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Old 01-28-2007, 09:48 PM #12
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
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LizaJane LizaJane is offline
Member
LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
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Your neurologist may have a good reputation, but it doesn't seem he's paying attention to the form and progression and timing of your symptoms.

They sound much more like what people suffer from when they have an inflammatory autoimmune neuropathy, or autoimmune from other causes. It doesn't sound like plain old idiopathic and definitely NOT alcoholic.

Please get your neuro to focus on this. Bring the charts and ask for all the neuronal antibody tests, PLUS, an emg and ncs. You haven't mentioned any studies.

Also, a good general workup for the rest of possible causes of pn, and nutritional eval: thiamine levels for instance, which ARE lowered in alcoholics and cause their own symptoms.

Advocate for yourself! You deserve it.
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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