Originally Posted by Artgirl

Hey Zorro13,
Good to know you are having relief for now. I really enjoyed my brief weeks of it. I keep thinking that if I got there once, I can do it again.
I was prescribed green tea by my alternative dr. She feels it is very important. Only problem for me is that it makes me nauseous. So, maybe it is helping. Keep up the good work!

Originally Posted by Artgirl

Hi to all and many thanks for all the fine work done on this site.

I have chemo induced peripheral neuropathy which started with my first treatment in March 2008. My arms/hands and legs/feet are affected with burning, muscle weakness, tiny "explosions" of pain occasionally, sometimes flu-like aches, stiffness and general fatigue. I have been taking oxycodone (5 mg) anywhere from 3-6 caps daily for the pain. It is a bit helpful, but not a as much as I'd like. I do yoga several times a week, which helps a bit also and have been trying to walk a little more. I find when I try to introduce any additional exercise or increase what I do that the symptoms tend to flare up. So if I want to add anything, I begin in tiny increments - almost having to sneak it past my body.

Found your forum this spring and began to use the suggested supplements about April 9th 2011. I started with:
B12 (5000 mcg)
B100 Complex
D3 (2500 iu)
Alpha Lipoic Acid (500 mg)
Fish oil (4 caps)
Acetyl-L-Carnitine (1000 mg divided)
Multi vitamin
Calcium/magnesium liquid blend (1200/600)

By early May I was feeling so incredibly well, it was AMAZING! My energy level shot up along with increased stamina and terrific general well-being. I was back to work in my art studio and just couldn't do enough. It was almost euphoria. The symptoms had not disappeared, but were easier to tolerate and I had improved sleep. This lasted a few weeks and then... I began to backslide.

I added some new supplements:
B6 (500 mg)
C1000 complex (2 daily)
Probiotic
CoQ10

Improvements leveled off a bit and have been continuing to go down rather than get better. This strikes me as a bit odd.

Is this a normal reaction? Can I expect to have a roller-coaster ride? I understand that healing is not linear, but is this a bit dramatic? I am curious as to other people's experiences with the guideline supplementation. Today I am so low contending with the pain and exhaustion once again. I just need some sleep as well. What is happening?

Any comments?

Artgirl

Originally Posted by Marty SLC

Diet, exercise, curtain supplements (not sure yet which because I'm on many), and sleep help me allot. But daily running is the biggest help to me. I don't know why. Blood flow, endorphins or just overall conditioning I'm not sure what.

Things that make me flare would include lack of sleep, lack of exercise, bad diet, mood, weather changes, to much caffeine, to much sugar.

I due expect flares but conditioning has help me deal so much better with them.

Originally Posted by zorrro13

"curtain supplements"

ever since gnawing away most of the wood in my house , I too am eying off the curtains..