mrsD told me d3. But I think you need to find a NEW doctor. Shushing is just not acceptable behavior. :eek: Most health care professionals are acutely aware of the importance of vit d.

I really have to say this, kick him to the curb.

Vitamin D,PN & B12?
 

First I want to thank Mrs.D and lizziebeth for suggesting that I get tested for Vitamin D.My test showed I was a 10,and also my B12 was at 372.I was diagnosed 6 yrs ago with Pernicious Anemia,my first test came in at 170 and I get a B12 shot 1x a month and also I started with the sublingual B12.I don't know how long my D was down,but I'vebeen having headaches 24/7 for at least a month.Have had the restless /jumpy legs, and itchy hands for years.I have trouble sleeping for more than 4-5 hrs,& my vision was getting bad.
My question is, is there any connection between D and B12 deficiencies?I'm taking 50,000 units of D 1xwk for 6 wks and then will be rechecked.abby2

PS: I never would have thought to ask to be tested for Vit D.:hug::hug:

Dahlek, Forteo
 

I did the Forteo injections for 2 years after multiple pelvic and sacral fractures. Was actually taking Fosamax the whole time I had the breaks. Worthless as far as I am concerned but Forteo brought my osteoporosis testing back to normal. While I dreaded the injections, I do them again rather than have those breaks again.

Billye

Deficient in B-12 and Vitamin D
 

Interesting discussion....

in 2005, I was dx'd with severe vit b-12 deficiency; about two years later, vitamin D deficiency was add; I have PN as the result of b-12 deficiency. I take injections once a week and have for six years. My b-12 levels now huddle around 900-1200, depending on when blood tests are done relative to my injections. I take Vitamin D supplents daily. But only 1000 i.u. a day - is that enough??

I've tried Neurotin 600 mg 3 x a day for a month and no help with PN burning. I've just begun Lyrica 50mg 3x a day...about one week in...still have burning, but not as severe.

Wondering if I should increase Vit D intake? Any thoughts?

Jon

I think--
 

--you can safely increase your daily Vitamin D intake to 2000-3000 IU each day without problems; Vitamin D over-dosage does not occur at those levels (and would likely not be a concern unless you were taken tens of thousands of IU each day).

And--make sure you get the D3 form, which is far more bioavailable.

It apears, from testing, that I am Vit D deficient. But what symptoms would that give. Everything that I read about refers to pain, and/or constant tiredness. I have neither of those.

I do have Double vision, and variable, fatigable weakness. I.e. I can be feeling fine, walk 200 metres and feel exhausted, rest 30 minutes and repeat.

Some people have pain... we had one fellow with upper back pain.
He recovered with normalizing the D3.

You can have numbness or tingling on the face or around the mouth too, with low D.

There can be muscle issues, since calcium is needed for muscle contraction, and magnesium for relaxation. Both of these minerals are enhanced absorption with Vit D.

Low D. is thought to impair the immune system, so more frequent infections may occur when low. There are suggestions too about proper D levels discouraging cancer development (definite proof is still lacking on this one).

If you tested low, you should take it to normalize your levels.

Hi mrsD!

Has the recommended daily dose of Vitamin D changed since Page 1 of this thread was written? I gather that the acceptable range is 600 to 2,000 IU.

Thanks!

It depends on who you listen to.

That government commission was ultra conservative and many researchers disagreed with it.

The Vitamin D council is a very good resource.

http://www.vitamindcouncil.org/

Without testing, I believe 2000IU D3 a day was the upper limit suggested. Some places say 4000IU.

With testing use 1000IU Vit D3 daily for every 10 points needed to raise. A value of 50 is a good starting point. People with MS are often kept by their doctors at a 100 level.

I don't use supplements in summer when I get alot of sun.

One thing you have to watch out for with vitamin D supplements is if you take the heart medications Diltiazem or Verapamil. There is something about the calcium absorbtion that reduces the effectiveness of these meds.

I take Diltiazem and become D deficient slowly over the year due to lack of sun (that's me, nothing to do with our weather:)).Under my GP I take D supplement for 3 months at the most while I level out - having interim blood tests for calcium levels. Then I have to stop for the remainder of the year.

Dave.