Originally Posted by dahlek

I too had muscle 'knots/spasms' well long before my own immune thing went into full speed? I'd learned how to deal with them and what to do, vis-a-vis, massage, heat, cold, accupressure? The WHOLE GAMUT! I THINK? I should be grateful that I skipped first base? W/the Fibro diagnosis? Fibro vs, muscular/nerve trauma and rehab are far different things!
I think I should go and see if past docs are still alive? And if so...go kiss their shoes [IF I could get down to do that? Or at least facial cheeks?] I must consider myself super-lucky that I did NOT get the 'fibro' attached to me. That sounds like a bad thing to say? But truly it is not, as Fibro was never a key issue. Even tho, I mite have 'fibro issues'? That has never ever been an aspect or issue raised. Why one vs the other? Doc training? Patient training the doc?[not likely, but hopeful?] I don't know.
But, can we all back up a bit? The complexity of the diagnoses results from the testings? As the StLouis Site demonstrates...there are a heap of possibilities-KNOWN! Unknown? Yet to come. The latter part is the scary part? It's growing every year, the combinations/permutations are getting wider and broader and a whole heap of education has to be done soon by neuros to offset the more expensive wave of immune diseases. The mis-diagnosis is well documented here, and it scares me silly! [My polite choice of wording] WE DO NOT DESERVE THIS DEGREE of IGNORANCE among our key physicians! That ignorance leads to extraordinary and at times? Bankrupting expenses!
ADDRESSING Triggers? Yep, I had them? Somehow having pneumonia for an extended period of time, AND being on a variety of antibiotics [known for possible PN S/E's?] have taken their toll? But I feel as if myown system was like one of those 'dominoes chains' set up to fall.....this way? or That way!
And, all the dominoes are still being sorted out, years later, but I suffer the consequenses... The odds are great? If'n it were a real LOTTERY? I'd be really, really rich! And then some?
Hey, once that old 'immune ball gets rolling'? It's the pinball effect-don't know where it'll end up.
Wow, It STILL feels good to beat my head against a solid surface now and then? Those endorphins? Super!
No blood was drawn as a result of this post! 's -j