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Old 05-21-2013, 12:16 PM #5
sbaureis sbaureis is offline
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Join Date: May 2013
Posts: 2
10 yr Member
sbaureis sbaureis is offline
New Member
 
Join Date: May 2013
Posts: 2
10 yr Member
Default reponse to autoimmune ganglionitis

Quote:
Originally Posted by adelina View Post
Hi! Welcome to the site! You are wonderfully educated and are very impressive!

I have been diagnosed with ganglioneuritis/ganglionopathy for three years now. I was diagnosed by a university doctor who really enjoys helping patients like us and has quite a number. But I have been told that there was no treatment for it and that it traditionally goes away on most patients within six months. I have not been that fortunate and have been only able to treat for the pain caused by it.
There is at least one other person on this site and maybe this person will be able to help you. They are much more educated than I and have gone through more testing than I for it.

Feel free to contact me anytime to talk further and again welcome here - it is a great resource for education and friendship!


Hello...

I have been diagnosed with autoimmune ganglionitis and would be interested to hear about your symptoms as well as how you were diagnosed.

I am sometimes given prednisone when my symptoms flare which seems to help...IVIG has also been mentioned

thanks
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