Reply
 
Thread Tools Display Modes
Old 06-06-2011, 05:22 AM #1
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Question

Welcome to NeuroTalk:

I am finding it difficult to read your post, with no paragraphs, or spacing. Hard on my old eyes.

But I do see you have had foot pain for many years.
Whether the vaccines triggered this or not is hard to say. Also exposure to extreme cold, could affect the nerves. But over time, they may regenerate. During the regeneration they may send pain signals.

Can you tell us here, what you take in the way of drugs daily and supplements. I see a brief comment about Vit B... Can you provide more details on that?
Have you been tested for B12 and Vit D? Low Vit D leads to poor immune resistance to viral and other infections. The chronic bronchitis suggests, some nutrient deficiencies.

Have you had thyroid evaluations? Are your hands involved, or only your feet?

There have been some posters here in the past who have increased PN symptoms after joint replacements. This may have an autoimmune component, and be difficult to treat.

Have you been tested for Charot Marie Tooth? This hereditary PN is evaluated by DNA testing.

I really don't see how when you were in the army, examination of the prostate was done when you had shoulder pain? It sounds funny... but when my husband broke his foot in the army they made him trek on it anyway for over a day! When he finally went to sick call..he had to stand in line for hours...finally two orderlies came and carried him off. They couldn't even get his boot off.(it was so swollen he couldn't wear boots for along time after!) He really started to hate the army then! (not that he liked being drafted to Vietnam at all in the first place). But still they would not discharge him, and gave him a desk position instead.

edit to add... hubby says they didn't check HIS prostate when he had his broken foot...they even Xrayed it!
But he thinks that prostate exam may be a way to discourage malingering at sick calls..which is pretty common. Most guys would avoid the finger you know where, unless they were really having some issue he thinks.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Last edited by mrsD; 06-06-2011 at 07:37 AM.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ridehard2208 (06-06-2011)
Old 06-06-2011, 07:56 AM #2
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

Have you had an mri of your brain and spine? Also I remember Mrs D stating I think about being sick and it causing nerve condition? I picked up on that because I had pneumonia a few times. I could be off in a little bit of what Mrs D was stating so sorry. Since you mentioned being sick with bronchitis and needing to go to the er why I thought of it. Also have you been tested for auto immune conditions?
Sorry if I repeated what you had stated already. I also had a hard time following the post. I have bad eyes too.
daniella is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ridehard2208 (06-06-2011)
Old 06-06-2011, 08:03 AM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Yes, lots of infections? Perhaps Cipro or Levaquin or Avelox?
Known nerve damage from these antibiotics.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ridehard2208 (06-06-2011)
Old 06-06-2011, 11:54 AM #4
ridehard2208's Avatar
ridehard2208 ridehard2208 is offline
Junior Member
 
Join Date: May 2011
Location: Blacksburg, Virginia
Posts: 55
10 yr Member
ridehard2208 ridehard2208 is offline
Junior Member
ridehard2208's Avatar
 
Join Date: May 2011
Location: Blacksburg, Virginia
Posts: 55
10 yr Member
Default thank you for your ideas

Quote:
Originally Posted by daniella View Post
Have you had an mri of your brain and spine? Also I remember Mrs D stating I think about being sick and it causing nerve condition? I picked up on that because I had pneumonia a few times. I could be off in a little bit of what Mrs D was stating so sorry. Since you mentioned being sick with bronchitis and needing to go to the er why I thought of it. Also have you been tested for auto immune conditions?
Sorry if I repeated what you had stated already. I also had a hard time following the post. I have bad eyes too.
Hey Daniella, Sorry for that crazy rant post it was the 8th time I tried to get it out and my thought process wasn't the greatest I ever had.

I even forgot my bout with pneumonia when the muppets creator Jimmy Henson died with the same strain I had. My wife had to come to my work and take me to ER and she told me I threatened the ER Dr. with a law suite if he wouldn't let me go home, then 24/7 my wife stsyed by my bed side wipeing my forehead with a cool cloth and making sure I got my meds. I don't remember that week at all

Also I've had several (about 6) MRI even a bone scan. I have never had a spinal tap as far as I can remember, but just thinking of mrsD's suggestion of hereditary even though my father died young I do know he had a shorter left leg like me.

again thanks for your ideas!
__________________

.

.
Rich!!



