I was on the net looking for info on neuropathy when I found this site. Maybe someone here has some insights they can share with me.

One year ago I had what my primary doctor said was diabetic neuropathy in my feet. I have mild diabetes. It started with cold toes then advanced to stinging. He sent me to a neurologist for conformation. I had the nerve tests in the office which showed very mild degradation in the feet nerves. Within a month my forearms, face, neck, a hand started stinging. A short time later the shin around my eyes start stinging and the roof of my mouth. Then electric shocks to my tongue. Then it progressed to my trunk and testicles. In several instances the sting was preferred for days with a chill sensation before the stinging started.

My neurologist was stumped because the skin biopsy was normal though he said the skin site chosen could have been poor. He sent me to the Mayo Clinic they diagnosed hypersensitivity of the nerve endings but could not say why. My local neurologist said this was a description of the symptoms not a Dx.

Essentially I have stinging in most, almost my entire body when not on meds. I am almost pain free on the meds which include Lyrica, Cymbalta, and Oxycontin.

By accident I ran across an abstract on non-length dependent PN. It described my symptoms in a general way. I have been unable to find any indepth info on the non-length dependent PN. Then I found this site.

If anyone can point me to info on this decease I would be grateful. Any insights or personal experiences would also be appreciated. Why my neurologist never mentioned this decease is troubling. Thanks for any help.