On any kind of meds and never have and never want to be.

Glad you were able to bring up your family, but it is important to enjoy them now as l don,t think your very old at all. Plenty of time still left in life to achieve.

Sue

You need to be reading the posts here daily. Sometimes other people's experience light an idea for you.

We are all volunteers here, and cannot make every post or informational post PERFECT. We do our best, but oftentimes
something comes up in a post, and then one can have a "bingo" moment. I can recall many visitors here who do not tell "everything" and then one day out comes the salient tidbit that turns them around.

Each day until l figure out how to live my life with this, that is even if l have it.
Will find out more next Wed. It just seems so far away. Would love to know now.

Having muscle muscle twitches today and one has been bugging me all day on and off in the same spot. It is driving me mad.


Sue

Wishing you great news> twitches are common for me now and they drive me crazy also.

mrsD- thanks for the tip about vodka. But l have now had moderate wine consumption over the past 4 days, and l haven't seen any increase in my symptoms of PN. Does that mean its not the wine, or do the symptoms of PN have a delayed effect?

Dr Smith- I asked the neurologist have l caused this as a result of too much wine, and he said no. He also said there is nothing wrong with sharing a bottle of wine with husband most nights, but to have a couple of night off. I drink less than this anyway. He also said, to drink lots of water, as alcohol makes the brain shrink form dehydration, hence why we can have hangovers.

So he didn't see any problem with having wine at all. I think most neurologist love a good drop themselves. But then again, how much do we trust the neuro?
They don't seems to know much about alternative therapies when it comes to NP, so how much can we take there word for it??

Sue

I know what you're saying, but IMO, this can be a VERY [All 5 types of emphasis] slippery slope. There's a disclaimer at the bottom of every page on this site:

There's a similar disclaimer at the bottom of every post I make. They are not just rhetoric; they're there for a very good reason. Without taking anything away from knowledgable, well-meaning advice/people on online support groups, whether wrong or right, WE ARE NOT DOCTORS HERE. We don't have their knowledge, expertise, or access to many resources they do; doctors know your medical history - ALL of it, the results and accepted interpretations/meanings of test results - ALL of them, and a lot more that well-meaning and knowledgable people on the internet do not have.

There are some very good reasons why neuros and other doctors don't know much about alternative therapies: They're a dime a dozen, and taken in whole, MOST so-called "alternative therapies" are bunkum, pseudo-science, and/or snake-oil. Many of them have been discussed on this site. Much of what you may read here are not alternative therapies, but early research, backed up by legitimate studies that just haven't made it into the mainstream - yet. There's a vast difference between that and "alternative therapies" which can include... just about any claim any screwball decides to make.

I have learned much on this site and on many other websites as well, but I have not taken ANY advice given here or elsewhere without running it past my own doctors FIRST, and neither should anyone else. If someone doesn't like what their doctor says, they should find another doctor before blindly following advice given on the internet.

Doc

It helps to understand what doctors know and what they don't know.

Doctors are not educated heavily in chemistry and biochemistry. For this reason, they don't understand drugs for the most part, and rely on drug sales people to explain the drugs to them, much to our detriment.

Ask a doctor what polyphenols are, or congeners, or sulfites, and you will probably not get an answer, unless he collects wines or owns a winery.

Some allergists know what sulfites are, and may know what polyphenols are because these see people with allergic reactions. But a neurologist? I would not expect them to know much chemistry. And if older, I'd expect very little chemistry.

Doc. sometimes you just have a way of putting things that make sense. Thank you. ginnie

I was diagnosed with PN when I was 36 a few months later I was diagnosed with Diabetes. I am on gabapentin but it doesnt always help. My PN hasnt gotten worse over the years that I have noticed it has pretty much stayed the same.
I am new to these forums so if I post out of turn please let me know.

Glad to have you at Neuro Talk. I hope you can find some information here to help with PN. If you are at a standstill with your physicians, and not getting the help you need, I would go ahead and ask for a referral to another specialist. There is more than one medication that you can try to help ease the symptoms. I was young too, when I got an auto immune disease. Just 29. I was in a trail in a teaching hospital for many years. I know what it is like to be young with troubles. Try to keep a good outlook, and have hope that something more can be done for you. I don't give up on anything, until I get the best possible outcome for my conditions. I do wish you all the best. You can respond in any formun. Please feel at home here. Again welcome to Neruo Talk. ginnie