Yeah, I think compression issues are involved in exacerbating the SFPN.

When I gave the complete picture to the Physical Therapist (specializing in sciatica type stuff) he did seem a bit flummoxed. Here is my distillation/interpretation of what he recommends (and what we are going to try).

Leave us say that muscles in the area of the buttocks thighs and calves are extremely tight/tense (he whistled while measuring them). So we are going to start with stretches. I think the theory is that they are kind of tight like steel bands with the nerve(s) snuggled within their embrace (so I'm being poetic in my interpretation, LOL). Consequently, additional pressure from "outside" (sitting) is kind of like a chinese finger puzzle and compressing them. So...... hopefully stretches will alleviate this over time. Again, he didn't say it that way, it is how I've translated it.

Oddly so, I can take the "baseline" PN (about a 4 out of 10), but when you add the pressure parasthesia part to it, then it soars to an 8 or higher. Not that I'm going to neglect the baseline (that's what the supplements are for), but there's a lot going on to address.

That's the latest in this journey.

PS - I should be receiving a compounded prescription of a formulated foot gel designed to help with PN tonight. I'll post the results of using it. If it is positive, I'll see if I can get a precise listing of ingredients.

Well, hoping that the stretches will help with any pressure issues. I've ordered the following:

Acetyl l-carnitine (500 mg)
R-Lipoic Acid (100 mg caps)
Benfotiamine (250 mg caps)

Will start next week. I just gotta figure out the dosing and timing.

The foot cream came, but, again, waiting for next week after a medical procedure to begin anything new. When I get a chance, I'll list the ingredients, regardless.

You might also want to use CoQ10. I use the ones you ordered and many more.

Make sure the B12 is a good level, vit D also. Diet is at least half of it also.

Thanks SallyB...

Yah. These are just new additions. My daily supplementation includes Co-Q10, Fish Oil, MSM, vitamin D. My blood work for B12 is normal, but from what I've read here it needs to be higher. I went a bought a 1,000 mcg sublingual version and then, doh, I read here get the 5,000 mcg. Ah well. Live and learn, and use what I've already got.

I hope you're still checking this board. Even more, I hope your symptoms have improved. And that's partly a selfish hope because I'm dealing with very similar pain in the buttocks, and it too gets worse when I sit. And walking helps me, too, but for various reasons I'm just now building strength to the point where I can walk three-quarters of a mile on a level surface. Standing is worse--so I'm left sitting not-so-pretty.

That idea of the nerve being pinched from both directions makes sense to me. My neurologist thinks that the pain comes from the sciatic nerve but that it's not a further development of my idiopathic (small and large fiber) peripheral neuropathy. But given how weird this disease is, I'm more inclined to think just about any physical problem is related to the PN!

So I'd like to know if anything has helped your pain (and pressure). I'll check for posts from you in other threads, and maybe there's an update there.