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08-27-2010, 01:43 PM
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I have been getting bad bone pain in my upper legs and it's killing me! Deep down bone pain that zaps my strength in minutes.
Question, Can small fiber PN cause this or is this another form of PN?
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Marty Idiopathic PN - diagnosed 1999 |
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| "Thanks for this!" says: | Lerch (04-18-2019) |
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08-27-2010, 08:46 PM
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Magnate
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I have deep bone pain, mostly in the shins, feet, back and hands.
I do have arthritis, but it doesn't seem like that could cause that kind of pain in my shins! I am also prone to hip bursitis and have torn both rotator cuffs. I do have Connective Tissue Disease. I have never gotten a good explanation or answer as to what is causing the bone pain.
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Some days are not so good . . Others not so bad: . |
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08-28-2010, 01:17 AM
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Quote:
I have hip bursitis in both hips and have been battling that for over a year. I wonder though if that's not cause by years of low activity and then an onset of high activity?
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Marty Idiopathic PN - diagnosed 1999 |
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08-28-2010, 07:50 AM
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Senior Member
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I get deep bone aches & pain in my feet and toes.
I describe it as feeling as if my feet were stepped on by an elephant or rolled over by a car tire. Deep aches in the center of my bones, definitely not muscle related. I've had this sx for years. It comes and goes, but gets worse at the end of the day or when I've been on my feet too much.
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Bob B |
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08-28-2010, 11:39 AM
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Junior Member
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Quote:
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08-28-2010, 02:23 PM
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Senior Member
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i get the deep bone pain in my feet also when i stand or walk. it gets worse the longer im on them. they feel like they are broken and im standing on broken bones. not the take your breath away type pain but the crushing type pain like an elephant standing on you feet is a good analogy but only from the underneath instead of ontop.
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08-29-2010, 10:09 AM
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Magnate
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I was thinking more like taking an elephant ride....but, being trampled by one is exactly, to a tee, how I would describe the sensation in my bones.....
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Some days are not so good . . Others not so bad: . |
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08-29-2010, 10:41 AM
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Senior Member
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I also get the deep bone pain in my shins. I've had sciatica for 24 years, but this is in the front of the leg, right in the shins. Boy does it hurt!!! Like you've all said, it's like someone/thing trampled on it and just stayed there.
 You just can't breathe when it hits!
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability. Often the test of courage is not to die, but to live.. .................................................. ...............Orestes |
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01-15-2012, 11:51 AM
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#9 | ||
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New Member
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A combination of neuropathy and deep bone pain can be due to porphyria. If it's on of the milder forms of porphyria there may not even be any blistering rash.
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01-15-2012, 02:03 PM
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#10 | ||
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Member
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I also get the deep bone pain, usually in my feet and lower legs, sometimes thighs and hips. It feels like I am being slowly crushed by a washer mangle. I have CMT type 2, hereditary neuropathy, small and large fiber with muscle deterioration. I assume it is from the muscle weakness. Walking up stairs is very painful, as is anything that requires lifting my legs,but it can happen lying on the sofa, especially at night.
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| "Thanks for this!" says: | Lerch (04-18-2019) |
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Deep Bone Pain
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