[Sheltiemom18]

Is it possible to still be gluten-sensitive after testing negative? Just had the test last week, and it was.

About histamines in food and foods that release it and their relation to PN. Just read MrsD's thread about this, and does it mean one has to abandon all of the foods mentioned? I eat many foods on those lists, and fish is one of them. Does anybody know whether fish oil capsules would therefore be not such a good thing to take? Am on three a day.

[glenntaj]

--in a word, yes.

The tests for gluten sensitivity/celiac are not foolproof; in some of the studies that JCC has accumulated in The Gluten File (which is an invlauable resources--the best database on the subject yet accumulated), up to 20% of people with proven villous atrophy tested negative on serum antibody tests for gluten. The ultimate test here often is: does one get better over time when one eliminated gluten?

As far as histamines go, I know less about that, but many, including Mrs. D, have mentioned that high histadelic people,at least, should try and avoid those foods that trigger their histamine inflammatory processes--though, as with avoiding gluten, this is often easier said than done, as many foods have hidden ingredients. It makes one quite a label reader/watcher.

People do vary greatly in their histadelic responsivity, though--there's a considerable genetic component--and some people may react hardly at all to some foods that drive others to hives (this is often behind what many call "food allergies"--there can be a histamine release even without the associated IgG or IgE antibodies that allergists tend to consider the sign of "true" allergy).

[mrsD]

Most of the fish warnings pertain to less than fresh fish.
Old fish start growing bacteria that contain histamines. The fish themselves are not to blame.

People vary in response to histamine triggering foods.

I found for myself that tomatoes (concentrated forms) or too many fresh (like when in season).. trigger me. And the biggest culprit for me is potato. If I go potato free for months and then have some, I can feel the effects quickly now. The nightshade family contains a toxin which some people are very sensitive to...solanine.

http://findarticles.com/p/articles/m.../ai_111734421/

It took me YEARS to discover this link for myself.

I also went fructose free 2 years ago... because of GI effects, but I do notice better PN symptoms with the sugar removal.

[darlindeb25]

I agree with Glenntag. They can't actually test for gluten sensitivity as of yet. The only test they think they have so far is for flattened villi, which in it's self is not conclusive of celiac disease, there are other issues that can flatten villi...so, as far as I am concerned, it's still a guessing game.

I have double DQ1 genes, which they have proven are gluten intolerant genes, just by the numbers of people with DQ1 whom can't tolerate gluten. For me though, I can't tolerate any grains, even the ones they call gluten free, which really aren't gluten free in any sense.

Check out this website: www.glutenfreesociety.com This site was started by Dr. Peter Osborne, whom is gluten intolerant himself. I find that a doctor who also lives this disease, is much more believeable than those who have no idea what it is all about. Dr. Peter Green, one of the most well known celiac doctors has been heard to say, "If you are not a celiac, then you do not need to be gluten free, and do not make your children live gluten free unless they are celiac too." He has since changed his mind about this and does now recognize that gluten can be an issue for those who are not diagnosed celiacs.

The true test is going gluten free. It seems like a major, very difficult thing to do, but it isn't as bad as it sounds as long as you learn to read labels. Thing is, you have to be totally gluten free to be sure...I advice new people to use gluten free products topically too, you never know if you react in that way too, I do. Tressemme shampoo contains gluten, and when I used it, I broke out in hives...so I always use gluten free products. Aveeno contains oats, I break out in hives, corn products do the same thing to me.

Good luck in whatever you decide, and please, do not expect a hugh change overnite...it takes time for your body to rid itself of gluten poisons.