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Neuronal Antibody testing-any experience or opinion

 
 
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Old 07-03-2012, 03:59 PM #5
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Quote:
Originally Posted by anabanana View Post
To clarify, my symptoms began with muscle weakness in my leg muscles(and twitching), as the weakness became worse, my feet, ankles, knees and hips began hurting more and more with time, becoming chronic. Other global signs are thinning of the skin, flaky skin, limited sensory type stuff(virbations, sharp jabs, hot spots), along with motor stuff (muscle weakness and global but specific twitching(fasciculations) of muscles), jerking of various muscles(probably called myclonic jerks). Along with heat sensitivity, fluctuating swallowing, breathless issues, and balance/unsteadiness issues.
Have you been worked up for myasthenia gravis?
That is an autoimmune disorder that attacks muscles, breathing and swallowing. From what I have read there, many neuros are not well versed with it, and getting proper treatment and attention requires several different doctor explorations.
Some people test negative on the various antibody tests for it too.
Here is their forum:
http://neurotalk.psychcentral.com/forum77.html
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