[RandyK]

Hi Everyone,

I'm new here, but not new to PN. My PN started around Feb '08 and it is attributed to Diffuse Scleroderma (SD) (a pretty nasty autoimmune) that I have had since May '07. The small nerve PN was dx'd by a Mayo Scottsdale Neurologist after EMG's and skin biopsies, etc.

I have very successfully used Lyrica which made all the difference in the world when my PN was at its worst, and as I battled my SD using an antibiotic protocol (AP). Fortunately the AP has worked terrifically and my SD is almost in remission. My PN has improved quite a bit also, but it is not gone. I weaned off Lyrica around Jan '10 and started using the ReBuilder device. I wasn't sure it was doing too much in the long run, though when used it did help sooth my burning feet (for a while). Recently I lost the ReBuilder during some travel and I have been off it for 3 wks. Now I believe my PN is worse again or at least a lot more noticable, and I have restarted taking Lyrica 100 mg at bedtime and mid-day in order to be more functional and get a better night sleep and not be so fatigued during the day. I am trying (so far unsucessfully) to get another replacement ReBuilder cheaply.

I used to look over the Peripheral Neuropathy Assn Board, but it has always seemed to be unutilized. So, it is fantastic to finally find a decent PN site and BB to help me wage war on my PN. I look forward to getting great advice and encouragment as I win this war.

Randy