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Old 04-16-2011, 01:07 PM #8
SydeTrack SydeTrack is offline
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Join Date: Apr 2011
Location: Ohio
Posts: 3
10 yr Member
SydeTrack SydeTrack is offline
New Member
 
Join Date: Apr 2011
Location: Ohio
Posts: 3
10 yr Member
Default I'm new too.

Jolina, Thanks for asking your questions. I'm just starting down the treatment path myself. This is my experience so far; I'm 37 years old, your not alone.

I was just diagnosed with Small Fiber Neuropathy after 3 years of medical testing. We are now looking for a cause.

I am up to 900mg of Gabapentin a day and have been on it for several months now. It wipes me out. From what I understand, someone please correct me if I am wrong, there is a very wide dosage range. I personally know someone that is on 4000MG a day and wouldn't be able to function without the medication. I am also on Tramadol that I take as needed. I am supposed to take 1 50mg Tramadol 4 times a day but I find that I usually take 2-3 of them at a time, only when I need it.

As far as supplements go, I recently started taking 400mg of Alpha Lipoic Acid 2x a day on the recommendation of my neurologist.

I take a mens multi-vitamin and take 6000mg of Fish oil.

I'm just trying to find a way to survive at this point. I also have range of motion problems like Daniella. I was pretty much told that if I didn't keep moving, I'd become disabled and suffer far more than I am already.

I have a very narrow exercise threshold, if I over do it, I'm done for a few days.

My pain involves the whole body with my thighs are the most painful. It feels like a ran a Marathon yesterday, 24x7x365. I have problems with my feet, swelling if I'm on them to much but haven't really focused on finding relief for them. I wish you luck.

I would ask the Dr to get a Skin Biopsy and Muscle Biopsy, right up front. It might save you years of testing and Dr's scratching their heads.

I would look around for the Best hospital in the area, and use their doctors. I bounced around between specialist for years and have finally had a few breaks at the Cleveland Clinic.

Best of Luck to you,

Brian
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malawigirl08 (04-16-2011)
 


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