Hi invisible

Sorry you suffer like this too.

I have it with and without movement too.
I take baclofen as needed and 2 mg Valium for breakthru. I have tried lyrics and no help.

My emg clear and ncv clear except carpel tunnel.
Have you liked up Isaac syndrome and had blood done for it. Blood test is called volted gated potassium channel. Or vgkc.
I tested negative but it's a rare thing they don't check for.

I don't want to take these mess so scared of them !!
Do you have tremors internal like u are shaking but I have external
Now too. Especially if I get startled I shake internally. Another this is I am getting more of jerks
(myoclonus) I alway use to as falling asleep. U know like u fell when u falling asleep. But now if I just close my eyes and in not so falling asleep yet and something will jerk a bit. But at times when awake and sitting my leg ir angle will jerk a bit. Nit hard a bit.

So I feel some if it is like movent disorder. But all I these things overlap each other and one can have tremors in so many things that makes it so hard to diagnose.

I hate the spasms in my throat and constant state of tightness that when there it clicks and makes sound when I swallow .

Tulips