PRIDE OF THE SETTING SUN; LAND OR SEA WE LIVE TO BE FREE
ridehard2208 is offline   Reply With QuoteReply With Quote
Old 06-07-2011, 05:05 PM #5
Rosie33 Rosie33 is offline
Member
 
Join Date: Feb 2011
Location: USA
Posts: 151
10 yr Member
Rosie33 Rosie33 is offline
Member
 
Join Date: Feb 2011
Location: USA
Posts: 151
10 yr Member
Default Hey Rich, you old dog you......

Your words, not mine, but I want to thank you personally for serving our country so we can be free, "Thank you, my friend, God Bless".
Rosie33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ridehard2208 (06-08-2011)
Old 06-08-2011, 03:48 AM #6
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

Quote:
Originally Posted by ridehard2208 View Post
Hey Daniella, Sorry for that crazy rant post it was the 8th time I tried to get it out and my thought process wasn't the greatest I ever had.

I even forgot my bout with pneumonia when the muppets creator Jimmy Henson died with the same strain I had. My wife had to come to my work and take me to ER and she told me I threatened the ER Dr. with a law suite if he wouldn't let me go home, then 24/7 my wife stsyed by my bed side wipeing my forehead with a cool cloth and making sure I got my meds. I don't remember that week at all

Also I've had several (about 6) MRI even a bone scan. I have never had a spinal tap as far as I can remember, but just thinking of mrsD's suggestion of hereditary even though my father died young I do know he had a shorter left leg like me.

again thanks for your ideas!
No worries it is my eyes that have a hard time focusing. Have you been to a rheumatologist? Before I developed rsd and pn I was sick all the time. We are talking every other month for a few years with a fever. They could not figure out why. I still feel though no doctor of mine makes a connection that the constant sick issue and then developing PN and RSD at a young age have a connection. I am not saying your pneumonia and bronchitis caused the nerve condition etc but just some thoughts.
I agree with Rosie thank you and everyone on here or a family member that served or is serving.
daniella is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ridehard2208 (06-08-2011)
Old 06-09-2011, 07:19 PM #7
ridehard2208's Avatar
ridehard2208 ridehard2208 is offline
Junior Member
 
Join Date: May 2011
Location: Blacksburg, Virginia
Posts: 55
10 yr Member
ridehard2208 ridehard2208 is offline
Junior Member
ridehard2208's Avatar
 
Join Date: May 2011
Location: Blacksburg, Virginia
Posts: 55
10 yr Member
Default response

Quote:
Originally Posted by daniella View Post
No worries it is my eyes that have a hard time focusing. Have you been to a rheumatologist? Before I developed rsd and pn I was sick all the time. We are talking every other month for a few years with a fever. They could not figure out why. I still feel though no doctor of mine makes a connection that the constant sick issue and then developing PN and RSD at a young age have a connection. I am not saying your pneumonia and bronchitis caused the nerve condition etc but just some thoughts.
I agree with Rosie thank you and everyone on here or a family member that served or is serving.
Hey Daniella, Thank you for your kind words and understanding. Sorry it took so long to respond i've had to keep my youngest grand daughter (7 mos.) all this wk. normally I keep her two days but other grand parents on vac. As for thr rheumatologist yes but some time ago. And the illnesses are spread over years or in some cases decades. I also feel most doctors don't make the connection on most of us, until this forum I felt it was just me.

Again Thanks!
__________________

.

.
Rich!!



PRIDE OF THE SETTING SUN; LAND OR SEA WE LIVE TO BE FREE
ridehard2208 is offline   Reply With QuoteReply With Quote
Old 06-10-2011, 01:42 AM #8
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

Quote:
Originally Posted by ridehard2208 View Post
Hey Daniella, Thank you for your kind words and understanding. Sorry it took so long to respond i've had to keep my youngest grand daughter (7 mos.) all this wk. normally I keep her two days but other grand parents on vac. As for thr rheumatologist yes but some time ago. And the illnesses are spread over years or in some cases decades. I also feel most doctors don't make the connection on most of us, until this forum I felt it was just me.

