get a copy of your mri report and see for yourself what it says exactlly. you should get and keep copies of the results of all of your testing.

I plan on it- I get records of all my bloodwork and any xray/MRI/CT I have to do. But I work in a dr's office too, from 8-5, and they're open 8-4:30, so I haven't been able to make it over there yet for that, or my last bloodwork either.

Does this all sound like it's JUST from the B12 deficiency though?! Or does anyone think this sounds like there is some other autoimmune issue at play?

Any time we have testing done, we request copies be sent directly to us, so we get them the same time as the doctor. If they mess up, which is frequent, our doctor (and/or his staff) have no problem mailing us a copy. Just pick up the phone.

Doc

asap, get a complete celiac panel done....all of it, don't let them refuse. and don't allow them to do the screen, where if a certain test is neg, they don't do the rest.

Thanks everyone, for any and all input! Like I said, I am super frustrated from feeling so badly all the time. I am still pretty young and I'd like to enjoy it without grumbly tummy and fatigue and tingly arms all the time

The neurologist's office is pretty dreadful- they are nearly impossible to get a hold of, so yesterday I just filled out a records release at work and faxed it over to them for my bloodwork and my MRI to just be sent to me at work. Hopefully I get it soon, but I'm sure it will take at least a week.

I don't go back to see the neurologist until Aug.21st, so while I'm not opposed to getting a celiac panel- I'll try anything if it will fix this!- it would be quite a while before I get to see the neuro again to order it.

It's up to you, but I still prefer snail mail to your home address. Some employers, particularly large corporations, monitor and consider any communications received/sent via their property (phones, voicemail, computers, copy machines, email, faxes, etc.) to be/become their property, including your confidential medical records, which they have no right to otherwise.

https://www.privacyrights.org/fs/fs7-work.htm/

Doc

It's fine, I get my injections done at work and have seen some dr's there, so they have my info anyway

--it depends on the spine issue; some mechanical issues, such as a bulging disc, can be reabsorbed/heal over time, and a disc bulge on an earlier MRI may not show on a later one. This has happened to me at the C3/C4 level (and I did question it, given that I had earlier films and reports). Problems with bone spurs (osteophytes) that cause foraminal narrowing are much less likely to resolve

That said, B12 deficiency can cause a very wide range of symptoms/problems, especially if levels are low for a very long time (and I bet your were). Not only may there be anemia, not only may there be peripheral neuropathy, but ther may be subacute combined degeneration, in which nerve in the spinal cord are demyelinated and damaged. There are even people with long-standing B12 deficiency who look like they have MS lesions on brain and spinal scans--one reason B12 deficiency is supposed to be checked any time there are neurological symptoms and unusual MRI readings in those areas.

B12 injections don't always work the same for everyone.

I'd really support those with methylcobalamin(active form) oral 5mg daily on an empty stomach. At the end of 3 months your level should be at least 400, and hopefully 1000 or more.

Also I'd try icing your back area instead of heat. If you do use a heating pad 1) do so no longer than 10-15minutes as long term use of heat stimulates nerves, 2) don't apply heat to any area where you have put any topical rubs/creams. Heat applied to topical products drives the ingredients into the body past the skin and they can become toxic. A young woman died not to long ago from heat + BenGay. You can alternate heat and ice. Do either with moderation only.

Did you get your Vit D tested? Fixing that can improve your resistance to colds and sinus infections. If your Vit D is low, your cramping/spasms could be due to errors in calcium levels. Vit D will improve calcium absorption from your food.
Using OTC Vit D3 instead of RX D2 is more efficient and faster.

A level for B12 of 150 is quite low. It can take time for you to repair from this.