I plan on it- I get records of all my bloodwork and any xray/MRI/CT I have to do. But I work in a dr's office too, from 8-5, and they're open 8-4:30, so I haven't been able to make it over there yet for that, or my last bloodwork either.

Does this all sound like it's JUST from the B12 deficiency though?! Or does anyone think this sounds like there is some other autoimmune issue at play?

Any time we have testing done, we request copies be sent directly to us, so we get them the same time as the doctor. If they mess up, which is frequent, our doctor (and/or his staff) have no problem mailing us a copy. Just pick up the phone.

Doc

asap, get a complete celiac panel done....all of it, don't let them refuse. and don't allow them to do the screen, where if a certain test is neg, they don't do the rest.

Thanks everyone, for any and all input! Like I said, I am super frustrated from feeling so badly all the time. I am still pretty young and I'd like to enjoy it without grumbly tummy and fatigue and tingly arms all the time

The neurologist's office is pretty dreadful- they are nearly impossible to get a hold of, so yesterday I just filled out a records release at work and faxed it over to them for my bloodwork and my MRI to just be sent to me at work. Hopefully I get it soon, but I'm sure it will take at least a week.

I don't go back to see the neurologist until Aug.21st, so while I'm not opposed to getting a celiac panel- I'll try anything if it will fix this!- it would be quite a while before I get to see the neuro again to order it.

It's up to you, but I still prefer snail mail to your home address. Some employers, particularly large corporations, monitor and consider any communications received/sent via their property (phones, voicemail, computers, copy machines, email, faxes, etc.) to be/become their property, including your confidential medical records, which they have no right to otherwise.

https://www.privacyrights.org/fs/fs7-work.htm/

Doc

It's fine, I get my injections done at work and have seen some dr's there, so they have my info anyway

My opinion, again:

Continuing cyanocobalamin injections if you cannot convert them, to active form (this is a genetic error that is not rare)... will
not work over time. The injections are not an active form of B12 unless you are getting them especially compounded from a compounding pharmacy.

That is why using oral active methyl form on an empty stomach is
much better in the long run and FASTER for you.

But it is your decision anyway.

You don't need injections AT ALL... please read this: Written especially for doctors, but understandable for laymen too:
http://www.aafp.org/afp/2003/0301/p979.html

Estimates today are about 10% of patients have DNA failures called MTHFR errors. A doctor came on here not too long ago and said at a conference he attended recently they raised that estimate to up to 30%.
If this is your problem, you'll have to have testing (DNA) done to reveal methylation failures, or always use the active form which bypasses this error= methylcobalamin.

But if you like injections of cyanocobalamin, that is your choice too. We only offer options that are medically newer and accepted, than most doctors are aware of.