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Old 07-29-2011, 06:21 AM #1
glenntaj glenntaj is offline
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Default I still work full-time--

--but as a test preparation specialist and academic writer, I don't have what would be called a physically demanding job, and I can make my own schedule for the most part.

Still, the amount of driving I have to do does not help my neuropathic situation much (especially the pudendal areas).
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Old 07-29-2011, 08:36 AM #2
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I own and operate a locksmith business, both retail store and road service work. I opened this business 35 years, ago.
I was finally Dx'd with PN in 1999 -12 years ago.
I am, at the moment. a sole owner operator and am in the store/shop 6 days a week at 8:30 am and close-up when I have to go out on a service call. Working on doors to the 3rd or 4th floor walk-up to sun decks- sometimes can be a problem with my legs and feet feeling like cement, as well as my emphysema - so I just take my time. Some jobs can be so difficult, strength-wise, that I just do not take the job and refer it to my son or another locksmith younger and stronger. Some jobs can become a total surprise, and it takes so much out of me that I go home feeling as if I'd been hit by a truck. I'm sore for days.
But usually I can anticipate what needs to be done, and schedule myself accordingly so that I can get the job accomplished.
It usually is the car and home lock-outs that are the most physically demanding. Sometimes I need a gorilla to have the strength to do certain problematical things.
But I'll be 67 this Sept., and am still working full time, 6 days a week- but I no longer have 24 hour emergency service. Between 5-6pm, I'm on my way home for the nite.
I take 600mg Lyrica/day and 400mg Tramadol/day in equally divided doses.
If it weren't for those meds, I'd be a cripple in bed at home. I owe my livelihood to my PN meds.
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Old 07-29-2011, 04:07 PM #3
antonina antonina is offline
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Quote:
Originally Posted by nide44 View Post
I own and operate a locksmith business, both retail store and road service work. I opened this business 35 years, ago.
I was finally Dx'd with PN in 1999 -12 years ago.
I am, at the moment. a sole owner operator and am in the store/shop 6 days a week at 8:30 am and close-up when I have to go out on a service call. Working on doors to the 3rd or 4th floor walk-up to sun decks- sometimes can be a problem with my legs and feet feeling like cement, as well as my emphysema - so I just take my time. Some jobs can be so difficult, strength-wise, that I just do not take the job and refer it to my son or another locksmith younger and stronger. Some jobs can become a total surprise, and it takes so much out of me that I go home feeling as if I'd been hit by a truck. I'm sore for days.
But usually I can anticipate what needs to be done, and schedule myself accordingly so that I can get the job accomplished.
It usually is the car and home lock-outs that are the most physically demanding. Sometimes I need a gorilla to have the strength to do certain problematical things.
But I'll be 67 this Sept., and am still working full time, 6 days a week- but I no longer have 24 hour emergency service. Between 5-6pm, I'm on my way home for the nite.
I take 600mg Lyrica/day and 400mg Tramadol/day in equally divided doses.
If it weren't for those meds, I'd be a cripple in bed at home. I owe my livelihood to my PN meds.
Bob,
Do the meds help with leg weakness & walking ability? I do not use any meds, having given up on neurontin, et al. However, I am seriously mobility impaired and if I thought that Lyrica & Tramadol might restore my walking, I'd try them asap.

I feel I am one step away from being a "cripple in bed at home." Thanks for your help!
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Old 07-29-2011, 05:22 PM #4
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Default Keep working as long as possible.

I work fulltime in our local college, when I was teaching I tried to balance myself on the edge of the desk to take some of the weight off my feet. I now work in college management and am responsible for my own activities which helps. It means I can sit or stand or walk when I need to, I find I need to do all of these throughout the day to get by. I also have a small footstool with a moveable top under my desk so that I can keep my feet moving, this keeps the swelling down.
Working for me is a necessity as I would just wallow in pain if I didn't keep going. Weekends are bad as I collapse in a heap and sleep, pain is just so exhausting.....
My advice is to try to keep as busy as possible throughout the week, I cant advise on weekends as I haven't found the solution yet
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Old 07-29-2011, 09:51 PM #5
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BOB you are an inspiration. Just goes to show by ignoring the stupid pain you can still have a productive life.
My job was a very high profile position running motivational seminars in combination with mega sales for the motor industry. This involved me running around for 16 hours setting up and running the events in an expensive suit and business shoes and my feet hurt BEFORE I had PN
so my career is over
The initial loss of my embarrassingly high income hurt but as time went by I realized that I didn't need that much money with PN, kinda obvious that my flash lifestyle of traveling, skiing,yachting,late night partying was over anyway.
I trade the stock market theses days and I can tell you that in those 6hours Im very focused away from the pain so much that i dont remember it until its all over and it comes flooding back.
Distraction works pretty well.
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Old 08-06-2011, 12:28 PM #6
Fran H Fran H is offline
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Quote:
Originally Posted by glenntaj View Post
--but as a test preparation specialist and academic writer, I don't have what would be called a physically demanding job, and I can make my own schedule for the most part.

Still, the amount of driving I have to do does not help my neuropathic situation much (especially the pudendal areas).
How were you diagnosed with pudendal? What are your symptoms? I believe I have that (in addition to peripheal) but have not been to doctor recently. I'll go again once my husband's back surgery is finished in 2 weeks and he is up and about again.
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