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Old 07-31-2011, 11:38 AM #7
zygopetalum zygopetalum is offline
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Join Date: Jun 2011
Location: washington state
Posts: 417
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zygopetalum zygopetalum is offline
Member
 
Join Date: Jun 2011
Location: washington state
Posts: 417
10 yr Member
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Thank you everyone for the comments, I don't know anything about neurologists and they were helpful.

I'm not looking for a reason for the neuropathy in its self, I know that probably won't happen, I'm just trying to make sure its treated in the best way. Its too complicated to explain the details but I lowered the dose of both meds by about 50% (still breathing ok) a few weeks ago and got around a 50% reduction in pain and some other symptoms as well. I don't think there are too many alternative drugs I could take but I think there may be a few. What makes me mad is that no one has made any effort to figure it out.

The only solution I've been offered is Neurontin and I've learned from my reading here that it really does help some people. A reason I've been reluctant to take it is because one of my meds also inhibits the action of a neurotransmitter and they have some of the same side effects, fatigue, etc. The pain was so bad last spring I was going to go ahead and start it anyway but before I could do it I came up with a COPD med side effect listed as severe and was desperate enough to just mess with the doses. I think Neurontin can do something similar and I don't know what would happened if I'd been on both.

Thanks again, I appreciate comments from everyone, you never know when some little detail is going to help, I've learned a lot by reading here that has been useful in many ways.
Zygo
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