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Old 02-08-2011, 10:25 PM #21
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Originally Posted by en bloc View Post
I ditto that the neurontin can cause the swelling. It may also be the reason for the blurry vision (another side-effect).

Your neuro should be able to advise you...likely better than your family doc is doing.
absolutely first thing I got was mild double vision when at its worst. Also Amtryptoline retains water as well last time I checked.
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Old 02-09-2011, 10:22 AM #22
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Historically in the older days, drugs were put alphabetically on the shelf in the pharmacy. So chlorpromazine generic would be filed in the T's for the parent drug name Thorazine.

Today, more pharmacies put them alphabetically by GENERIC name, instead, because Techs are not trained in everything and don't know all the names and cross references.

So Chlorpromazine may be next to or very close to cyclobenzaprine. Add to that fact, the alarming fact that most doctors cannot spell worth a darn, and thread out letters in long names to fudge syllables, you have fodder for a big error!

It is inconceiveable that you were given this drug... so something is wrong. There are new doctors out there now who don't even have experience with this drug, because it is not used anymore commonly.

Another common error I've seen on boards like this, is clonidine/clonazepam. The brand name for clonazepam is Klonopin, and the brain mixes them up. It is similar to the confusion when Xanax is called Zanax..which resembles Zantac.

When Prilosec came out it was called Losec. This looked like Lasix when written out sloppily like doctors do, and many errors happened in the first year in US. It was then changed to Prilosec. In other countries it remained as Losec.

Omacor was changed to Lovasa because of written confusion and errors. (RX fish oil).
side ways for a bit however its well worth googling your meds. just read this today.

"A US teen could lose her baby after a pharmacist mistakenly gave her a powerful abortion drug instead of the antibiotic her doctor prescribed.

Mareena Silva, 19, who is six weeks pregnant, was written a prescription to deal with a bacterial infection, US network ABC reported.

Instead the Colorado woman was given methotrexate, a drug used for early-stage pregnancy termination as well as chemotherapy".
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Old 03-17-2011, 12:14 PM #23
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Confused Small Fiber Neuropathy

I have recently been diagnosed of SFN. After reading the posts of how you both are feeling, understandably why I feel the way I do. I am currently seeing a doctor who has never treated a person with my disorder before, and doctors who have, is about 6 hrs away. I started having these severe symptoms about a year ago. It started like Pseudo Siezures, with itchy, burning feet. They are cold and turning different colors. The leg and feet muscle contractions are extremely painful. I have progressed with symptoms rapidly. My feet are turning blue, constant stomach and bowel symptoms. I have the numbness, weakness, tingling sensations in my legs, feet, arms and hands. Now it is in my face and ear canals. I have a hard time swallowing when these symptoms occur. My body contracts with involuntary movements of twitching and spasms. I have dizziness, short term memory loss, and loss of concentration. Now I am constantly hot at night with sweating spells. Too young for menopause. HaHa. My doctor where I live has tested me for vitamin issues to MRI's. I feel like a test dummy. I was sent to a University Research Hospital where a neurologist saw me and in 2 hours diagnosed me with this condition. He sent me home with a referral to my primary doctor for pain management specialist and physical therapy. I have taken neurotin before and had bad reactions, now I am on Cymbolta and Norco. I have seen Acupuncturist, Therapists, Naturalists, and had no real results. You can't help but feel helpless. I was a very active person with my family and community. Now I am left to sit in a recliner catching up on Lifetime movies. I feel so frustrated, and sometimes very alone. I am hoping this will help by venting these frustrations. I do have a supportive husband, and family, but sometimes it isn't enough. They can empathize but cannot sympathize.
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Old 03-17-2011, 04:58 PM #24
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Karen, I'd recommend your seeing a Homeopathic doctor (a good one if you can get recommended to you). If you can get off the drugs, all the better and research the side effects of each one you're taking. a Homeopathic doctor can switch you to medicine with no side effects, put you on a special diet, exercise, supplements, research allergies you may have, etc.. I have had more help from natural doctors than my neuro and GP. They only prescribe drugs.

