand and *shushed* me! I was informed that because I lived in US that I got what I needed form my diet! I know this is NOT true.

I had my vitamin d level when I had it tested was 18! I have been working with a nutritionist who says that this level for a woman should be at least 40 if not more. my new dr will not refill my prescription for Vit D so my question is what form, D2 or D3 and how much? Thanks!


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