advertisement
Reply
 
Thread Tools Display Modes
Old 12-11-2010, 11:39 PM #11
rose_thorn98 rose_thorn98 is offline
Member
 
Join Date: Oct 2010
Posts: 190
10 yr Member
rose_thorn98 rose_thorn98 is offline
Member
 
Join Date: Oct 2010
Posts: 190
10 yr Member
Default

Quote:
Originally Posted by invisable View Post
Immunofixation electrophoresis does not reveal any abnormal IGM, IGG, IGA, KAPPA OR LAMBDA BANDS that would indicate a Monoclonal Gammopathy in serum or urine.

Sorry......Not sure what TTG means?
TTG means Tissue Tranglutamase (sp?). It is a Celiac test. If you have TTG IgA and IgG elevated it can indicate Celiac.

I know what you mean about the sacrifice of giving up Gluten. It was so hard to live like that when I did it. I was actually getting depressed because I couldn't eat my normal foods. And forget about eating out, that is near impossible. You can't trust eating out because they might contaminate your food. I just couldn't deal with it all, while trying to get onto meds, and deal with the fact that I have this debilitating condition. I work full time too and have a family to take care of. It was alot of work trying to eat gluten free....and when I needed a break, I couldn't even go out to eat. I don't mean to discourage you, if you feel you need to try it then you should do it. Maybe it would really help you. I do think that you need to give it at least 6 months. I may do it again next spring, after I take my planned vacation to England. But it does take planning to do it.

Anyhow, just wanted to say I know how you feel.
rose_thorn98 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
malawigirl08 (12-14-2010)

advertisement
Old 12-12-2010, 01:19 AM #12
Dr. Smith's Avatar
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
Dr. Smith's Avatar
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Default

Quote:
Originally Posted by darlindeb25 View Post
More than likely, if you cheated on Thanksgiving Day and had no ill effects, then you aren't truly gluten free.
Or, as I said, I'm just not sensitive to it.

Quote:
What do you eat Doc?
What's on the diet. It's spelled out in the link.

Doc
__________________
Dr. Zachary Smith
Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.
Dr. Smith is offline   Reply With QuoteReply With Quote
Old 12-12-2010, 02:55 AM #13
Dr. Smith's Avatar
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
Dr. Smith's Avatar
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Default Won't be easy for me....

Quote:
Originally Posted by invisable View Post
I know I sound like a spoiled brat.....but I love anything with wheat and flour in it, doesn't have to be white flour, but wheat items are my life!
Please don't be offended, but actually, you sound like the smoker who won't quit because they may gain weight, the diabetic who refuses to give up their chocolate, or the lactose intolerant who can't live without their ice cream & cheese, yadda, yadda... You can do this - you just have to decide that you're going to.

And let's not put the cart before the horse. At this point, we're talking about a gluten free trial - not a permanent change. Cross that bridge when you come to it - if you even do.

Quote:
I realize that is my problem to work out, but gosh what a sacrifice for something that can't be tested for........
The "test" is the trial. If you go gluten free for a few months, and find you feel better than you have in years, you may become more receptive to rethinking how important wheat really is in the grander scheme.

If, on the other hand, there is no difference, you'll have lost nothing and done no harm, and have some peace of mind and positive feelings for giving it a shot and finding out.

Quote:
And even if I gave up all the foods I love, if it is even in medicines, how can one go completely gluten free?
Well... nobody said it would be easy, but going through the link below, it doesn't look all that difficult either (compared to some diets I've seen and been on).
http://gicare.com/Diets/Gluten-Free.aspx

You've also got the advantage/benefit of support here, and hopefully, the rest of your support network (family, friends, medicos...)