Again Thanks!
Wow you are a good grandma. I agree with you that doctors don't make connections. Each seem to just stick to their specialty and don't look outside that. Also it would be nice if all the doctors one worked with would communicate.
Maybe you should think about seeing a rheumatologist again? I am thinking that for myself too. Things can change over time. I have a friend who has had PN for many years and then was recently dx with Lupus.
Hang in there
daniella is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ridehard2208 (06-10-2011)
Old 06-06-2011, 08:58 AM #9
ridehard2208's Avatar
ridehard2208 ridehard2208 is offline
Junior Member
 
Join Date: May 2011
Location: Blacksburg, Virginia
Posts: 55
10 yr Member
ridehard2208 ridehard2208 is offline
Junior Member
ridehard2208's Avatar
 
Join Date: May 2011
Location: Blacksburg, Virginia
Posts: 55
10 yr Member
Default Thanks for Reply

Quote:
Originally Posted by mrsD View Post
Welcome to NeuroTalk:

I am finding it difficult to read your post, with no paragraphs, or spacing. Hard on my old eyes.

But I do see you have had foot pain for many years.
Whether the vaccines triggered this or not is hard to say. Also exposure to extreme cold, could affect the nerves. But over time, they may regenerate. During the regeneration they may send pain signals.

Can you tell us here, what you take in the way of drugs daily and supplements. I see a brief comment about Vit B... Can you provide more details on that?
Have you been tested for B12 and Vit D? Low Vit D leads to poor immune resistance to viral and other infections. The chronic bronchitis suggests, some nutrient deficiencies.

Have you had thyroid evaluations? Are your hands involved, or only your feet?

There have been some posters here in the past who have increased PN symptoms after joint replacements. This may have an autoimmune component, and be difficult to treat.

Have you been tested for Charot Marie Tooth? This hereditary PN is evaluated by DNA testing.

I really don't see how when you were in the army, examination of the prostate was done when you had shoulder pain? It sounds funny... but when my husband broke his foot in the army they made him trek on it anyway for over a day! When he finally went to sick call..he had to stand in line for hours...finally two orderlies came and carried him off. They couldn't even get his boot off.(it was so swollen he couldn't wear boots for along time after!) He really started to hate the army then! (not that he liked being drafted to Vietnam at all in the first place). But still they would not discharge him, and gave him a desk position instead.

edit to add... hubby says they didn't check HIS prostate when he had his broken foot...they even Xrayed it!
But he thinks that prostate exam may be a way to discourage malingering at sick calls..which is pretty common. Most guys would avoid the finger you know where, unless they were really having some issue he thinks.
Hey mrsD, Thank you for your response, 1st let me tell you I have read a lot of your post and replys and you never seem to disappoint and deliver good info and insight.


Sorry for the post my computer skills have gotten lacks due to not using for aabout 30 years and I also have a hard time reading it so thanks for helping me become more aware of that aspect of my quest for info and feedback most people will not read if too hard and I might miss valuable info.



The exam in the service where the medic kept checking my prostate was for lower back pain wihch could have been prostate but should have checked further with mri/x-rays etc.. which would have done if sent to Hosp. to see a Dr. which is next step. Also your husband is right I felt they were trying to discourage any from going on sick call cause they were a hard core Inf. unit but I did enjoy ny time there.

Finnally The four month I was out of work before the blood oxygen corrected it self I saw every specialist known to man and that took me as far as 100 miles away from where I live, they did every test for everything you can think of but CTM

Meds Tramadol 200mg a day, Gabapentin 1800mg and climbing a day, Diflunisal 1000mg a day for imflummion, a depression med, and sudafed


Sorry forgot about the foot pain yes every day since the 1st I had to wear Army boots which was 1976
From my reading the curved spine and high arches could point to hereditary, lost both parents at young age so???
The Swine flu shot cause GBS which meant it caused nerve damage so could be possiable cause.
The shoulder seperation in basic untreated, knees, back, and neck injurys which I had a profile for not to run over 1 mile, no bending or squating, which was ignored.


And I almost forgot the most important thing mrsD Thank your husband for his service to our Country, God Bless Him!!!
Again thanks!
__________________

.

.
Rich!!



PRIDE OF THE SETTING SUN; LAND OR SEA WE LIVE TO BE FREE

Last edited by ridehard2208; 06-06-2011 at 09:17 AM. Reason: Added info
ridehard2208 is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Gardening Tips and Tricks! tovaxin_lab_rat Home & Garden Talk 363 05-03-2012 10:26 AM
Stupid appliance tricks Blessings2You The Stumble Inn 20 11-25-2010 10:03 AM
tricks on how to stay cool mrkmyword Multiple Sclerosis 9 08-09-2010 02:13 PM
Tricks to relieve your TN pain? dmplaura Trigeminal Neuralgia 16 06-11-2009 02:01 PM


All times are GMT -5. The time now is 04:44 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.