Why is when you say no to someone, they just do not listen? I am luckier than many of you, I do not have constant pain most of the time. If I overdo, or wear the wrong shoes, step on something wrong, you know, all those other things cause me to have pain. I am now walking a mile every morning, and before I get home my hip is crying most days...so I will not go over 1 mile. I went to the beach Sat, walked to far, and had a rough time getting back to the car..I wasn't paying attention to how far I had gone. I have more issues with balance, numbness, tingling, vibrations, than I do with pain, and I am thankful for that. My feet do give me the most problems.

So, a stupid question for all of you...can anyone still dance? I had a wedding to go to today, and just sitting and watching was causing hip pain. My co workers kept trying to make me dance. I know if I was to dance, tomorrow I would be in pain all day, and maybe for days. How do you make people understand? I do not look like I have any problems, so sometimes they must think I am lying to them. They nag me about eating, and they know I will not eat away from home..I also have severe reactions to being glutened..so why nag? Can I get you a drink, anything to eat, coffee?

I guess this is a blow off steam type of thread!

Have something that LOOKS like a 'drink'? AKA Water w/a slice of lemon in it?
Slow dance w/someone, essentially standing in place and swaying a little bit?
No more no less... the pay-backs are too much.
And, yes! The going too far and wondering IF you can get back? That aspect takes a LOT of conscious thought and planning [as much as it's hated]. The planning part always must be with us.
I truly hate hitting those brick walls with hundreds of pounds of concrete on my legs! I'll stop, rest, regroup & marshall/Command my mind and body and get home ASAP! Then crash. How long I've gone and how hard it was to get back determine the REST time I mite need to be semi-human again... without growling.
Hugs and better things! - j

i second the slow dance in circles thing. One where you have someone to hang onto while you dance. I took a nice header last week, the kind where you trip and keep stumbling forward trying to regain your balance, well i didnt regain it. fell flat on my face. do what you can when you can and if people dont understand well what can you do.

You did a "header", I did a nice "footer" the other night in my bathroom. I kept trying to regain my balance and kept going backward into my cabinet. I have three nice knob marks inside of a huge bruise on my mid back. It hurt, but I am sure it looked funny as hell, especially since I was butt naked.

I hate the fact that I loose my balance and fall. I think it is because I don't always feel the floor under my feet.

And, I triple the agreement with the slow dancing. Come on now, I think we can all do that...

Mere

i did mine in front of a whole field full of people. it got a few laughs.

Ohhhhh, now that is embarrassing... I hope you weren't hurt too badly...

Mere

Doing that kind of backwards-dive? Is not what we want to be 'remembered for'! Then.....comes the inevitable question? Why'd ya do that?! Didn't plan on it, sorry! Just 'lost it'? THIS is where I clutch my cane between my hands and DARE folks to question me MORE! Sheesh! Like I planned it all? NOT!
Thing is, for all the 'ettiquete' folks have been raised with or on? They don't KNOW or have a clue what to do when someone hits world. I don't get it!
Hugs to all! 's - j

I can just see you doing this! They just don't know who they are messing with huh???

i got a visual on that one also....ha!

Hi I am sorry the wedding came with some issues. I do not dance. I could not from the pain and I am also have lack of range of motion. I do feel pressure by people in similar issues like you state. I try to take a deep breath and not allow people to pressure me into hurting so to speak. Do they know what you suffer from? For me sometimes it is just better to say I am having health issues that don't allow me to do X for now. I too on the outside look fine. I feel it is the simple pleasures in life I miss so much like this you are stating. Something I don't get regardless if you had no problems why people nag. If you don't want to what is it to them. Hopefully oneday maybe things will be different and you can dance away.