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I have, after 15 months of tests and pain, been diagnosed with idiopathic small fiber neuropathy. I am on Cymbalta, Neurotin, Amatriptyline and vicodin. Have been on this since October. New symptoms seem to be showing up daily. My ankles and feet are like balloons today, it hurts to bend my feet because the skin is so tight from being swollen. My vision is blurry (have always had perfect vision), my hair is falling out, my short-term memory is bad, I sweat profusely from my head, I am hot all the time, and the heartburn is awful! Considering using a cane when I leave the house, which is not often since I lost my job due to my symptoms a week before christmas. My dreams are so vivid, they are not nightmares, just dreams, therefore, my quality of sleep is affected. It is worse in my right arm than anywhere else, and of course I am right handed. I cannot stand for more than about 15 minutes it hurts the heels of my feet and my hips/lower back. The little things are the worst! Buttoning a shirt, picking up small objects like coins, holding cards, reading, eating, wiping after using the restroom. I do not seem to have the problem with hot or cold sensations I can feel that just fine. My doc at the cleveland clinic is very nice. I think it is either rheumatoid arthritis or lupus. My family dr thinks it is carpel tunnel and my neurologist just does not seem to care why I have it. I am getting tired of these two seeing who can pound their chest harder! There are days I can barely function, and I also have good days but they a far and few between. I have a wonderful supportive family and friends that wait on me hand and foot like the Queen that I am (haha) and my pets seem to be the best therapy for me, it is like they know I am not feeling well. I guess I am not asking anything, venting helps a little!
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Old 03-18-2011, 07:50 AM #25
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Originally Posted by Jelly Bean View Post
Karen, I'd recommend your seeing a Homeopathic doctor ..... a Homeopathic doctor can switch you to medicine with no side effects, put you on a special diet, exercise, supplements, research allergies you may have, etc.
A good physiatrist will do this too. You can usually find them practicing in sports medicine, but some are familiar with neuropathic problems, as well.
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Old 03-19-2011, 03:00 PM #26
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Originally Posted by msphun View Post
I have recently been diagnosed of SFN. After reading the posts of how you both are feeling, understandably why I feel the way I do. I am currently seeing a doctor who has never treated a person with my disorder before, and doctors who have, is about 6 hrs away. I started having these severe symptoms about a year ago. It started like Pseudo Siezures, with itchy, burning feet. They are cold and turning different colors.
If you can find a doctor that or somebody who give percutaine electro stimulation(electro acapunctuur) helps great with pain,be prepared to have allot treathments
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Old 03-25-2011, 05:53 PM #27
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Hi I am new to this forum and learning how great it is to have poeple validate your pain and educate you on conditionis. I have learned a lot in just the few days I have been here.

I have been diagnosed with ganglioneuritis, and I am learning it is VERY much like SFN. I too, and on cymbalta and amytriptyline. These were both prescribed by my neurologist becuase they interfer with the pain flow to brain pathways and can help reduce pain. They have halped reduce the severity of my pain a little.

At one time I was on nuerontin but refused it after a while. It made me so rediculously empty headed and absentminded I couldn't remember my own name. My short-term memory did not exist. Topamx does that to, but not to such a degree.

I have also noticed that cymbalta(or one of the other of my many meds) has recently (past couple of months) been making me nausious(HOW DO YOU SPELL THIS _ MY BRAIN WONT WORK TODAY)(thank you topamax!) - strangly enough, grapfuit makes me feel batter - which conficlts with amytriptiline.

I hope you get help - I too am now having insurance probalems and went from being active, too live and a couch - I have ruined the cushions And pets are the only things that get sane some days. In fact, yeterday when i found we may have to find a new insurance, I was devested. I went into my living room and pepper, my ferret who was out of kennel for play time, LAUNCHED herself at my leg then spun off of me and ran under the couch. It was that one moment of humor that kept me going for the rest of the day.
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Old 03-26-2011, 09:37 AM #28
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I forgot to mention that I also have problems with my vision which my neuro attributes to my condition. But I know amytriptyline can cause eye probs..

I sure hope things are going ok for you, I know how the dr.s can be. Maybe you can find one who is interested in hepling who can do some pro bono? I don't know ... when it comes to our health, it seem that the medical community helps the least. My husband and I ahad to do ALL the research and pushing for each and evey test to be done for my condition. I am glad you have supoort at home. My husband is now burnt out and done with it. Please let me know how you are doing I would like to know if you are getting any help.
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Old 03-28-2011, 09:37 AM #29
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I just went to the ER about 2 weeks ago. The dr. didn't understand why I was there since the previous tests done shows there is nothing they can do. He didn't even pull his nose out of the chart to ask or see why I would be there. Unfortunately he wouldn't until my husband said LOOK at her. I was having reactions to the Cymbolta. I ended up seeing my son's physciatrist. (I know not spelled right, I too lost memory) She is going to help me now with the panic attacks and depression coming with this problem. I am afraid to ask for help because of the medical profession refusing to help me just because they don't know what to do. I saw my regular dr for him to tell me to move to a city to get better medical treatment. Now I need to move to get help! How is this fair? I feel so betrayed by my body and my mind. I wish that dr can see that it is not in my head when I am asking for help, and have to ask them to look before they can say it is in your head. They did give me meds to counteract the Cymbolta. Now on Ativan for panic attacks and Valum and now giving me Lamictal for depression. I did do the homeopathic route but way to expensive to maintain. I am doing Ionic foot detox with infired belt at home. I have read where the infired is great treatment for neuropathy. The foot detox does help with the pain temporarily. Losing family and friends because of the drama my illness causes. People are to sad to talk to me because the can't deal with the suffering in my voice. Not like we are talking about my illness. They just know I am in pain with the tone of my voice. I have looked for support groups in my area, but no luck. I feel like what more do I have to loose. I am loosing my body, mind, family, friends, my job and now my home.
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Old 03-28-2011, 04:01 PM #30
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Default Not any better...

Stopped taking all medications about 6 weeks ago or so. My hand no longer burns it is just numb and really difficult to do things with it and it is always cold. My knee is now swollen and painful (for about 4 days now) very difficult to get around. My elbows and ankles...well anything that bends I guess hurts. just fed up with it all. My quality of life sucks! Vision has gotten better and so has memory those are good things Just seems to be something new every week. Hair is still falling out. Back is killing me and I can hardly bare any weight on my left foot it is so sore.
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