like Kitt my feet or legs often hurt no burn when they are on top of each other. I dont have sensitivity to the shower anywhere on my body. The over reaction to stimuli has greatly decreased over the years as ive become more numb. But sometimes it still rears its ugly head. Just yesterday i swore a part of the Rockies was in my shoe but when i took it off and look at it it was a really tiny rock.

As far as neurologists who tell people there is nothing that can be done when they have hardly done anythigng at all, could you imagine telling your boss that in your current job or past jobs. Many people would have been much worse off if we had that attitude towards our jobs and many people would not even be here if some of us had had that attitude. Doctors need to clear out the bad apples in their profession before it is done for them. The present system doesnt work.

http://www.aafp.org/afp/980215ap/poncelet.html

Happy reading? or something! onward? - j

Hello to everyone.

I have been told by 5 different doctors that I have CRPSII due to a severed radial nerve in my right wrist. Here is a small list of my symptoms that I experience on a daily bases. Burning pain, icy cold pain, deep sharp pain, numbing pain, tingling pain, over sensitivity to air movement, loud sounds, vibration, touch, air conditioning, summer heat,and many more for almost 4 years. As time passes the pain is getting worse. I have had 2 surgeries to fix my nerve with no success. When I take my shower this causes my whole arm to really start hurting and increase my pain many times more for the rest of the day from when I get up as far as my pain level is getting up out of bed. Some days I just want to cut off my arm due to the way it feels like it has follow en a sleep but is very painful throughout the whole arm.

Each day is so hard to deal with because the pain is so bad but everyone looks at you and see that you have no physical deformities that people can see and relate to. So I just grin and bare it.

Now what do you fine folks here think I have from what I have described. Any help would be greatly appreciated.

Thanks

Dennis

One would hope that your having seen 5 different doctors who told you the same thing, that that would be what you have. IDK

I forgot doctor #6 said that I did not have CRPSII but was not sure what I had.

To Dahlek: The link above you initially "forgot" to post is probably the best listing of the various types of neuropathies and which diseases/syndromes/condition are the result of each that I've seen so far. Thanks so much for it.

Don't know if there will ever be an answer for the sensory skin thing I have. My Sjogren's Syndrome is listed twice as a cause at that website (for purely skin sensory), so more than likely it is. However, the ray of hope thing still shines, and if my neuro-researcher wants to test further for a cause, that's fine with me. They can draw all the blood they want in the search.

In their diagnoses...that is! My goodness, My own neuro keeps mushing my diagnosis as things change and 'overlap' with other neuro and medical problems. Keep at it! As THE patient? It's up to you to almost but 'not quite' FORCE the diagnosic issue!.
Essentially, tests are tests, BUT if all the needed or right tests are not done to either include or exlude other issues? Then the doc is being a 'slug' in my book.
Not to mention the fact? That you could have MORE THAN ONE issue? DUH? Like it's not happened? It HAS to me and to others. Best to get it all on record before rather than after... if you know what I mean.
Such web sites are TOOLS, the key is for YOU to use them well? And, to your advantage in terms of getting better care.
Thank others for that site? and go GET 'EM! And, get better somehow! - j

Again, thanks for your responses - they're very much appreciated. This Board has a tremendous amount of information for neuropathics. So glad to be here.

Hoping that everybody sees at least some improvement or finds the cause(s) of their own neuropathy(ies) - and treatment that will help.

Best wishes and cheers,

Sheltiemom

NO neuro is ever going to do every test listed,, they will not take up your time and especially THERE time since alot of those test are probably specilized,, if its not the obvious,, (B12),, or some other common cause,, (diabetes),, there search will end with the word Idiopathic,,, then your nightmare starts,,

Sorry to say it Hurting,, but your in the same boat as a lot of us are,,, the ones that have no answers,, the ones who keep looking for answers,, and basically were screwed