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Old 08-03-2011, 03:18 PM #15
zygopetalum zygopetalum is offline
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Join Date: Jun 2011
Location: washington state
Posts: 417
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zygopetalum zygopetalum is offline
Member
 
Join Date: Jun 2011
Location: washington state
Posts: 417
10 yr Member
Smile thanks

I don't have to walk all the time Brenda, at least it gave me a good opportunity to 'test drive' my feet. lol

Norah, I may have misspoke to some degree, I know Neurontin can cause constipation, etc. and see stomach and intestinal inflammation listed as a rare side effect but it affects a different neurotransmitter and I don't know if it is implicated in actual gastroperesis, people here know a lot more about that than I do. I'm not clear on whether you still feel you have PN or if its limited to EM, PN can cause it. I WISH my stomach would growl, its just kind of sitting there.

Echos, I was talking about Spiriva but I'm also on Flovent, I take the latter separately but its in Advair and some of the other combos as well. Both are listed as a low incidence cause of paresthesias. I see patient reports of neuropathy.

I have been able to separate what happens well enough to be fairly sure the Spiriva makes me numb and in a way that's hard to explain intensifies pain and makes it more diffuse. Flovent seems to create a burst of burning pain. One or both of them seem to be causing weakness (noodle arms, etc), I thought it was Flovent but am not sure. I've also had killer muscle pain from it but its hard to tell the difference between that and nerve pain when I take Spiriva because I'm numb. PT gave me a diagram of nerves and there was frequently a nerve where I had pain ie sural nerve.
I've also dropped dose of Flovent which helped as well. Pulmo told me I could go off it if I wanted, he didn't admit it caused any problems though. I will probably try that.

I've read that paresthesias can be very painful if they are severe enough, I don't know what kind of pain they mean and thought a neuro would be better able to tell the difference between something like that and SFN. I also think Glentaj is right that it depends on the neuro.
I just had thyroid panel and biopsy (eek) and its all fine. Don't think I have paraneoplastic syndrome because I have relatively frequent CT scans as I did have lung cancer 7 years ago, it was never advanced enough to cause it and if I had something new they should see it. I wasn't diabetic 1 1/2 years ago, PCP said I'm stable and I don't need yearly blood work anymore.(?) I have wondered about an immune problem, Flovent can cause neuropathy associated with Churg Strauss Syndrome, I don't have that but thought there might be other issues.

Echos I don't know what your PN status is or if you are on either of these, but I'd think about talking to Dr if you are (hope hes nicer than mine). there is something going on in some people with those meds.
Zygo
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