NeuroTalk Support Groups - Continued improvement, sugar another key

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- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Continued improvement, sugar another key (https://www.neurotalk.org/peripheral-neuropathy/168680-continued-improvement-sugar-key.html)

My smoothie has everything needed. Kale, carrots, apple, banana, frozen berries, greek yogurt, Green's First powder and Life Extention Whey powder (both what my doctor wants me to use-FULL of good things) Bob's gluten free Oats. I think that is all. Has the protein, minerals, vitamins, fiber, amino acids I need. I look forward to it every morning.

Glenntaj, I was always so careful with food since I had CFS for 20 years. I knew that I HAD to eat great food to stay strong. Supplements too of course.

But I would have Cola and some sweets sometimes. I just thought a small amount of sweets was ok in moderation. I really found out it isn't. For me at least. Even cereals I thought were healthful have too many carbs. if not eaten with protein.

We have really enjoyed learning how to use other things like Coconut Palm sugar, coconut oil, etc. My doctor also knows about nutrition so I check with him before using new things.

Greens first powder, whey powder?
What are these good for?
Do you put your oats the blender as well?

Sue

This is new information:

Blue green algae has been found to contain a toxin which is
damaging to the brain:

http://brainbank.med.miami.edu/x63.xml

http://thedartmouth.com/2011/06/28/news/ALS

http://neurotalk.psychcentral.com/sh...ighlight=algae

Even Dr. Weil is cautioning against algae in supplements:
http://lancasteronline.com/article/l...r-health-.html

Shezian, yes, all in the blender, kale oats and all! You can read about them below.

Green's First is alkalizing, many good ingredients.

http://www.greensfirst.com/gf_content2_2011.asp?node=15

Life Extention Whey Protein

http://www.lef.org/Vitamins-Suppleme...whey%20protein

I guess that is a small part of the Green's First, I can ask my doctor next time I talk to her. It is full of so many good things.

Quote:

Originally Posted by Sallysblooms (Post 873118)

Shezian, yes, the main symptom to define POTS is an increase of 30 or more beats per minute when standing. The blood will not stay in the brain and heart.

I went to many doctors, the ER... NO one knew what was wrong. My integrative is not in the same city so I was too ill to travel.

I went to a cardiologist since there is a lot of chest pain with it. He had no idea but talked to another doctor there and he said it could be Dysautonomia but he didn't know much about it.

I then learned about Dysautonomia and POTS is Dysautonomia but more specific with the heart beating so fast.

I then called my integrative doctor and finally we drove to see him. I was SO ILL. Unable to walk, in my wheelchair, very upset. MUCH too ill for the tilt table test. She did other testing right there. I was right, it was POTS.

So we added more supplements and did more blood tests, got my hormones balanced and I slowly improved. My serotonin and Vit D were LOW. They are much better and that was helpful in many ways.

You mentioned about your hormones being balanced, how did you know that it needs to be corrected? Did the integrative MD take a test on your hormones? Was there a specific hormones? What was the test called?

Thanks

I had Dr. Sergey Dzugan work with my doctor. It is a really great program but not cheap. Worth every penny though. You answer many questions and take A LOT of blood tests. Then he designs a program for you and they keep track of how you are on your own area of the site online. All bioidentical hormones, thyroid and cortisol that I needed also. Estrogen, Pregnenolone, Progesterone, and 7 Keto DHEA.

I had a hysterectomy and the gyn was a GOOF about hormones! I was REALLY ill. She just gave me a patch, ha. I knew she was very ignorant about hormones, but could not find even a hormone specialist that knew much. I got more and more sick with migraines.

For MANY years I suffered with migraines. The kind you cry and scream from. Throwing up constantly. I cannot take any meds for them. I tried so many, ER visits, doctors....It ruined a lot of my life.

SO, yes, I needed to get the hormones figured out! I was so happy my doctor suggested the Dzugan program. Your doctor does have to know enough to work with them though.

I was on the program for several years. Now, my doctor does it for me. We know what I need and all is stable and I never had a migraine again. Headaches from POTS, yes. Hormonal horrid migraines, all gone.

He has written two books. I have one and love it. I didn't need the one about migraines!

Sally, is Neuropathy a symptom of your POTS or the other way around?

You said you had auto NP, how did you get diagnosed with this type of PN?

What is worse POTs or auto NP?

Did you also ge burning feet and hands and sore feet?

I have bloated stomach, l just put it down to getting older. Hopefully it's not Auto NP.

Sue

Quote:

Originally Posted by Sallysblooms (Post 873459)

I guess that is a small part of the Green's First, I can ask my doctor next time I talk to her. It is full of so many good things.

I would start to find a greens supplement without the algae, if it were me using it. This toxin is not environmental (from pollution), the algae makes it. And it is cumulative.

Some algae in the past was contaminated with fluoride, and that came from the rocks and water it was growing in. This new neurotoxin is different.