Because most of us w/pn and other 'neuropathies' tend to have other complex and diverting issues that make it hard for either specialists or Primaries to see us as a WHOLE PERSON!
That said? I see my primary about once a year [exam-update], maybe twice? The 2nd time for a 'cold' that mite be 'something more'-in my case any hint of pneumonia will either shut my brain off or send me over a cliff! Why? Because the primary IS the 'gatekeeper'! You'd be surprised at your various docs' files on you? Who they've corresponded to and at what length [got good peeks on more than one time when docs have to leave me alone {w/file?} to take an emergency call - I don't really mind them doing that? Could be me sometime-tho I hope not.] -they write PAGES of updates to the primary! And to some of my other key docs too!!
Bob? When you can't get your doc for ANYTHING? Time to call and ask for an alternative---just say the old: We aren't connecting well. Leave it at that, no bad talk no reason for retributions-just a change. Ideally you'll get a 'live one' on the next try. I'll cross my fingers for you!
Mere? I've not had any autonomic testing? But I definitely have autonomic lymphatic symptoms- circulation and sweating are irregular, with swelling at all the wrong times? Little to no body oil production of the kind that keeps your skin moist and flexable-I'm going thru gallons of lotions now just to keep skin alive and not damaged? And I was told by the neuro diagnosing me that I'd likely have asorbtion problems w/vitamins and minerals [Mrs D? Thank you immensely for all you help over time-I almost understand it all, not quite but enough] -tho he never said why.
When I'd decided on the IVIG? All papers indicated that the kidneys and the liver should be checked regularly...as the cells that are mutant and killed by the Immune Globulins put extra stressors on these organs [as they go thru these organs on their way out]. Sooo for that? Ya gotta drink water for a couple of days afterwards to flush the worst of it all out!
As for the migraines? I'd only had 'non-aura' ones-they were enuf to scare me silly and I'd been cardiac, eye and vascular tested to the nth degree. They then just 'went away' AAAH! BUT When I get them now? They are very short and intermittent-followed by a new wave of muscular neuropathy issues. Scary enuf that.
Goodness knows? NEVER EVER ASK WHAT ELSE CAN HAPPEN? Cause it just mite! And WE DON'T WANT THAT!!! 's to all! Thanks too for letting me 'vent' a little? -j