There are some things that can help....

If there are triggers for the PN...one can avoid them.
Toxins, heavy metals, drugs, gluten (diet).

Diabetes can be controlled. Alcohol avoided.
Hypothyroidism fixed.

B12 replenished. Low Vit D fixed

Mitochondria supported.

Nutrients provided: to aid in healing.
magnesium
zinc
B6
essential fatty acids

It is time they stopped calling vit d a vitamin....it is a serious deficiency, that really, I should have paid WAY more attention to.

I was so moritified of getting osteoporosis, I never even thought of osteomalacia....until I could barely walk or get up from a chair.

Now they told me I am acidotic too, which means the 'vit d' probably isn't getting absorbed as well as it should. To be honest, I am taking bicarb and feel a lot better. I woke up this morning and didn't feel like some one was poisoning me. I do not get why they didn't just give me bicarb...grrr.

I often wonder if our bodies can be extremely different....I mean, operating on different ratios of electrolytes. What is normal for one, could be toxic to another.

Anyway, it is best to search for a diagnosis....if one is sick, one needs to know why. Frankly, I thought that AI diseases were way more treatable than they really are....they know diddly about them too....just like neuro.

While it is true that for many getting an actual diagnosis many not mean much in terms of differences in treatment, it can be important for insurance/reimbursement purposes.

Not to say that all, or even most, people fit in well with some of these diagnostic categories--i.e., the number of people who get some diffuse autoimmune diagnosis when they don't "classically" present with the "accepted" clinical signs of lupus or Sjogren's--but having the "label", as unfortunate as it is, may enable them to get or continue getting what treatment there is, and not have to pay for all of it out of pocket.

That makes sense. I didn't think about that--but there is no treatment that is available for me for neuropathy so I don't have anything that needs to be covered.

I wasn't saying that people shouldn't care or try to find a cause.. just that in the end, most of the time it doesn't change anything. So many people put so much time into finding the root cause, and never get the proper treatment/help to treat the symptoms. It just seems silly when most people end up having a cause that will change nothing in the end. I know that in some cases it is important to find the cause because there could be additional problems that may require treatment.

It's just that some people get so focused on finding a cause when they have already had most or all of the tests out there... and it seems that in the end, very few ever find a cause so there is so much time and money involved in it just to have no end result.

Obviously it's up to the individual. In the end it is their time and money and energy and they can spend it any way they wish. I just know that I wish I didn't know the cause of mine.. and knowing has done nothing positive for me. Doesn't mean that is the case with everyone.