Doc

FWIW, I have some experience going through some difficult diets/lifestyle changes. I've done the Specific Carbohydrate Diet (extremely difficult for most people to do correctly) and I've done dairy free (dairy, like gluten, can be in a lot of things you wouldn't expect). I've decaffeinated several times for different reasons, gone chocolate free (as difficult for me as wheat is for you) and I haven't had alcohol in 8 years (No abuse issues - just not wise with the meds I was taking at the time.) A couple weeks ago I had a glucose tolerance test, and was prepared to do whatever would be necessary if I were discovered to be diabetic.
__________________
Dr. Zachary Smith
Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.
Dr. Smith is offline   Reply With QuoteReply With Quote
Old 12-12-2010, 11:30 AM #14
darlindeb25's Avatar
darlindeb25 darlindeb25 is offline
Member
 
Join Date: Aug 2006
Posts: 744
15 yr Member
darlindeb25 darlindeb25 is offline
Member
darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
Default

Quote:
If gluten is in everything, then how can it be easy to go gluten free, I know I sound like a spoiled brat.....but I love anything with wheat and flour in it, doesn't have to be white flour, but wheat items are my life! I realize that is my problem to work out, but gosh what a sacrifice for something that can't be tested for........just a vent of frustration toward this situation, not meant toward any of you well meaning people.

And even if I gave up all the foods I love, if it is even in medicines, how can one go completely gluten free?
To begin with, gluten is not literally in everything, I simply meant it's in so much more than many of us realize. What is best for you to eat, is also what is best for everyone to eat. Processed foods are bad for everyone, they are full of junk we shouldn't have, full of empty calories...ever notice the sodium and sugar levels in processed foods? Eat whole foods, things that naturally are gluten free...potatoes, veggies, fruits, fresh meats (not marinated, battered, or breaded). There are things like ice cream that does not contain gluten, you just have to stay away from any that have obvious gluten like Cookie Dough and such.

An example...french fries...why would anyone suspect them to contain flour? Yet, often they are sprinkled with flour to keep them from sticking to each other. Candy bars sometimes contain flour in the fact that often they lay them on sheets coated with flour so they don't stick. Unnecessary, but very true. There are gluten free meds, but you do have to research which ones to use.

The gluten free diet is easy once you know what you are doing. YOU MUST read labels, religously...every time you buy the product you must read the label. As Rose_Thorn says, it's not always easy, and we do tend to mourn foods we can't have..yet that mourning time will pass. For some of us, there is no turning back, we must be gluten free, we do not have a choice. If you are one of us, continuing to eat gluten will only make you sicker and sicker.

Dr. Smith...remember, just because you do not react does not mean gluten isn't doing damage in your system if you do need to be gluten free. Some people do not have symptoms, yet still must be gluten free.

Being gluten free is not a fad, it is not a diet, it's a lifestyle.
__________________
Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
darlindeb25 is offline   Reply With QuoteReply With Quote
Old 12-12-2010, 01:47 PM #15
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

So, to carry this to the extreme, would not the paleolithic diet be what is best for us?

Given we have not been evolved all that long, since the invention of agriculture, would it mean that much of what agriculture offers is not really 'good' except for stuff like 'permaculture' which would normally be found naturally in the environment, such as raspberries, strawberries, grapes, apples, pears, mushrooms, asparagus, etc? Basically, if you can find it growing wild? (I think of the Plains Indians and bison and other foraged food?) For protein, bison, deer, elk, caribou, fowl and fish and of course, eggs. I assume domesticated would be as good as wild if it had access to free range.

I am not sure milk is as offensive as it is touted to be, given, animals were likely domesticated before farming. (I think of the Sami in the far north....they do milk reindeer, but do no agriculture as such.)

This would be brutal for me!! But if it made me feel good, I would probably endure it.

I imagine we would be healthier if we wore woolens and furs too. (I am itching already....I suppose cotton and alpaca will cure that.)

We are so far away from the environment in which we evolved. I imagine we could have adapted some to agricultural food in 10,000 years ....however, in the last 150 years, we have diverged incredibly from our natural environment. Add plastics (and even man made chemicals that are edible ) in the last 50 years....it's amazing our lifespan has lengthened....then again, those mammoth hunts were kind of tough........
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
malawigirl08 (12-14-2010)
Old 12-12-2010, 01:54 PM #16
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Some say based on genetics and blood type (studies are showing this too),

type O's, do best on meat and gathered stuff like the Paleo diet

type A's, tolerate grains better

type B's, handle dairy the best and game meats (not chicken however),

This is the Eat Right 4 your Type diet.

