NeuroTalk Support Groups - Continued improvement, sugar another key

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Continued improvement, sugar another key (https://www.neurotalk.org/peripheral-neuropathy/168680-continued-improvement-sugar-key.html)

Dr. Smith

04-27-2012 08:12 AM

Quote:

Originally Posted by Idiopathic PN (Post 873717)

I plan to get my hormones tested first.

That's what I was going to suggest, and working with an endocrinologist. They're not something I'd want to mess with cavalierly, even those sold OTC. Dr. Ray Sahelian talks about a lot of them on his site (scroll down page for topics), and while I have some reservations because he also sells product, it may be a starting point for further research before talking to an endocrinologist.

Some hormones are precursors/successors to others so it may not be necessary to take all of them; it depends on how well your system is metabolizing. For example, pregnenolone (which is made from cholesterol) is a pro-hormone, because it is a precursor to other hormones, which in turn are precursors to more hormones.
http://en.wikipedia.org/wiki/Pregnenolone

I'm taking currently taking pregnenolone & DHEA for chronic pain. I posted the reasons, source articles, results, etc. here.

Doc

mrsD	04-27-2012 12:13 PM

Quote:

Originally Posted by Shezian (Post 873816)

mrs D-that is really interesting about he Algae. I just wonder if there is anything in my water here. Since we have moved here a year ago, is when all the sickness really started with me. I have switched to bottled water a week ago, as l was getting paranoid about the water. Can this Algae, present itself in seafood? I have been eating a lot of it lately, and feel strange. Had a huge slap of salmon last night, this morning, l feel floaty again. Not sure if it has any correlation or not.
On insulin, doesn't it spike and fall each time we eat? Isn't it more to do with what kind of food is eaten? Why would eating once or twice per day have more of a dramatic fall of insulin?

Sally- i get floatiness which last for a few weeks sometimes, it feels like l have out of body experience. My neuro, put this down to a symptom of migraine, even though l don't' get headaches anymore l used to get them bad in my early twenties.
He said it has nothing to do with my PN, but l am starting to wonder now if it does.

Also, l was watching a cooking show about 2 Italians last night, and in Italy, they eat so much pasta, pizza, and white carbs. They seem healthy and happy. But this isn't' recommended by many nutritionists. I must admit, when l eat a healthy dose of pasta, l feel terrific.

Sue

There are concerns about farmed shrimp from Asia having drugs in them. Specifically Chloramphenicol, which is a drug that is known to cause neuropathy.

http://neurotalk.psychcentral.com/post867783-31.html

If your shrimp there comes from Thailand etc, I'd reconsider it.
Salmon here at one time farmed was contaminated by dioxins, but that has been supposedly fixed.

Sallysblooms

04-27-2012 02:25 PM

Oh yes, we only use shrimp from America. We have usually lived where we could get it fresh also. We love shrimp and salmon. Both are so healthful.

I never found an Endocrine doctor that knew anything about hormones, but there must be some that do. They often just do other things like thyroid, diabetes etc. I used Dr. Dzugan and he and the doctor that works with hiim really know what they are doing. There are really good doctors around. I have Dr. Holtze really close by and that was my 2nd choice. I am going to start going to him for other things to see what all he does. I know it is not just hormone help.

Shezian

04-28-2012 02:42 AM

I will have to find out where my seafood comes from? I eat salmon, crabs, oysters and prawns often. Especially when eating out.

When l buy at store, l usually always check where they are from, but in restaurants it's hard to know.

Sue

NeuroLogic

04-28-2012 05:00 PM

I just saw a report about sugar by Dr. Sanjay Gupta on CNN today. Pretty extreme stuff!

I stopped taking it several months ago because Dr. Carolyn Dean said it depletes Magnesium.

Nice to know it could help with PN and avoiding cancer, heart disease, etc.

I haven't had ice-cream in a year. No chocolate. No cake.

I didn't realize how many things have sugar even when you can't taste it. You really have to read the labels and assume nothing. But even the labels can be misleading with a variety of innocent and positive-sounding names.

I now get all my sweet satisfaction from fruit.

I recently ate something with sugar without realizing it had sugar, and it felt weird. I guess my body adapted to life without it.

One of the main reasons I avoid sugar now is it messes up my gut, and when that happens, all supplements aren't absorbed properly. I have to take bitter drops of MgCl in water to reset the flora.

Sallysblooms

04-28-2012 05:34 PM

Yes, sugar is in many things, other carbs too. Keeping blood glucose even is not easy all of the time. Added sugar is easier to leave out, but carbs are harder. Of course, we do need some good carbs.

Idiopathic PN

04-28-2012 08:54 PM

Quote:

Originally Posted by Dr. Smith (Post 873998)

Doc, I am not sure if I have to discuss the hormonal treatment with my endocrinologist or my primary care physician. When I searched on the hormones - its a lot! I don't know which hormones to test.

I read your posts....are you still taking the pregnenolone?

RideOn

04-30-2012 05:39 AM

My sore feet and numbness has progressed to small areas of numbness and burning on my hands. These tend to move around and are really causing me a lot of anxiety.

I am 178cm (5'11") and 80kg (177lb) a solid build but not overweight, my wife's description and she is a health professional. I eat reasonably healthy apart from my big sweet tooth; I eat a fair bit of ice cream, chocolate and/or lollies (candy) most days. The only reason I have gotten away with this is because of my level of exercise.

I am wondering if my diet could be contributing to my problem or if I could be pre-diabetic?

mrsD	04-30-2012 06:36 AM

I think ice cream is a double whammy.

Sugar and lots of FAT. There have been lots of studies on
eating high fat content foods, where volunteers were studied,
and blood drawn for several hours after the high fat meal.

What was found was that triglycerides go way up and make the blood more viscous. When thick like that it can be a set up for a cardiovascular event... or thickened blood cannot get thru the tiny blood vessels in the hands and feet.

Have you had testing for Ig proteins in the blood? MGUS?

Numbness that comes and goes, implies a lifestyle event happening IMO.

Dr. Smith

04-30-2012 06:37 AM

Quote:

Originally Posted by Idiopathic PN (Post 874403)

Hormones are secreted by the endocrine system.

Quote:

Endocrinology is concerned with the study of the biosynthesis, storage, chemistry, and physiological function of hormones and with the cells of the endocrine glands and tissues that secrete them.
http://en.wikipedia.org/wiki/Endocrinology

A few years ago, I saw a certified holistic doctor who tested my thyroid, a few adrenal hormones (because there is a strong relationship between adrenal hormones and chronic pain) and some others I don't recall. Everything was well within normal and above median except the adrenals.

Later on, after reading Dr. Forest Tennant's articles on adrenal hormones, I followed his guidelines.

But it may also depend on what hormones you're looking at and for what reason(s). Men routinely work with their PCPs with regard to testosterone replacement, and women work with their gynos for estrogen replacement. I've had steroid injections from orthopedists & pain management doctors (usually anesthesiologists), and other tests from neurologists for headaches & PN, and still others from a rheumatologist for arthritis, and several of them tested me for diabetes to no avail. But for widescale screening, especially if I didn't know what I was looking for, I'd do some homework and either follow where that lead me or at least start with an endocrinologist. Asking your PCP who to see about what isn't a bad idea either.

Yup, I'm still taking the hormones I mentioned; it's only been 3 days since that post. :)

Doc

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