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Old 03-25-2010, 08:11 PM #12
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cyclelops cyclelops is offline
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Join Date: May 2007
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
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My docs are pretty reasonable. My neuro really tries to accomodate me. If I do decide I want to try the Cellcept, it will be a small dose and with the IVIG. It is a matter of telling him I feel I need more. He will contact me next week. I will see what they say. I see my rheumie and and my neuro in May, as well.

I hope they decide to do the autonomic battery for you too....

And as far as autoimmune disease being specific, I think there are lots of people that have overlap disease, which is essentially what I have. Even my muscle biopsy has a lot of what some one with polymyositis has....my CRP bounces, my RNP antibodies are just slightly under the cut off, my C4 is low like in lupus, my salivary gland is Sjogrens, and my ANA is scleroderma-ish....how it THAT for mixed connective tissue disease, LOL. Tah Dah....

Plus, I think one can have both hereditary PN and autoimmune issues if one is has crummy luck.

It is what it is.....It is Cyclelop's Syndrome. Main symptom is the patient becomes insanely prone to humor.

So Mere, keep us posted on what they are going to do.
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