A good book to read if interested is Your Body Knows Best.
http://books.google.com/books?id=4Wy...page&q&f=false

It is a fascinating read, by an experienced dietician.
Amazon has used ones for very low prices.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 12-12-2010, 06:14 PM #17
darlindeb25's Avatar
darlindeb25 darlindeb25 is offline
Member
 
Join Date: Aug 2006
Posts: 744
15 yr Member
darlindeb25 darlindeb25 is offline
Member
darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
Default

Quote:
Given we have not been evolved all that long, since the invention of agriculture, would it mean that much of what agriculture offers is not really 'good' except for stuff like 'permaculture' which would normally be found naturally in the environment, such as raspberries, strawberries, grapes, apples, pears, mushrooms, asparagus, etc? Basically, if you can find it growing wild? (I think of the Plains Indians and bison and other foraged food?) For protein, bison, deer, elk, caribou, fowl and fish and of course, eggs. I assume domesticated would be as good as wild if it had access to free range.
Exactly! People do not want to hear this though. We have, well, I had, grown accustom to the much easier lifestyle of buying foods already made for me, like bread! We are much better off if we eat the way we did years ago.

Quote:
type A's, tolerate grains better
I am a type A, and no, grains are not well tolerated by us. The only grains they recommend for type A's are kasha, rice, oat flour, rye flour, soda noodles, and artichoke pasta...which I can't eat any of these things. White flour, whole wheat flour, semolina pasta, and spinach paste is to be avoided by type A's. I have read Dr. D'Adamo's books and he did recommend soy flour for type A's, which makes me as sick as gluten. He also says for us not to use dairy, which, does make me ill too.

I don't know how much I believe in what he says. There are things he says I can have that I can't, and thinks he says I can't have that I can!
__________________
Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
darlindeb25 is offline   Reply With QuoteReply With Quote
Old 12-12-2010, 11:46 PM #18
invisable invisable is offline
Member
 
Join Date: Jul 2010
Posts: 298
10 yr Member
invisable invisable is offline
Member
 
Join Date: Jul 2010
Posts: 298
10 yr Member
Default I am not offended at all..........

Quote:
Originally Posted by Dr. Smith View Post
Please don't be offended, but actually, you sound like the smoker who won't quit because they may gain weight, the diabetic who refuses to give up their chocolate, or the lactose intolerant who can't live without their ice cream & cheese, yadda, yadda... You can do this - you just have to decide that you're going to.

And let's not put the cart before the horse. At this point, we're talking about a gluten free trial - not a permanent change. Cross that bridge when you come to it - if you even do.



The "test" is the trial. If you go gluten free for a few months, and find you feel better than you have in years, you may become more receptive to rethinking how important wheat really is in the grander scheme.

If, on the other hand, there is no difference, you'll have lost nothing and done no harm, and have some peace of mind and positive feelings for giving it a shot and finding out.



Well... nobody said it would be easy, but going through the link below, it doesn't look all that difficult either (compared to some diets I've seen and been on).
http://gicare.com/Diets/Gluten-Free.aspx

You've also got the advantage/benefit of support here, and hopefully, the rest of your support network (family, friends, medicos...)

Doc

FWIW, I have some experience going through some difficult diets/lifestyle changes. I've done the Specific Carbohydrate Diet (extremely difficult for most people to do correctly) and I've done dairy free (dairy, like gluten, can be in a lot of things you wouldn't expect). I've decaffeinated several times for different reasons, gone chocolate free (as difficult for me as wheat is for you) and I haven't had alcohol in 8 years (No abuse issues - just not wise with the meds I was taking at the time.) A couple weeks ago I had a glucose tolerance test, and was prepared to do whatever would be necessary if I were discovered to be diabetic.
You are right in everything you said, I needed that!

The only thing I want to point out in my defense is......If I knew for sure, I would make the life style change, that's why I was hoping there was a test for gluten sensitivity, but since there is not; your point is well taken, nothing lost if it doesn't prove to be my problem, and if it is the cause for these symptoms.......I hit gold! Yes, you are right I would continue the gluten free lifestyle to eliminate these symptoms.

