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Old 07-22-2011, 08:18 AM #1
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Karenswails Karenswails is offline
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Join Date: Dec 2010
Location: West Lafayette, Ohio
Posts: 25
10 yr Member
Karenswails Karenswails is offline
Junior Member
Karenswails's Avatar
 
Join Date: Dec 2010
Location: West Lafayette, Ohio
Posts: 25
10 yr Member
Default Really confused? Kind of long...

In March of 2007 my right shoulder started hurting. I was told it was a pinched nerve, plurisy, or a pulled muscle. By October of 2009 my right arm hurt from my shoulder to my finger tips, numb, burning, very painful and weak. My family doctor finally says it is carpal tunnel and sends me to a local specialist that does all the tests and says "you do not have carpal tunnel". I had to beg for this doctor to refer me to someone else because he had no intention on helping me to find out what was wrong. He sends me to a neurologist at the Cleveland Clinic. She does a bunch of tests and says no carpal tunnel, and the only test that came back abnormal was the C-reactive ultra sensitive protein test, my score was a 10.7 and they said normal is 0 to 3. She does not think anything is wrong with me. I, again, beg for more testing. She reluctantly agrees and does a skin biopsy and it comes back as having small fiber neuropathy. She sent me to pain management...which was actually an examination by a phycologist. But, after listening to ALL of my symptoms ask if I have been tested for lupus and that I should ask my doctors about it. I did, they said no because I do not have the rash across my face. My symptoms are so bizarre, I now think maybe I am crazy? My entire arm hurt and burned, and my fingers were numb constantly from March 2007 until February of 2011. My arm no longer hurts, the burning and numbness are gone it seems fine, BUT now my knees are killing me?! Almost over night my knees and ankles started to swell in February of this year, just after my arm stopped hurting. I can hardly walk stairs, cannot get on the ground, standing up from a chair is very painful. Went to my family doctor and he said here is a prescription for some vicodin let me know if that helps. My knees are not swollen any more, but now they pop and snap. How can symptoms come and go like this? Is there really any thing wrong with me or am I nuts? Other symptoms are BAD muscle twitches, blurred vision, hair falling out, my left foot acts as if it has SFN, I get blisters and sores on my arms and legs and I am exhausted ALL THE TIME!
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