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#1 | ||
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Member
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Does anyone have both of these problems at once?
Joint hypermobility is related to Ehlers-Danlos syndrome I have a mild case and wondered is it related to my condition with ganglioneuritis |
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#2 | |||
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Wisest Elder Ever
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No diagnosis is cast in stone. Your real problem may be the joint hypermobility, causing your pain.
There is no way to prove the ganglioneuritis... but the Ehlers I believe has a genetic test. http://www.mayoclinic.com/health/ehl...-and-diagnosis
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | adelina (03-29-2011) |
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#3 | ||
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Member
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Thanks mrsD
I will check it out, but I don't know if I have Ehlers-Danlos, but a Rhuem has told me I do have HMJS. Thank you for website lead, according to it - HMJS is still an E-D sydrome. I am going to a new rheum I think and have some of these done. |
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"Thanks for this!" says: | mrsD (03-29-2011) |
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#4 | ||
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Member
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Quote:
I have found some reliefs using supplements suggested by the like of MrsD and others here over the years but I tend to find sometimes - after longer use the effects seem to wear off like nootropics. I found some relief with rebuilder before it started giving me tinnitus but aside from that only weed ( which was like bliss ) the odd time i tried it. hope this helps ![]() m |
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#5 | |||
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Senior Member
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i have ehlers danlos and thoracic outlet syndrome (which I believe is mild) and i think a stretch injury to my brachal plexus
anyways, i think the ehlers danlos is keeping my body from healing properly. im desperate, going to try taking vitamins for awhile. im experiencing muscle atrophy which is making the tos worse but i can't do strengthening AT ALL because it fires my nerves up. catch 22 |
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