I recently posted an excellent link describing many/most types of polyneuropathy in STICKY - Important Links to Useful websites

http://www.neuroweb.us/Chapters/Polyneuropathy/text.htm

Doc

The general outline of types is valuable, but there is quite a bit of misinformation in that link on the hereditary neuropathies. CMT is always progressive, even if slowly, the article states that it is "rarely" progressive. Not sure about the part that says males are more often affected- I did get it fom my father, but my sister had a more disabling condition, and my aunt had it as well. The article seems to be repeat some older concepts that have since been modified. It is, however, a comprehensive place to start.

I agree with Suzanne C. There is a lot of misinformation in that article. Much has been learned about the types of CMT and HNPP.

Scroll towards the bottom to learn about CMTX.

http://www.ncbi.nlm.nih.gov/books/NBK1374/

You can learn all about HNPP from this site.

http://www.hnpp.org/

Remember that CMT and all the types and there are many - symptoms affect everyone differently even within the same family. And a person may not show any symptoms but can still pass it on. CMT is still misdiagnosed as something like polio, Fredrick's Ataxia, etc.

CMT is very complicated. Much research is going on but there is no cure/treatment at the present time. And it is progressive.

I don't think the list, or the site, was/is intended to be a comprehensive authority on all conditions. As a list/summary, it's still the best I've seen, and that is what was requested.

As far as the information, from the site's home page:
If you have exception with the material, there is a contact link at the bottom of the home page.

Doc

As you may know, Dr. Dirk Deleu became a board certified neurologist in 1988. Nowhere do I see that he is an expert on CMT.

http://www.neuroweb.us/page2.html


The information concerning CMT changes regularly and what is posted is not that recent.

I don't think the list, or the site, was/is intended to be a comprehensive authority on CMT or any other condition. A list of the types of neuropathy and their differences is what was requested.

If you have exception with the material, there is a contact link at the bottom of the home page. Please direct objections & corrections there. Thanks.

Doc

This is another site... but it is old too. 1998.

One can see that the drug list is lacking many drugs we now
know cause peripheral neuropathies.

But the page illustrates the complexity of the subject, how large it is, etc. It is written a bit more easily too.
http://www.aafp.org/afp/1998/0215/p755.html

There are many medical texts, with old information in them. Rose from here used to remark that doctor's using those old outdated texts, were the main reason so many with low B12 were suffering, and ignored by their own doctors.

Even texts with newer copyrights, can contain old articles that were never updated. Makes one feel really secure, right? NOT.

I think one of the reasons some of us are so sensitive to erroneous information is from meeting up with doctors who say things like "its not supposed to be painful" or "it's not supposed to get worse this quickly". You get the feeling their information is outdated, or perhaps was never very good. Even neurologists. I have small and large fiber neuropathies, pretty far gone, and my symptoms are perfectly consistent with my test results. I have pain and am losing the ability to walk. My neurologist was, however, disturbed by my symptoms and the rate of progression, so much so that she refused to see me again. Experiences like this make it very important that the information our primary care doctors find when they look up these relatively rare conditions be as accurate as possible.

Please don't take it so personally Doc! I have the greatest respect for your helpfulness, and I certainly did not intend any offense!