Fortunately I haven't had too much autonomic neuropathy, just digestive problems (gastroparesis). It's only a certain section of my intestines that are affected but it can hurt like crazy at night. Most of my symptoms get worse lying down or exercising.

I've wanted to try IVIG for a couple of years but so far no one would order it. I have high antibody titers for several viruses which probably keep the nerves from healing. I'm seeing an immunologist in two weeks that is a strong proponent of IVIG therapy so I'm hoping he'll work with me and at least give me a trial to see if we can clear some of these things.

I have seen quite a bit of improvement with the leg pain over the past several years. At first it felt like someone had poured concrete into them and yet the doctor could stick me with a pin and I wouldn't feel it. I told my husband it was like I was suddenly on a planet with increased gravity and I was being pulled into the ground - sort of the feeling you get on a roller coaster when the g's hit you.

I think the hardest part for me is just the extreme, constant fatigue.

Jan