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Old 07-11-2011, 08:19 AM #1
drwk drwk is offline
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Originally Posted by Tulips View Post
Hi

Just wondering if any of you guys had failed this test. where they use the tuning vibration device or use a pin to check for sensation.

if all my emg/ncv and skin biopsy is normal then what in the world is causing such extreme symptoms. all over the body.
all i have are clues so i am going complete gluten free, vitamins, spice free.

dosent make sense. i have seen people with such pain that have actual abnormall results.
can one have something circulating causing same pain but not damage to the nerves.
the razor sharp pain all over is just taking my life!! i dont no why its all over. face, inside mouth, scalp, all over.

there are worsening of sx now. as razor blades are slasing me so much more and my finger tips are going numb off and on.

i dont know who to turn too. i am just lost. sensory plus cramps and spasms.
“
Tulips, Have you been checked for infection of some sort???? That could be circulating in your blood system? Danielle
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Old 07-11-2011, 12:30 PM #2
Tulips Tulips is offline
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Hmmm I don't know exactly how they check
That? Any idea.

They have checked parvo virus negative
Recently igg to EBV was positive
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Old 07-12-2011, 11:35 AM #3
drwk drwk is offline
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Hmmm I don't know exactly how they check
That? Any idea.

They have checked parvo virus negative
Recently igg to EBV was positive
Tulip, how long have you had all of these symptoms from the beginning? If it has been a long time, you would think that you fail the tests. So strange. Also, I wanted to share with you that there is a great Face Book support groups named Neuropathy Friends. We can chat and help also Danielle
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Old 07-12-2011, 11:49 AM #4
Tulips Tulips is offline
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13 yrs. Just getting worse though. Had my last Emg a year go and only carpel tunnel. Skin biopsy on one site came normal.
Electric shocks and especially to walk and using hands getting worse and Allodyina worse. This is the thing I have all neuropathy symptoms but no signs doc can pick up so he says just take meds and what else u can do.
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Old 07-12-2011, 11:50 AM #5
Tulips Tulips is offline
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I can't did that page. It Dosent come up on face book
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Old 07-16-2011, 09:45 PM #6
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I can't did that page. It Dosent come up on face book
Its there its the first one.
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