Thank you for your honesty and motivation on this, I really do appreciate it. It is time I put this plan in action.
invisable is offline   Reply With QuoteReply With Quote
Old 12-12-2010, 11:52 PM #19
invisable invisable is offline
Member
 
Join Date: Jul 2010
Posts: 298
10 yr Member
invisable invisable is offline
Member
 
Join Date: Jul 2010
Posts: 298
10 yr Member
Default I actually don't know what blood type I am........

Quote:
Originally Posted by darlindeb25 View Post
Exactly! People do not want to hear this though. We have, well, I had, grown accustom to the much easier lifestyle of buying foods already made for me, like bread! We are much better off if we eat the way we did years ago.



I am a type A, and no, grains are not well tolerated by us. The only grains they recommend for type A's are kasha, rice, oat flour, rye flour, soda noodles, and artichoke pasta...which I can't eat any of these things. White flour, whole wheat flour, semolina pasta, and spinach paste is to be avoided by type A's. I have read Dr. D'Adamo's books and he did recommend soy flour for type A's, which makes me as sick as gluten. He also says for us not to use dairy, which, does make me ill too.

I don't know how much I believe in what he says. There are things he says I can have that I can't, and thinks he says I can't have that I can!
How stupid do I feel!!!!

I appreciate all your input and knowledge on this subject.

I am going to buckle down and just do it!

As was pointed out from so many of you experts, what do I have to lose? except maybe some weight and I may have much to gain, like relief of symptoms and a healthier lifestyle. I am ashamed of myself for being so lazy and foolish on this subject. The truth is, I am a carb. addict, that is why I will need to purchase gluten free bread, etc.........so I can somewhat get my fix!
invisable is offline   Reply With QuoteReply With Quote
Old 12-13-2010, 06:33 AM #20
darlindeb25's Avatar
darlindeb25 darlindeb25 is offline
Member
 
Join Date: Aug 2006
Posts: 744
15 yr Member
darlindeb25 darlindeb25 is offline
Member
darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
Default

Quote:
As was pointed out from so many of you experts, what do I have to lose? except maybe some weight and I may have much to gain, like relief of symptoms and a healthier lifestyle. I am ashamed of myself for being so lazy and foolish on this subject. The truth is, I am a carb. addict, that is why I will need to purchase gluten free bread, etc.........so I can somewhat get my fix!
NEVER, would I call you lazy, nor foolish. For so many, it's a difficult decision to make, going gluten free. For those who do not have symptoms, it's even harder. For me, it was a no brainer...I was so sick though, so going gluten free was a relief for me. I had been sick with serious gluten symptoms for 20 yrs, not knowing anything about gluten. I had issues my entire adult life, and didn't go gluten free until I was 45. I of course, had many diagnosis by then...irritable bowel syndrome, nervous stomach, colitus, too much stress, and my personal favorite, it's all in your head! I was dealing with severe panic attacks, anticipatory anxiety, borderline agoraphobia, and about a year before going gluten free, carpal tunnel in both hands, which turned out to be my first diagnosis of neuropathy.

The only way to truly know if gluten is an issue for you when all testing comes back negative, is going gluten free and letting your body tell you. When going gluten free, if you stick to whole foods and such, staying away from gluten free processed foods, you will lose weight. Gluten free processed foods are full of empty calories, the flours have way too much sugar in them, just to make them something we grudgingly will eat. Some people do fine with the gluten free processed foods though, my dad and sister are ok with them..I can't touch them.

Good luck with whatever you decide, and feel free to email me any time with questions!
__________________
Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
darlindeb25 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Gluten Sensitivity invisable Peripheral Neuropathy 10 11-08-2010 10:41 AM
Can you have gluten sensitivity without Celiac? neurocitizen Gluten Sensitivity / Celiac Disease 30 12-11-2009 08:01 AM
Gluten Sensitivity and Schizophrenia... yet another look! jccgf Schizophrenia 0 06-06-2009 08:02 PM
Schizophrenia and gluten sensitivity jccgf Schizophrenia 0 03-02-2009 01:10 PM
Gluten Sensitivity.net aklap Gluten Sensitivity / Celiac Disease 1 01-30-2007 11:19 PM


All times are GMT -5. The time now is 01:41 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.