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Old 08-07-2011, 06:39 AM #21
glenntaj glenntaj is offline
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Default Pudendal neuropathy--

--refers to compression or overstretching of the pudendal nerve producing symptoms of pain, numbness, tingling, etc., in the pudendal nerve distribution, which includes the **** and genital areas:

http://www.pudendal.com/

http://www.pudendalhelp.com/home.html
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drwk (08-07-2011)
Old 08-07-2011, 11:21 AM #22
Fran H Fran H is offline
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How many of you still work or have worked while experiencing neuropathy? Can you tell your type of job? I am a teacher and worried about this coming year. Thanks a bunch! Danielle
I am a teacher and it has been ok. I seem to get worse more towards the end of my teaching day. I have not missed work because of it.
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Susanne C. (08-07-2011)
Old 08-07-2011, 05:28 PM #23
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Hi Fran,! Thanks for responding. What area or grade do you teach? What is pudendal neuropathy? I haven't heard of it... Is your neuropathy idiopathic or do you know the cause? As of right now I don't know what has caused my issues. Thanks for sharing! Danielle
I teach accounting on the high school and post secondary level in the same school. I actually heard of pudendal neuropathy from someone who answered your thread. In addition to burning and tingling in my hands and feet, I get a burning in the genital area (I believe that is the pudendal from what I read). I haven't been back to a neurologist in many years so I do not know what kind of neuropathy or the cause. I plan on trying a different neurologist soon. Have you been to a neurologist? What grade do you teach?
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Old 08-07-2011, 10:20 PM #24
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I teach accounting on the high school and post secondary level in the same school. I actually heard of pudendal neuropathy from someone who answered your thread. In addition to burning and tingling in my hands and feet, I get a burning in the genital area (I believe that is the pudendal from what I read). I haven't been back to a neurologist in many years so I do not know what kind of neuropathy or the cause. I plan on trying a different neurologist soon. Have you been to a neurologist? What grade do you teach?
I am a primary teacher I teach first grade. I have been to a neurologist about a month ago and I will see him again this week. It is all so overwhelming. I sent you a message on your profile page Danielle
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Old 08-08-2011, 11:56 AM #25
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How many of you still work or have worked while experiencing neuropathy? Can you tell your type of job? I am a teacher and worried about this coming year. Thanks a bunch! Danielle
I'm a computer programmer... yeah, I drive a desk ... I've been having the tingling, pins and needles, electric shock and cold feet for almost 5 years now... I try to get up at least once an hour to walk a little or do some stairs... that seems to help...
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Old 08-08-2011, 05:54 PM #26
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I'm a computer programmer... yeah, I drive a desk ... I've been having the tingling, pins and needles, electric shock and cold feet for almost 5 years now... I try to get up at least once an hour to walk a little or do some stairs... that seems to help...
Ed, small world! I live near Columbus. I am glad you are able to take breaks and you are continuing to work! Danielle
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Old 08-09-2011, 04:51 PM #27
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Crazy Sfn..ouch

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Ed, small world! I live near Columbus. I am glad you are able to take breaks and you are continuing to work! Danielle
Hi! Sorry to hear about everyone and their pain...Danielle I sent you a private message.
I have SFN in both feet (my right one worse), but I went through the ringer to get the diagnosed. My PM Dr suggested the SCS (spinal cord stimulator) I am not sure about that one yet. I worked part time in AZ then moved to Seattle..so now I am a stay at home mom.
I wouldn't mind working again..but all the meds I am I would be better off at a work from home job. I have no idea where find one of those.
Thanks for the FB suggestion I went to the site and requested to join.
It is nice to "talk" with people who suffer from this awful disease.
Oh ya, my neuropathy is idiopathic as well...which sucks even more.
I congratulate all that work so hard and make it through the day, you are much stronger than I am one of these days
Now my biggest goal is to not only feel better, but to have another baby!! How do I do that when I'm on all these freaking meds??!!
Anyway, sorry for the little pity party and vent haa haa.
Good luck and I am here to talk anytime!!
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